Hospitals in California are contemplating the next grim step in this pandemic. With entire healthcare systems maxed out, crisis plans must be made to ration care.
Updated:
Overwhelmed hospitals in California are rapidly inching towards the abyss of rationing care.
Bodies are being stored in hastily ordered refrigerated trucks and morgues are turning away families. Patients are being cared for in hallways and tents.
We’re all exhaustingly familiar with surge/contingency state by now, but the next tier, crisis care, takes us to the far and extreme end of the spectrum. Moving to a crisis standard of care is not optional, it is forced (IOM 2009). It’s when all other options have been exhausted.
Crisis Standards of Care typically apply to the battlefield. It conjures up movie scenes of doctors and nurses stepping over the bodies of those likely to die to treat only those less likely to die. Once unthinkable in healthcare, the hows and whys of it are now being planned.
We were warned to prepare for this scenario decades ago.
“Therefore, the United States must continue to plan for a catastrophic public health event that will cause grave injury, disease, or death to potentially thousands or tens or hundreds of thousands in a city, region, or entire nation.” (IOM, 2009 pg 17). These words, written in 2009, sound almost prophetic when read today.
Hospitals and states are required to formulate Crisis Standards of Care Guidelines to activate during a catastrophe. Once a facility, a county, or even an entire state declares they are operating under Crisis Standards of Care, rationing is in effect. It should be formally announced that the facility is operating under Crisis Standards of Care due to specific circumstances to protect nurses and for public transparency.
According to the Institute of Medicine (IOM), Crisis Standards of Care are guidelines developed beforehand to help decision-makers allocate limited resources in a disaster. They provide a framework for decision-making when a hospital or system is so overwhelmed that it cannot provide the best care.
Decision-makers under extreme stress need guidelines when information and situations are rapidly changing or otherwise, a first-come, first-serve prevails. Without guidelines, front-line workers have to make life and death and supply decisions at point of need. Chaos ensues.
Doctors could argue about which patients gets a ventilator, or dialysis, or ECMO. Nurses would have to decide who gets what medications and treatments first or not at all. Nursing assistants could compete to get blood pressure machines or oxygen tanks.
It will be called resource allocation by hospitals, and it means rationing.
Under Crisis Standards of Care, choices will be made to save the most lives, even if those choices are not in the best interests of individual patients.
A triage officer is appointed and a team convened, ensuring no one person has to play God. The team could include doctors, nurses, spiritual care providers, and ethicists. Committee members will not include the patient’s nurse or doctor.
There are different ways to make such highly sensitive, ethical decisions. What are some criteria being considered?
These are tough questions. Should patients during admission be asked if they would forgo being placed on a ventilator if there is a shortage?
California guidelines state that a person's age, race, sex, disability status, religion and ability to pay legally cannot be an explicit factor in making the decisions and proposes sequential organ failure assessment (SOFA) scoring.
Some hospitals are already measuring SOFA scores.
Scores measure oxygen levels, jaundice, kidney function and responsiveness. All things being equal, if 2 patients qualify for an ICU bed, it can go to the younger patient. Some patients who have been in ICU a very long time and are not improving based on condition scores may get removed or moved to a non-ICU bed.
Is your hospital moving toward crisis mode? What are you seeing and what are your thoughts?
Best wishes,
Nurse Beth
Author, "First-Year Nurse" the ultimate insider's guide to helping new nurses succeed while avoiding first-year pitfalls.
References
Berlinger, N., & WM, P. T. Ethical framework for health care institutions & guidelines for institutional ethics services responding to the coronavirus pandemic: Managing uncertainty, safeguarding communities, guiding practice. (2020, March 16). https://www.thehastingscenter.org/ethicalframeworkcovid19/ Retrieved 2021,Jan. 4.
Committee on Crisis Standards of Care: A Toolkit for Indicators and Triggers; Board on Health Sciences Policy; Institute of Medicine; Hanfling D, Hick JL, Stroud C, editors. Crisis Standards of Care: A Toolkit for Indicators and Triggers. Washington (DC): National Academies Press (US); 2013 Sep 27. 3, Toolkit Part 1: Introduction. Available from: https://www.ncbi.nlm.nih.gov/books/NBK202382/ Accessed 2021 Jan 4.
IOM. Crisis standards of care: A systems framework for catastrophic disaster response. Washington, DC: The National Academies Press; 2012. http://www.nap.edu/catalog.php?record_id=13351. Accessed 2021 Jan 4.
Hanfling, D., Hick, J. L., & Stroud, C. (2013). Toolkit Part 2: Public Health. In Crisis Standards of Care: A Toolkit for Indicators and Triggers. National Academies Press (US).
IOM (Institute of Medicine). Guidance for establishing crisis standards of care for use in disaster situations: A letter report. Washington, DC: The National Academies Press; 2009. http://www.nap.edu/catalog.php?record_id=12749.
Wigglesworth, A., Rong-Gong, L., Karlamangla, S, Money, L.(2021, Jan 4). Ambulance crews told not to transport patients who have little chance of survival. LA Times. Retrieved 2021, Jan 4
18 hours ago, Camillemm said:California aught to be it's own country. I've been a nurse for 40 years and have never seen rationing of care. When I worked at a large teaching hospital in VT, years ago, we always would get patients from Canada, because under socialized medicine health care is rationed. Now to hear California is doing it. People do not realize when they wish for a government that takes care of their every need, free this and free that, this is what happens. Some body has to pay for it, and now that somebody is a patient. It's only going to get worse. Glad on on the downhill slide.
Phew! I guess you missed the point of being human and that the reason we succeed is by helping each other. Consider this, America is the only industrialized country that hasn't got a national Healthcare system. Is it because we are special and know better than everyone else or that we are lacking and selfish?
My medical nurse wife Belinda recently took care of a 99 year old patient on IMU, positive for Covid without a DNR, who was intubated and sent to ICU.
I am one less out of the equation, having a DNR/DNI and Belinda knows the guidelines for unplugging me.
Oop! Where are my manners?
Great article, NurseBeth! Realistic and thought-provoking.
I have this conversation with myself all the time. My mom is 88 in LTC. Has a DNR in place and we (me and my siblings and my mom) are all good with it. I hesitate to say that maybe Covid wouldn't be the worst thing for her. She misses my dad dreadfully. She has no roommate as they are not taking admits now. She is increasingly confused and with that comes agitation when re she is in a spot that she knows she has time of confusion... she hasn't hugged her family in almost a year.
The day I get the call she has died will be a day of mixed emotions for sure.
4 minutes ago, NutmeggeRN said:I have this conversation with myself all the time. My mom is 88 in LTC. Has a DNR in place and we (me and my siblings and my mom) are all good with it. I hesitate to say that maybe Covid wouldn't be the worst thing for her. She misses my dad dreadfully. She has no roommate as they are not taking admits now. She is increasingly confused and with that comes agitation when re she is in a spot that she knows she has time of confusion... she hasn't hugged her family in almost a year.
The day I get the call she has died will be a day of mixed emotions for sure.
LTC facilities have been a place of heartbreak for most of the past year. Being isolated from family with only staff and other residents for company, and with restrictions on bringing residents together in many situations, is just so sad. You are not alone in your feelings I'm sure. Spending last days like that isn't what anyone would want. My former coworkers at the facility I used to work at have tried to hard to maintain some "normal" for their residents, but it's just not the same. Sorry for your situation, I hope you are able to visit your mom again soon.
1 minute ago, JBMmom said:LTC facilities have been a place of heartbreak for most of the past year. Being isolated from family with only staff and other residents for company, and with restrictions on bringing residents together in many situations, is just so sad. You are not alone in your feelings I'm sure. Spending last days like that isn't what anyone would want. My former coworkers at the facility I used to work at have tried to hard to maintain some "normal" for their residents, but it's just not the same. Sorry for your situation, I hope you are able to visit your mom again soon.
Thank you! Me too! She called me last nite (first time in forever) to let me know she is retiring! (she used to be an RN in LTC). Maybe that is a sign of what's to come?
23 hours ago, Sour Lemon said:I'll be blunt and say, some of the people being treated would probably be better off allowed to die naturally. Some of the pictures I've seen in the news are hard to look at ...advanced age, contracted limbs with necrotic wounds, feeding tubes, etc. Yet, they're in ERs around the state and country being "saved".
I would actually feel comfortable deciding who should get aggressive care and who should not (assuming I had a complete picture to work with). I don't think it's something that can be decided with a check list, though.
I understand the point you make and largely agree. I think there comes a time when treating a patient aggressively is probably more cruel than humane.
The problem I think when you reach disaster mode triage is that you’ll have say 50 patients who you know would benefit from aggressive treatment, but only have enough staff/beds/meds to treat 30. Those are the choices that no healthcare provider should ever have to make. It takes a heavy emotional toll and goes against our training and empathy.
19 hours ago, Pixie.RN said:These are the realities of mass casualty incidents - albeit this one seems never-ending. Having to make tough choices is hard on the soul. Every nurse, medic, or physician who has faced a mass casualty incident in a combat zone has had a taste of this, and I can tell you it's awful. Every day I think (worry) about the trauma that healthcare providers are experiencing and the toll it is taking.
I agree 100%. The pandemic has resulted in many healthcare professionals currently experiencing a prolonged, ongoing trauma.
OP, thank you for a great and important post.
2 hours ago, Jedrnurse said:COVID has highlighted an issue that's been with us for a long time.
We need to develop a sensible and sensitive approach to rationing care. Period.
Yeah I agree most health expenses are spent on the last couple months of life and much of it is futile. The few sensible patients and family members understand this but most do not. For myself I would have a very low threshold for Hospice, as I would for my family members... but most people seem to consider laying in bed with zero functional status better than death. It is sad.
I had the same patient all month on an ICU ward rotation, 4 months later he's on a LTC vent farm with no hope because his girlfriend is psycho. Probably millions of dollars wasted and thousands of hours of pain and misery experienced by the patient because someone just won't "let go" (was ARDS from covid and I am sure if we did a lung biopsy it would be mostly fibrosis).
It is non sense the way we do things and TBH palliative care consults should automatically occur on all patients who have poor prognosis at time of admission.
23 hours ago, Camillemm said:California aught to be it's own country. I've been a nurse for 40 years and have never seen rationing of care. When I worked at a large teaching hospital in VT, years ago, we always would get patients from Canada, because under socialized medicine health care is rationed. Now to hear California is doing it. People do not realize when they wish for a government that takes care of their every need, free this and free that, this is what happens. Some body has to pay for it, and now that somebody is a patient. It's only going to get worse. Glad on on the downhill slide.
What a strange post. As far as I know the government doesn’t run healthcare in California? From what I understand, care is being rationed because demand is greater than supply?
As a European I’m not sure what you mean by ”socialized medicine”? Is it universal healthcare? Single-payer?
What has given you the idea that healthcare is habitually rationed in countries with universal healthcare? It sounds like politically motivated disinformation to me. Personally, I wouldn’t change our system for yours in a million years. Your medical care is high quality, but you seem unable to make preventative care and medical care equitably accessible to all your citizens.
Why do you think that most countries with universal healthcare have longer life expectancies than the U.S.?
https://en.wikipedia.org/wiki/List_of_countries_by_life_expectancy
https://www.who.int/healthsystems/universal_health_coverage/en/
1 hour ago, macawake said:I understand the point you make and largely agree. I think there comes a time when treating a patient aggressively is probably more cruel than humane.
The problem I think when you reach disaster mode triage is that you’ll have say 50 patients who you know would benefit from aggressive treatment, but only have enough staff/beds/meds to treat 30. Those are the choices that no healthcare provider should ever have to make. It takes a heavy emotional toll and goes against our training and empathy.
I agree 100%. The pandemic has resulted in many healthcare professionals currently experiencing a prolonged, ongoing trauma.
OP, thank you for a great and important post.
So I think I should point out a small consideration. The entire body serves as a vessel for the intellect, mind etc. Organic species and reproduction of the genes. However, possibly, apparently, maybe, I don't know, we have achieved sentience, I think? Does humanity become an extention then?
So unless someone shows an EEG inconsistent with brain activity, I don't think there's a discussion?
Americans kill convicted murderers in some states, namely the states that profess Christianity values such as pro life except when it gets in the way of "pro life"
So in a profession that extols "empathy" and scientific conclusions, I suggest that the matter shouldn't be solved with judgemental evaluations such as the bottom line, but by an objective panel taking into account the above mentioned. Somewhat like who gets a transplant.
These decisions should be shared because I have no doubt, somewhat knowing myself, that significant psychological trauma will ensue from those deciding!
11 hours ago, Curious1997 said:So I think I should point out a small consideration. The entire body serves as a vessel for the intellect, mind etc. Organic species and reproduction of the genes. However, possibly, apparently, maybe, I don't know, we have achieved sentience, I think? Does humanity become an extention then?
So unless someone shows an EEG inconsistent with brain activity, I don't think there's a discussion?
Americans kill convicted murderers in some states, namely the states that profess Christianity values such as pro life except when it gets in the way of "pro life"
So in a profession that extols "empathy" and scientific conclusions, I suggest that the matter shouldn't be solved with judgemental evaluations such as the bottom line, but by an objective panel taking into account the above mentioned. Somewhat like who gets a transplant.
These decisions should be shared because I have no doubt, somewhat knowing myself, that significant psychological trauma will ensue from those deciding!
This is why palliative consults are necessary. They cut right to the chase of quality over quantity. In fact I've seen some people get both by having their symptoms managed in a non-aggressive manner. If someone has a poor prognosis it should automatically trigger a palliative consult. It's not a "don't treat" it's a "don't treat mindlessly for the sake of treating" with no care to the suffering of the patient. Over the years we've become less and less holistic in the healthcare profession and more aggressive in diagnosing and fixing problems. Meanwhile we kind of do a lousy job with preventative medicine and don't support our providers who do provide this necessary care. I am generalizing but that has just been my personal observation and experience working as a nurse in the US. it's not particularly surprising as most of our healthcare is for profit and frankly sick people who get better are not profitable.
Tegridy
583 Posts
All I can say at least we know to expect a subpar response from the general public in regard to following CDC guidelines in the future. Covid has been a real eye opener to how dumb the general public is and sadly stacks of bodies don’t seem to phase the non masks wearers.
And then family members complain that we can’t save them. It’s a sad situation but meh what can you do when the general populace has an IQ similar to a hampster