The Story of Jahi Continues

smartnurse1982 · Mar 21, 2015

IBRF isn't going to step in to pay for anything unless they get paid. They put up a crowd funding site wanting $100K and a few days ago it still only had $100.00 in it. Other families on FB that have used them say that they always want the money up front. No clue what Shiavo is kicking in if anything. They got real quiet awhile ago and may have pulled back funding.
I never saw granny say she isn't vent dependent, but I'm sure she is. Dolan's last press release talked about Nails being afraid that the storms in NJ had her worried because if the electricity went out Jahi would "die" and he cited that as a reason for getting her back to CA. that was only a month or so ago. There is no possible way that she isn't on a vent 24/7.
A family that is trained on vent care and feeding tube can keep a person alive (or in this case animated) without the help of medical professionals. I worked in rehab as a second job for awhile and we sent patients home without nursing services on vents, but those people were very much alive and ambulatory.
I don't think any nurse is trained on long term corpse care, I would be surprised if there is any help at all. Vent and nutrition supplies, diapers and all of that may be paid for by Shiavo, but I'm pretty sure that there is no one paying for her care.

Nj is VERY unique when it comes to funding things like Pdn.

They are more generous than other states as far as funding goes.

However,i do not think at this time she gets Medicaid.

In this state,many facilities will not discharge a medically fragile child UNLESS he or she has Pdn set up.

The reason?

Caregiver fatigue.

Horseshoe, BSN, RN · Mar 21, 2015

It's hard for me to wrap my head around how a family (especially that one) could keep Jahi going as long as she has. I suppose that is, in part, to the girl's relatively healthy 13 year old body and it's resiliency. But still. I've yet to encounter everything lol so what folks here have said about NJ state not paying for nursing care, I have to agree with the logic of it and still have my head spinning on why that kid is still going over a year later.
Don't overlook how many people out there are calling this a 'miracle' :) If we step out of our personal perspectives for a moment, recognizing that things can indeed be seen differently than we see them, that Jahi is still going is miraculous indeed.

Many people have mentioned it, but do remember that there was a young man who was diagnosed as brain dead at the age of 4. His parents fought removal of life support and won. His heart gave out 20 years later. Autopsy showed his brain was a calcified little lump of nothing. Yet his body had survived decades on life support. Jahi could theoretically go on as she is now for many years to come.

scaredsilly, BSN, RN · Mar 21, 2015

Nj is VERY unique when it comes to funding things like Pdn.
They are more generous than other states as far as funding goes.
However,i do not think at this time she gets Medicaid.
In this state,many facilities will not discharge a medically fragile child UNLESS he or she has Pdn set up.
The reason?
Caregiver fatigue.

THat would all make sense if she were alive, but she is dead! Even NJ isn't going to pay to keep a corpse on a vent!

ixchel · Mar 21, 2015

Many people have mentioned it, but do remember that there was a young man who was diagnosed as brain dead at the age of 4. His parents fought removal of life support and won. His heart gave out 20 years later. Autopsy showed his brain was a calcified little lump of nothing. Yet his body had survived decades on life support. Jahi could theoretically go on as she is now for many years to come.

I wonder - did he grow, go through puberty?

JustBeachyNurse, LPN · Mar 21, 2015

I wonder - did he grow, go through puberty?

Scant growth and initial puberty changes but not significant. There is a link to the case study earlier in this thread

OC_An Khe · Mar 21, 2015

When will this ever end.....? The body needs to catch up with her soul.

scaredsilly, BSN, RN · Mar 21, 2015

When will this ever end.....? The body needs to catch up with her soul.

My opinion is that when the scamily releases CHO from HIPAA regs and CHO responds to the lawsuit this will end. Once the public gets to hear the real story, they won't be able to keep this up.

Horseshoe, BSN, RN · Mar 21, 2015

Even if it became clear that CHO was completely negligent, I don't see how it really changes anything as it relates to what to do about Jahi. She will still be brain dead with absolutely no chance at recovery or any kind of quality of life whatsoever.

smartnurse1982 · Mar 22, 2015

THat would all make sense if she were alive, but she is dead! Even NJ isn't going to pay to keep a corpse on a vent!

I never said NJ pays for it.....

She still gets 24/7 Pdn nursing. That is a fact.

Who pays for it?

I don't know.

Red Kryptonite · Mar 22, 2015

I never said NJ pays for it.....
She still gets 24/7 Pdn nursing. That is a fact.
Who pays for it?
I don't know.

I work as a private duty CNA occasionally. This kind of ridiculousness is not worth the paycheck. I'd refuse. Maybe if people just started refusing to work this case....

scaredsilly, BSN, RN · Mar 22, 2015

I never said NJ pays for it.....
She still gets 24/7 Pdn nursing. That is a fact.
Who pays for it?
I don't know.

How do you know it is fact? Because I don't believe it!

What nurse would agree to corpse care?

scaredsilly, BSN, RN · Mar 22, 2015

I work as a private duty CNA occasionally. This kind of ridiculousness is not worth the paycheck. I'd refuse. Maybe if people just started refusing to work this case....

I doubt very seriously that there are any nurses seeing the dead girl. It goes against everything we train for and believe in. Not sure where smartnurse gets her information, but I'd bet my next check it is misinformation.