Hospitals in California are contemplating the next grim step in this pandemic. With entire healthcare systems maxed out, crisis plans must be made to ration care.
Updated:
Overwhelmed hospitals in California are rapidly inching towards the abyss of rationing care.
Bodies are being stored in hastily ordered refrigerated trucks and morgues are turning away families. Patients are being cared for in hallways and tents.
We’re all exhaustingly familiar with surge/contingency state by now, but the next tier, crisis care, takes us to the far and extreme end of the spectrum. Moving to a crisis standard of care is not optional, it is forced (IOM 2009). It’s when all other options have been exhausted.
Crisis Standards of Care typically apply to the battlefield. It conjures up movie scenes of doctors and nurses stepping over the bodies of those likely to die to treat only those less likely to die. Once unthinkable in healthcare, the hows and whys of it are now being planned.
We were warned to prepare for this scenario decades ago.
“Therefore, the United States must continue to plan for a catastrophic public health event that will cause grave injury, disease, or death to potentially thousands or tens or hundreds of thousands in a city, region, or entire nation.” (IOM, 2009 pg 17). These words, written in 2009, sound almost prophetic when read today.
Hospitals and states are required to formulate Crisis Standards of Care Guidelines to activate during a catastrophe. Once a facility, a county, or even an entire state declares they are operating under Crisis Standards of Care, rationing is in effect. It should be formally announced that the facility is operating under Crisis Standards of Care due to specific circumstances to protect nurses and for public transparency.
According to the Institute of Medicine (IOM), Crisis Standards of Care are guidelines developed beforehand to help decision-makers allocate limited resources in a disaster. They provide a framework for decision-making when a hospital or system is so overwhelmed that it cannot provide the best care.
Decision-makers under extreme stress need guidelines when information and situations are rapidly changing or otherwise, a first-come, first-serve prevails. Without guidelines, front-line workers have to make life and death and supply decisions at point of need. Chaos ensues.
Doctors could argue about which patients gets a ventilator, or dialysis, or ECMO. Nurses would have to decide who gets what medications and treatments first or not at all. Nursing assistants could compete to get blood pressure machines or oxygen tanks.
It will be called resource allocation by hospitals, and it means rationing.
Under Crisis Standards of Care, choices will be made to save the most lives, even if those choices are not in the best interests of individual patients.
A triage officer is appointed and a team convened, ensuring no one person has to play God. The team could include doctors, nurses, spiritual care providers, and ethicists. Committee members will not include the patient’s nurse or doctor.
There are different ways to make such highly sensitive, ethical decisions. What are some criteria being considered?
These are tough questions. Should patients during admission be asked if they would forgo being placed on a ventilator if there is a shortage?
California guidelines state that a person's age, race, sex, disability status, religion and ability to pay legally cannot be an explicit factor in making the decisions and proposes sequential organ failure assessment (SOFA) scoring.
Some hospitals are already measuring SOFA scores.
Scores measure oxygen levels, jaundice, kidney function and responsiveness. All things being equal, if 2 patients qualify for an ICU bed, it can go to the younger patient. Some patients who have been in ICU a very long time and are not improving based on condition scores may get removed or moved to a non-ICU bed.
Is your hospital moving toward crisis mode? What are you seeing and what are your thoughts?
Best wishes,
Nurse Beth
Author, "First-Year Nurse" the ultimate insider's guide to helping new nurses succeed while avoiding first-year pitfalls.
References
Berlinger, N., & WM, P. T. Ethical framework for health care institutions & guidelines for institutional ethics services responding to the coronavirus pandemic: Managing uncertainty, safeguarding communities, guiding practice. (2020, March 16). https://www.thehastingscenter.org/ethicalframeworkcovid19/ Retrieved 2021,Jan. 4.
Committee on Crisis Standards of Care: A Toolkit for Indicators and Triggers; Board on Health Sciences Policy; Institute of Medicine; Hanfling D, Hick JL, Stroud C, editors. Crisis Standards of Care: A Toolkit for Indicators and Triggers. Washington (DC): National Academies Press (US); 2013 Sep 27. 3, Toolkit Part 1: Introduction. Available from: https://www.ncbi.nlm.nih.gov/books/NBK202382/ Accessed 2021 Jan 4.
IOM. Crisis standards of care: A systems framework for catastrophic disaster response. Washington, DC: The National Academies Press; 2012. http://www.nap.edu/catalog.php?record_id=13351. Accessed 2021 Jan 4.
Hanfling, D., Hick, J. L., & Stroud, C. (2013). Toolkit Part 2: Public Health. In Crisis Standards of Care: A Toolkit for Indicators and Triggers. National Academies Press (US).
IOM (Institute of Medicine). Guidance for establishing crisis standards of care for use in disaster situations: A letter report. Washington, DC: The National Academies Press; 2009. http://www.nap.edu/catalog.php?record_id=12749.
Wigglesworth, A., Rong-Gong, L., Karlamangla, S, Money, L.(2021, Jan 4). Ambulance crews told not to transport patients who have little chance of survival. LA Times. Retrieved 2021, Jan 4
On 1/13/2021 at 2:08 PM, SunDazed said:So you think California has the same healthcare system as Canada? What?
No I don't. But California is a state that spends recklessly on programs that ultimately keep people dependent on the government to survive; and as a result has no money to fund things that the government should be focused on for the good of all. That state is in financial despair, you have to ask why? California is a gorgeous state with tons of natural resources, an enormous tax base, why are they in dire straits? California is all about big government and maybe that's what people there want? The money is going somewhere. You cannot deny the mess they are in, a pandemic only highlights it. To paraphrase Ronald Reagan...the scariest words anyone will ever hear are "I'm from the government and I'm here to help".
California state Governor Ronald Reagan forever changed the world of K-12 education with prop 13 passed in 1978. It took local community control over school districts and pushed it up to state level for majority funding. Calif was one of the best places in education until the change actually kicked in. It is much closer to the bottom of the list now. Prop 13 had a lot of long term negative impacts on the education kids can receive. Or do you think public school is a hand out?
3 hours ago, Camillemm said:No I don't. But California is a state that spends recklessly on programs that ultimately keep people dependent on the government to survive; and as a result has no money to fund things that the government should be focused on for the good of all. That state is in financial despair, you have to ask why? California is a gorgeous state with tons of natural resources, an enormous tax base, why are they in dire straits? California is all about big government and maybe that's what people there want? The money is going somewhere. You cannot deny the mess they are in, a pandemic only highlights it. To paraphrase Ronald Reagan...the scariest words anyone will ever hear are "I'm from the government and I'm here to help".
I hate to agree with you because of your initial post but you are right. We do need oversight on government spending.
The solution is incredibly simple! We should be able to prosecute legislators! They enact the rules that create the system! They have little oversight except at the voting booth. We have to remove the politics for a more objective process.
Voting is not the answer! Flint Michigan proves this. Snyder was able to remove democratically elected officials and replace them with his own cronies, which led to the crisis! Appointed or sympathetic Prosecuters then refused to charge them for their heinous crimes!
If an anonymous non paid civilian committee can review legislator's decisions and make recommendations for indictments that a special prosecuter can then charge, you would see the improvement!
We use a moronic electoral college. Have a similar non partisan electoral civilian committee review government decisions and oversight.
We have to take the financial incentive away from politicians and create punishments that are doubled than the normally established. This means only seriously committed people will go there. Max two term limits.
Triple the punishment for the Supreme Court at state and federal level and anyone who demonstrated either political or religious beliefs in their rulings should be prosecuted and removed from office.
Politics run our lives and we need to take it more seriously!
On 1/13/2021 at 10:08 AM, Camillemm said:California aught to be it's own country. I've been a nurse for 40 years and have never seen rationing of care. When I worked at a large teaching hospital in VT, years ago, we always would get patients from Canada, because under socialized medicine health care is rationed. Now to hear California is doing it. People do not realize when they wish for a government that takes care of their every need, free this and free that, this is what happens. Some body has to pay for it, and now that somebody is a patient. It's only going to get worse. Glad on on the downhill slide.
You have to kind of step back and take an article at face value. Not all of California is in dire situation given how the pandemic is affecting parts of the state in different ways. I understand the reason for the article given that the high alert level is pretty much common across the US not just California. However, the State of California is unique in that we have a large population of diverse economic and social status and just like the entire US, the cracks in our public health system are beginning to show.
The urban areas are crowded for sure with people on the throngs of poverty cast against those living in multi-million dollar homes. Add to that, the many residents in congregate living settings such as nursing homes. The pre-existing problems here are a set-up for a crisis of great proportions such as this pandemic which has tested our aging infrastructure for healthcare. I feel like if any state is prepared, California would be it because I've seen better deployment of public health services here than when I was in the Midwest. It's just the magnitude of the pandemic has reared its effects.
It is reassuring that in Northern California, where I am, I have not seen any of the rationing, ICU beds at full capacity, etc. However, it's a warning for all of us, not just in California, that the worst is yet to come if we don't get this pandemic under control.
14 hours ago, scribblz said:This is why palliative consults are necessary. They cut right to the chase of quality over quantity. In fact I've seen some people get both by having their symptoms managed in a non-aggressive manner. If someone has a poor prognosis it should automatically trigger a palliative consult. It's not a "don't treat" it's a "don't treat mindlessly for the sake of treating" with no care to the suffering of the patient.
I've often said that every patient admitted to our ICU should have a palliative care consult, because no matter what their diagnosis and prognosis, an ICU admission generally means a condition that requires ongoing support and resources. Clarifying the goals of care is an important part of providing patient centered care. Whether it's a noncompliant dialysis patient being admitted for (yet another) hypertensive crisis, one of the frequent alcoholics being admitted for detox, or an elderly COPD patient with an exacerbation, we often treat these patients medically with no regard for what lead to their situation. (I don't mean judging their situation, they deserve medical treatment, IF it's what they want, no matter why they are there) Why are they not compliant with medical recommendations? Do they have barriers to care? What are their goals? Do they need access to community resources? Does the family need assistance with providing care to a loved one living at home? The palliative care team is often skilled in navigating the system to find appropriate resources. And when appropriate, transitioning from aggressive to comfort focused care is best done when there is a foundation of trust in the team.
17 minutes ago, JBMmom said:I've often said that every patient admitted to our ICU should have a palliative care consult, because no matter what their diagnosis and prognosis, an ICU admission generally means a condition that requires ongoing support and resources.
In terms of COVID-19, yes agreed. However, ICU care is more nuanced than simply stating that everyone who is critically-ill is at high risk of drying. While that statement is certainly true, ICU admissions are required for patients who underwent complicated surgical procedures (cardiac surgery, transplants, neurosurgeries, etc).
There can be a high degree of success in many of these surgeries and many surgeons would want to keep all care options open at least for the time frame that complications are expected to happen. Of course, I've disagreed with many decisions surgeons made about being aggressive after a complicated case but with careful consideration of individual situations. This is where institutions should reconsider whether some of these non-emergency surgical procedures should be halted.
A COVID-19 intubation and subsequent admission to the ICU can buy a patient up to months of ventilatory support in our experience. We are an ARDSnet center but our COVID-19 patients certainly require the vent longer than the typical ARDS we've seen in the past. I think, this is where Palliative Care (which is on speed dial on our phones) have a role. Is being on the vent that long and with a prolonged road to recovery within an individual's goals of care? Would keeping patients this long on the vent worsen the bottleneck of patients who are turning up in the ED's needing to be intubated?
8 minutes ago, juan de la cruz said:In terms of COVID-19, yes agreed. However, ICU care is more nuanced than simply stating that everyone who is critically-ill is at high risk of drying. While that statement is certainly true, ICU admissions are required for patients who underwent complicated surgical procedures (cardiac surgery, transplants, neurosurgeries, etc).
There can be a high degree of success in many of these surgeries and many surgeons would want to keep all care options open at least for the time frame that complications are expected to happen. Of course, I've disagreed with many decisions surgeons made about being aggressive after a complicated case but with careful consideration of individual situations.
A COVID-19 intubation and subsequent admission to the ICU can buy a patient up to months of ventilatory support in our experience. We are an ARDS center but our COVID-19 patients certainly require the vent longer than the typical ARDS we've seen in the past. I think, this is where Palliative Care (which is on speed dial on our phones) have a role. Is being on the vent that long and a long road to recovery within an individual's goals of care? Would keeping patients this long on the vent worsen the bottleneck of patients who are turning up in the ED's needing to be intubated?
I don't equate palliative care with end of life, palliative care as our hospital team works, is focused on clarifying goals of care and obtaining resources. If those goals are curative, based on the wishes of the patient and family, then identifying appropriate resources for support is important. Certainly patients with neuro or cardiac surgeries can live many years of healthy lives, but they still need access to resources. If the palliative care team, and the families, determine that hospice or comfort focus is appropriate, that's another aspect.
Certainly COVID has brought challenges to care and difficult decisions for practitioners and patients and families. Part of the problem is that we don't regularly use palliative care appropriately, so when they are called in, families assume we are telling them there is no hope and that in and of itself is a barrier to care. If you have a minute, this is one of my favorite videos that I think clarifies how palliative care is viewed: Palliative Care PSA - We’re the fire department, not the fire. - Youtube (the link won't paste, but it's worth a quick search!)
45 minutes ago, JBMmom said:I don't equate palliative care with end of life, palliative care as our hospital team works, is focused on clarifying goals of care and obtaining resources. If those goals are curative, based on the wishes of the patient and family, then identifying appropriate resources for support is important. Certainly patients with neuro or cardiac surgeries can live many years of healthy lives, but they still need access to resources. If the palliative care team, and the families, determine that hospice or comfort focus is appropriate, that's another aspect.
It's not, that is well known by anyone in the hospital setting for sure. But ICU teams are supposedly knowledgeable and competent in goals of care discussion and symptom management, at least we are at work. There are many situations where another layer of assistance is needed from Palliative Care and I've come across those situations for sure especially in complicated social situations and family conflict. Surgery teams are well connected to resources should their patient need it after discharge, at least where I am working. These are complications they are familiar in dealing with. Not discounting Palliative Care here as I'm friends with many in that service...just saying a blanket consult is not always necessary.
There is a series of Pallaitive Care PSA --- like Goals Before Holes the best.
Totally agree that most CCU/ICU patients should have Palliative Care Eval to help patient understand choices about their care, determine what THEIR goals for life are, have support and appropriate followup resources arranged.
Palliative Care PSA - We’re the fire department, not the fire
Palliative Care Public Service Announcement #2: I’m not scared. Are you?
Public Service Announcement #3: Goals before holes
Palliative Care Public Service Announcement #4
SunDazed, BSN, RN
189 Posts
hospice is a valuable resource, it provides social and grief support beyond the death part. not believing in hospice is ordering a milkshake without a straw!