Rationing Care in COVID: Whose life is worth saving?

Hospitals in California are contemplating the next grim step in this pandemic. With entire healthcare systems maxed out, crisis plans must be made to ration care.

Updated:  

Overwhelmed hospitals in California are rapidly inching towards the abyss of rationing care. 

  • On Jan. 4, 2021, an LA Times headline readAmbulance crews told not to transport patients who have little chance of survival”. 
  • The same article included a directive from the L.A. County Emergency Medical Services Agency to withhold oxygen from patients with 02 sats of 90% or higher.
  • Two days later, the L.A. Times reported that Methodist Hospital in Arcadia, CA notified the California Department of Public Health that it would implement crisis care guidelines.
  • If a patient becomes extremely ill and very unlikely to survive their illness (even with life-saving treatment), then certain resources currently limited in availability, such as ICU care or a ventilator, may be allocated to another patient who is more likely to survive,” read the county hospital's message.

Bodies are being stored in hastily ordered refrigerated trucks and morgues are turning away families. Patients are being cared for in hallways and tents.

We’re all exhaustingly familiar with surge/contingency state by now, but the next tier, crisis care, takes us to the far and extreme end of the spectrum. Moving to a crisis standard of care is not optional, it is forced  (IOM 2009). It’s when all other options have been exhausted. 

Crisis Standards of Care

Crisis Standards of Care typically apply to the battlefield. It conjures up movie scenes of doctors and nurses stepping over the bodies of those likely to die to treat only those less likely to die. Once unthinkable in healthcare, the hows and whys of it are now being planned. 

Warning

We were warned to prepare for this scenario decades ago.

“Therefore, the United States must continue to plan for a catastrophic public health event that will cause grave injury, disease, or death to potentially thousands or tens or hundreds of thousands in a city, region, or entire nation.” (IOM, 2009 pg 17). These words, written in 2009, sound almost prophetic when read today.

Hospitals and states are required to formulate Crisis Standards of Care Guidelines to activate during a catastrophe. Once a facility, a county, or even an entire state declares they are operating under Crisis Standards of Care, rationing is in effect. It should be formally announced that the facility is operating under Crisis Standards of Care due to specific circumstances to protect nurses and for public transparency.

According to the Institute of Medicine (IOM), Crisis Standards of Care are guidelines developed beforehand to help decision-makers allocate limited resources in a disaster. They provide a framework for decision-making when a hospital or system is so overwhelmed that it cannot provide the best care. 

Decision-makers under extreme stress need guidelines when information and situations are rapidly changing or otherwise, a first-come, first-serve prevails. Without guidelines, front-line workers have to make life and death and supply decisions at point of need. Chaos ensues.

Doctors could argue about which patients gets a ventilator, or dialysis, or ECMO. Nurses would have to decide who gets what medications and treatments first or not at all. Nursing assistants could compete to get blood pressure machines or oxygen tanks.

Crisis Standards of Care aka Rationing 

It will be called resource allocation by hospitals, and it means rationing. 

Who Gets Care?

Under Crisis Standards of Care, choices will be made to save the most lives, even if those choices are not in the best interests of individual patients.

A triage officer is appointed and a team convened, ensuring no one person has to play God. The team could include doctors, nurses, spiritual care providers, and ethicists. Committee members will not include the patient’s nurse or doctor. 

There are different ways to make such highly sensitive, ethical decisions. What are some criteria being considered?

  • Should age be a determinant? Preference given to a young person who has a full life ahead over a 70 yr old? But some 70 and even 80 yr olds still contribute a great deal, for example, Dr. Fauci, who is 80 yrs old, fit, and works 18 hr days.
  • What about people with disabilities? Some people with disabilities are afraid they won’t make the cut to the front of the line. Should someone with a higher baseline functional status be given preference over someone in a wheelchair, or someone with schizophrenia? 
  • Should likelihood of survival be the main decider? There are patients who have been on ventilators more than 30 days, more than 40 days. Currently if you are on a ventilator, the ventilator is yours until you improve or die. Under Crisis Standards of Care, it could be re-assigned after a period of time or if there’s no improvement.
  • Should those with chronic conditions and co-morbidities be given a lower priority? But won’t that discriminate against people of color, who have chronic conditions due to socioeconomic status and lack of access to healthcare?

These are tough questions. Should patients during admission be asked if they would forgo being placed on a ventilator if there is a shortage?

California guidelines state that a  person's age, race, sex, disability status, religion and ability to pay legally cannot be an explicit factor in making the decisions and proposes sequential organ failure assessment (SOFA) scoring.

 SOFA Scoring

Some hospitals are already measuring SOFA scores.

Scores measure oxygen levels, jaundice, kidney function and responsiveness. All things being equal, if 2 patients qualify for an ICU bed, it can go to the younger patient. Some patients who have been in ICU a very long time and are not improving based on condition scores may get removed or moved to a non-ICU bed.
 

Is your hospital moving toward crisis mode? What are you seeing and what are your thoughts?

Best wishes,

Nurse Beth

Author, "First-Year Nurse" the ultimate insider's guide to helping new nurses succeed while avoiding first-year pitfalls.


References

Berlinger, N., & WM, P. T. Ethical framework for health care institutions & guidelines for institutional ethics services responding to the coronavirus pandemic: Managing uncertainty, safeguarding communities, guiding practice. (2020, March 16). https://www.thehastingscenter.org/ethicalframeworkcovid19/ Retrieved 2021,Jan. 4.

Committee on Crisis Standards of Care: A Toolkit for Indicators and Triggers; Board on Health Sciences Policy; Institute of Medicine; Hanfling D, Hick JL, Stroud C, editors. Crisis Standards of Care: A Toolkit for Indicators and Triggers. Washington (DC): National Academies Press (US); 2013 Sep 27. 3, Toolkit Part 1: Introduction. Available from: https://www.ncbi.nlm.nih.gov/books/NBK202382/ Accessed 2021 Jan 4.

IOM. Crisis standards of care: A systems framework for catastrophic disaster response. Washington, DC: The National Academies Press; 2012. http://www.nap.edu/catalog.php?record_id=13351. Accessed 2021 Jan 4.

Hanfling, D., Hick, J. L., & Stroud, C. (2013). Toolkit Part 2: Public Health. In Crisis Standards of Care: A Toolkit for Indicators and Triggers. National Academies Press (US).

IOM (Institute of Medicine). Guidance for establishing crisis standards of care for use in disaster situations: A letter report. Washington, DC: The National Academies Press; 2009. http://www.nap.edu/catalog.php?record_id=12749.

Wigglesworth, A., Rong-Gong, L., Karlamangla, S, Money, L.(2021, Jan 4). Ambulance crews told not to transport patients who have little chance of survival. LA Times. Retrieved 2021, Jan 4

On 1/15/2021 at 10:06 AM, Curious1997 said:

I hate to agree with you because of your initial post but you are right. We do need oversight on government spending. 

The solution is incredibly simple! We should be able to prosecute legislators! They enact the rules that create the system! They have little oversight except at the voting booth. We have to remove the politics for a more objective process. 

Voting is not the answer! Flint Michigan proves this. Snyder was able to remove democratically elected officials and replace them with his own cronies, which led to the crisis! Appointed or sympathetic Prosecuters then refused to charge them for their heinous crimes! 

If an anonymous non paid civilian committee can review legislator's decisions and make recommendations for indictments that a special prosecuter can then charge, you would see the improvement! 

We use a moronic electoral college. Have a similar non partisan electoral civilian committee review government decisions and oversight. 

We have to take the financial incentive away from politicians and create punishments that are doubled than the normally established. This means only seriously committed people will go there. Max two term limits. 

Triple the punishment for the Supreme Court at state and federal level and anyone who demonstrated either political or religious beliefs in their rulings should be prosecuted and removed from office. 

Politics run our lives and we need to take it more seriously! 

This is the best way to get rid of lobbyist. High level I agree with all of this, maybe just differ a bit on the judges etc. There has to be more accountability 

Specializes in Dialysis.
On 1/13/2021 at 2:08 PM, SunDazed said:

So you think California has the same healthcare system as Canada? What?

 

That poster didn't say they had the same system. Just acknowledged that this is what happens with rationed care. I've lived in other countries, and yes, this does happen with socialized medicine,  or single payer systems, especially when resources are stretched beyond the limits. Not pretty, but a reality

Specializes in CRNA, Finally retired.
On 1/14/2021 at 10:53 AM, Jedrnurse said:

COVID has highlighted an issue that's been with us for a long time. 

We need to develop a sensible and sensitive approach to rationing care. Period.

Yep.  If we want anyone to get healthcare, we need to ration healthcare for all to afford it.  Things are getting better over recent decades but there are still way too many 90 year olds dying in tertiary level hospitals instead of receiving TLC for themselves and their families in a kinder and gentler environment.  We still treat death as the worst outcome in every situation.  I do not want the next generation to have to pay for my futile health care. 

 

13 hours ago, Hoosier_RN said:

That poster didn't say they had the same system. Just acknowledged that this is what happens with rationed care. I've lived in other countries, and yes, this does happen with socialized medicine,  or single payer systems, especially when resources are stretched beyond the limits. Not pretty, but a reality

That poster didn't say they had the same system. Just acknowledged that this is what happens with rationed care. I've lived in other countries, and yes, this does happen with socialized medicine,  or single payer systems, especially when resources are stretched beyond the limits. Not pretty, but a reality

 

So what did she mean by California aught to be it's own country?  

 

In America we don't necessarily ration care... but you do get to end up in crazy medical debt if things don't go as planned.

 

I haven’t had a chance to read all responses yet as I have to get up for the morning to work, but didn’t NY get a naval ship to prevent this issue that they didn’t really need after everything hung was over? Why on earth couldn’t the same thing be done for California? Rationing care, here in the USA-at least give them a chance unless they do not want it (Ex: no living will stating otherwise)? This is getting out of hand and the complete screw up with rolling out the vaccine does not help anything. None of those vaccines should have gone to waste because some idiot couldn’t decide how to distribute them prior to expiration.

Specializes in Dialysis.
8 hours ago, SunDazed said:

That poster didn't say they had the same system. Just acknowledged that this is what happens with rationed care. I've lived in other countries, and yes, this does happen with socialized medicine,  or single payer systems, especially when resources are stretched beyond the limits. Not pretty, but a reality

 

So what did she mean by California aught to be it's own country?  

 

In America we don't necessarily ration care... but you do get to end up in crazy medical debt if things don't go as planned.

 

No, but when the resources of any region, US or otherwise, are stretched, this is what happens. In the US, we are used to a higher/more varied level of resources. Countries with single payer systems don't have an unlimited buffet of treatments or resources. It's how they maintain costs. Another way costs are maintained: Drs and nurses are paid very low wages. Why do you think many from other countries would like to come here? 

Currently in the US, there are areas struggling with hospital bed availability, and we may find ourselves in this same conundrum, having to ration care. People who are used to the buffet of treatments, and keeping folks alive at all costs are going to have a hard time when told those options no longer exist

Specializes in CRNA, Finally retired.
4 hours ago, Hoosier_RN said:

No, but when the resources of any region, US or otherwise, are stretched, this is what happens. In the US, we are used to a higher/more varied level of resources. Countries with single payer systems don't have an unlimited buffet of treatments or resources. It's how they maintain costs. Another way costs are maintained: Drs and nurses are paid very low wages. Why do you think many from other countries would like to come here? 

Currently in the US, there are areas struggling with hospital bed availability, and we may find ourselves in this same conundrum, having to ration care. People who are used to the buffet of treatments, and keeping folks alive at all costs are going to have a hard time when told those options no longer exist

But it's time they got used to hearing it.  If we weren't so fat we wouldn't be struggling to get basic health care to everyone.

Specializes in Former NP now Internal medicine PGY-3.
3 hours ago, subee said:

But it's time they got used to hearing it.  If we weren't so fat we wouldn't be struggling to get basic health care to everyone.

Better be careful with all that hard truth your wielding there. Might get some angry faces. 
 

 

Sadly in America patients mostly won’t lift a finger to take care of themselves but want all the treatments available no matter the cost. Before someone counters with a “that’s not always true” I agree but most of the time it is. 

Specializes in Dialysis.
4 hours ago, subee said:

But it's time they got used to hearing it.  If we weren't so fat we wouldn't be struggling to get basic health care to everyone.

 

1 hour ago, Tegridy said:

Better be careful with all that hard truth your wielding there. Might get some angry faces. 
 

 

Sadly in America patients mostly won’t lift a finger to take care of themselves but want all the treatments available no matter the cost. Before someone counters with a “that’s not always true” I agree but most of the time it is. 

100%  I think so many are in for a rude awakening. 

On 1/13/2021 at 9:43 PM, JBMmom said:

We were doing okay back in March-June, about 50% were coming off the vent. We haven't had an extubated patient leave the hospital except through the morgue in the past few months. It's been rough. So many facetime good-byes for families, and with COVID patients no one can come to the hospital to see them. 

Back in March-June we also had about a 50% "success" rate coming off the vent. But I think the big difference is that back then we were intubating everyone. Once they went above about 6L, they went onto a vent. Now we're treating them with heated high-flow instead, and they stay on regular med-surg units at 60 L/min. So the ones who were strong enough to come off the vents back in the Spring, are the ones who are strong enough to stay off the vents now.  The ones going on the vents now wouldn't have survived a vent in April, either.

I agree that Zoom is a terrible way to say goodbye.  Now we allow families to come in (one at a time, with PPE, for a very short period) to say goodbye in person.  It's much more humane.  However, we only allow visitors after the patients have been made CMO, and the palliative team still struggles with families agreeing to comfort because they can't see how fast their loved ones have gone downhill and how much they are suffering.  Even with video calls to show them, people just don't get it.

Specializes in Specializes in L/D, newborn, GYN, LTC, Dialysis.

Medicine (and nursing) have LONG needed to change focus from "fixing" to "prevention" of poor health.  I take care of people years younger than I who won't move a muscle to help themselves and are in the worst health you can imagine. Yet they expect us to do everything for them and get mad when they aren't doing well.  

I am getting tired of lifting/moving people who outweigh me by 200-300 pounds who complain all the time about their poor health. 

At what point do we talk about health PRESERVATION instead of patching up people who don't want to help themselves?

COVID is a unique situation, I agree. But so many people are primed to do worse and die just by poor health brought on by years of bad habits and threatening to sue their doctor for telling them the truth (I recall a case where a lady sued her doctor for telling her she was fat, when in fact, it was true).  I believe COVID is highlighting all these issues with lack of basic self care in many ways. Not saying all who get sick and die "deserve it", no, just saying they are going to do worse by the nature of things.

We need to wake up! We can't afford this and neither can our kids or grandkids. Fast food, instant gratification are getting us no where.

 

Specializes in Dialysis.
7 hours ago, SmilingBluEyes said:

Medicine (and nursing) have LONG needed to change focus from "fixing" to "prevention" of poor health.  I take care of people years younger than I who won't move a muscle to help themselves and are in the worst health you can imagine. Yet they expect us to do everything for them and get mad when they aren't doing well.  

I am getting tired of lifting/moving people who outweigh me by 200-300 pounds who complain all the time about their poor health. 

At what point do we talk about health PRESERVATION instead of patching up people who don't want to help themselves?

COVID is a unique situation, I agree. But so many people are primed to do worse and die just by poor health brought on by years of bad habits and threatening to sue their doctor for telling them the truth (I recall a case where a lady sued her doctor for telling her she was fat, when in fact, it was true).  I believe COVID is highlighting all these issues with lack of basic self care in many ways. Not saying all who get sick and die "deserve it", no, just saying they are going to do worse by the nature of things.

We need to wake up! We can't afford this and neither can our kids or grandkids. Fast food, instant gratification are getting us no where.

 

I can't like (love) this enough. 30+ years ago, I started nursing school to learn how to help people learn to take better care of themselves for health promotion.  If I'd had a crystal ball, I'd have went with something else.

 

I have 2 patients who couldn't get on the transplant list because they smoke (occurred at different times). They came to the clinic cussing everyone, said that we told the transplant services...nope, they draw labs, and can tell what you're doing to yourself. 

 

My uncle died in the hospital New Years Eve after being admitted on Christmas Day. He was 94 and had abused his body with food, lack of activity,  and self adjusting his meds for years. He had heart failure, T2 diabetes, was at stage 4 kidney disease, as well as skin and prostate cancer (stage 2). Wife and 3 of 4 kids demanding that every measure be taken to save dad's life. The 1 hold out finally got mom (my 93 year old aunt) to listen to reason and make him CMO in hospital, to hospice once they could get him home. He died in the hospital before they could get hospice set up and get him home. Other kids mad at mom and hold out because they "killed" dad. I can't talk to them right now over this ridiculous situation-they are trying to drag every family member, friend, anyone who will listen, into the argument. I realize, not my pasture/not my bull****, but this goes on so much with so many Americans, its sickening, and beyond sad