Dr. Susan Moore died of complications related to COVID-19. Prior to her death, she detailed what she felt was racial bias in her care. This article explores our own responses and how we can find the hope and grace to keep moving forward in a positive direction.
Dr. Susan Moore, 52, died of complications related to COVID-19 in St. Vincent Carmel Hospital in Carmel, Indiana. A Black physician, she posted on social media about her treatment in and discharge from another area hospital. Her post describes what she felt was “racist” treatment by her medical team and her attempts at self-advocacy in the midst of her severe disease.
Her course of treatment and subsequent death highlight the disparities some persons of color face in their care. The disparities have become more visible during 2020 with the coronavirus pandemic. The inequities in health care may have been in the background all along, but they have begun to stand out starkly in the past few months as Blacks and persons of color suffer and die disproportionately.
Long-standing systemic health and social inequities have put many people from racial and ethnic minority groups at increased risk of getting sick and dying from COVID-19. The term “racial and ethnic minority groups” includes people of color with various backgrounds and experiences. But some experiences are common to many people within these groups, and social determinate of health have historically prevented them from having fair opportunities for economic, physical, and emotional health (CDC.gov).
Dr. Moore posted several times to social media during her course of treatment. She described, with the knowledge of a physician, her plan of care, and necessary actions. She was diagnosed with COVID-19 on November 29 and was hospitalized for treatment of respiratory symptoms. During that hospital stay, she reported her symptoms, treatment, and concerns that she was being treated differently because of her skin color. She said, “I put forth, and I maintain, if I were white, I wouldn’t have to go through that.”
While the particulars of her case are difficult to ascertain, the CDC and the U.S. Department of Health and Human Services have determined significant disparities in the Social Determinates of Care and access to related to ethnicity, poverty, discrimination, and access to care (healthypeople.gov).
As professional nurses, we are part of the access and delivery of treatment outside the hospital and at the point of care. What is our role in identifying discrimination and inequities and addressing those?
Surely we would never discriminate against a patient because of the color of their skin. Would we? Not on purpose, anyway. The problem of possible racism and inequality of treatment based on skin color is impossible to deny and monumental to address.
While we may not feel we are racist in any way, studies and our own experience show us that we all have a racial bias. Often it is hard for us to see and acknowledge racist attitudes in ourselves. Still, it is a first step in addressing the problem, especially as it relates to our professional behavior. Attending training, reading, watching movies, educating ourselves can all be steps to help us, but in the end, we must sit with the fact that we all have work to do as humans. None of us is exempt. But there is hope. With grace, compassion, and love we can come together to see the problem and do something about it. Grace and love are the only actions that can truly change racism. Everything else just points a finger at it and stirs it around.
Acknowledge that the change begins with me. As Mahatma Gandhi said, “If we could change ourselves, the tendencies in the world would also change. As a man changes his own nature, so does the attitude of the world change toward him.” It is always easier to point fingers and shame/blame others for their bad behavior. But for racism and racial bias and discrimination to stop, we must come together to identify the problem and pull it out by its roots—every day. This is not a training session that we can attend to fix what is wrong—this is an attitude of the heart.
When you hear labels being tossed about—“ drug addict” or “difficult patient” or “trouble maker”—be aware and alert to your own feelings and the possible need to speak out. Advocacy is not mean, and it doesn’t employ shame. It simply provides a human perspective. People who are hurting need care—even if they aren’t nice or thankful or kind themselves. While we all know this and practice it every day, we all need encouragement to stay the course. It can be wearing to care for someone who doesn’t reciprocate with appreciation. A friend once said, “Hurt people, hurt people.” We don’t know what our patients are going through and what their lives are like outside of their illness. When they lash out, we cannot strike back. We provide care. Excellent care. Every time and to every patient.
As nurses, we get tired. We have bad days, too. As we walk through difficult days, we want to continue to help each other be our best selves. This begins by not denigrating other staff or talking negatively about our patients in the lounge's privacy. Negativity breeds negativity, and soon the contagion overwhelms the unit with discouragement. Be aware of co-workers who have a tendency toward negativity and work to maintain a positive balance. While we don’t want to be always countering with “the bright side,” we also don’t have to enter into the negativity. We can stay the course, remaining neutral. If we are in a leadership position, we help set the tone: finding ways to express appreciation and allowing nurses to vent when they need to in appropriate and supportive ways.
Dr. Susan Moore was a Jamaican-born immigrant who graduated from the University of Michigan Medical School. According to Alicia Sanders, who has established a GoFundMe account, “Susan was a phenomenal doctor. She loved practicing medicine, she loved being a member of Delta Sigma Theta Sorority, Inc, she loved helping people, and she was unapologetic about it.” May she rest in peace, and may her self-advocacy propel us forward on our journey toward more compassionate care.
On 12/29/2020 at 8:40 PM, cynical-RN said:I wish there more details divulged about her situation with racism. I do know for a fact that America as a society is obsessed with racial matters.
You say America is obsessed with race. I couldn't agree more. If race was not an issue we wouldn't have health disparities.
19 minutes ago, stewartam2 said:You say America is obsessed with race. I couldn't agree more. If race was not an issue we wouldn't have health disparities.
The issue is ignorance and/or oppression that create these systemic disparities. The burden should not be on the victim/s. Unmitigated white supremacy and wanton disregard of the differences and needs of those who are dissimilar are part of the issue. Unfortunately, America was conceived and sustained on oppression of so called “minorities”, especially blacks. Little has been done to correct the original stain, and as such, race will continue to be used as a wedge to divide. It is very concerning.
21 hours ago, stewartam2 said:She posted what she went through before she died. Blame is where it should be-on the persons involved. I don't why white people think that if you don't talk about it it will go away. It hasn't. Good lord statistics have proven doctors are the worst, starting with ER doctors. Black women don't receive proper care when their blood pressure goes through the roof during maternal care. They die. We are often dismissed to the point that General practitioners don't recommend proper testing when age related as they will for caucasians. As for COVID deaths, don't even get me started regarding care. Please STOP THE DENIAL!
I don’t think it is appropriate to paint an entire race of people with one brush. I understand it’s sort of publicly okay to do this as long as one is referring to white people, but it’s not really the best way to get someone to see your point of view. I think this article is worthwhile and examining the biases we all have toward others is always relevant. However, blaming all white people for these injustices and then accusing the entire race of trying to make it go away with silence is very offensive.
This was such a heartbreaking case, I read up on it more and she was discharged from the hospital while actively displaying severe symptoms of covid. The pain part of the conversation is important, but to me the fact she was sent home in such distress is horrible. I wasn’t there and certainly cannot dispute nor endorse the claims that she made, but it would certainly seem that something about her case went wildly wrong. Whether this was a decision made by overwhelmed medical staff trying to make room for more patients, or if it were truly a case of blatant racism, I hope they are able to examine themselves and make better decisions for all patients in the future.
On 1/3/2021 at 6:33 PM, juan de la cruz said:I appreciate the spirit in which this article was written. I understand the call to look within ourselves and examine our own biases. No one is "without sin" in this. On the other hand, I also hope we are careful not to sensationalize current events that have not been assessed in terms of their merit especially because they promote courts of public opinion that tend to demonize alleged perpetrators unfairly...in this case the Hospitalist who first treated Dr. Moore. I'm glad the author stated that the details of the case has not been ascertained. Unfortunately, some posters are left feeling as if the facts are confirmed.
Thank you for your thoughtful comment. There are so many unknowns in this particular case. I hope that we can use the little we know as a springboard to look within ourselves and ask one more time, "How can I do better? How can I be better?" And I hope that we can all realize that there is usually much more to the story than what appears in the media coverage. Joy
On 12/29/2020 at 11:04 PM, 2ndcareerchange said:Says a non person of color.
I have just experienced this as a patient in the hospital. After a Diep procedure I was not given pain meds for 7 hours. Correct seven hours. When the resident came to my bedside, he told me I would have to endure "some pain". I didn't have a call bell, nor my phone... I was kept in PACU because ICU was full of CV19 patients, I finally got a UAP to get my phone out of my overnight bag, and I called my boss. It was because she has an connection to this hospital, my nurse walked by my curtain, and said to the resident I could not have been in too much pain, because I was on the phone. My boss, who by the way was not really believing me either, heard that comment and said put me on speaker, my boss told the nurse that this was not a social call and to get me pain meds ASAP or she was calling such and such to report her. When the dust settled down, this was PACU and the nurse assigned to me was not an ICU trained nurse, nor did she read my chart. She never checked to see if I should have been given pain meds, she was just told to round on me every hour because of the Diep, she didn't know how to read the machine that detects oxidation to my breast flaps, it was going off every 5 minutes for 20 minutes... She just was told she could stay more hours if she wanted. When the resident was telling me I have to endure some pain, he meant 2 or 3 out of 10, and he was under the impression that I had 2 rounds of pain meds and was drug seeking as he felt it should have taken care of my pain level. To say I was livid is an understatement. When I calmly advocated for myself I was ignored and told my MD said I didn't need pain meds, when I became the "angry Black woman" I was drug seeking and unreasonable, when I called my white boss, she thought I was not sure of the facts, 7 hours is a long time without pain med and needed to just rest... but when she heard the conversation around me, all of the sudden her White privilege was heard and acted on within 30 minutes. The resident apologized, the nurse said I just didn't act or look like I was in pain, because I seemed "so strong", she was careful not to say strong Black woman, so she didn't check the orders.... I had 7 incisions, the longest was 19 inches long, could not use my abd muscles and no one to advocate for me. I was scared to DEATH. THIS IS A REAL THING!! oh and the day after when I complained to the nurse manager, she just smiled and nodded and said well its over now.
I'm so sorry to hear that ? What a horrible experience! I've also had that procedure and had to stay in PACU until 8 PM (I reported for my surgery at 6 AM. I don't remember much of it except for asking for and receiving pain medication. They even gave me a PCA when I got to the floor! I'm sure things are different with COVID though, but still... they should at least attempt to control your pain ?
On 12/29/2020 at 5:40 PM, Guest856929 said:I wish there more details divulged about her situation with racism. I do know for a fact that America as a society is obsessed with racial matters.
Yes, obviously there will always be a few fools with racist mentality but racism has clearly dramatically declined over the last several decades. Don't believe me? Listen to Thomas Sowell's research, smartest man in America in my opinion and a great Statitician. He shows that approval rating of interracial marriage is way up and is a very strong indicator of racism levels. Race baiting is the new racism. Most people are not racist and don't even think about it.
On 12/30/2020 at 12:04 AM, 2ndcareerchange said:Says a non person of color.
I have just experienced this as a patient in the hospital. After a Diep procedure I was not given pain meds for 7 hours. Correct seven hours. When the resident came to my bedside, he told me I would have to endure "some pain". I didn't have a call bell, nor my phone... I was kept in PACU because ICU was full of CV19 patients, I finally got a UAP to get my phone out of my overnight bag, and I called my boss. It was because she has an connection to this hospital, my nurse walked by my curtain, and said to the resident I could not have been in too much pain, because I was on the phone. My boss, who by the way was not really believing me either, heard that comment and said put me on speaker, my boss told the nurse that this was not a social call and to get me pain meds ASAP or she was calling such and such to report her. When the dust settled down, this was PACU and the nurse assigned to me was not an ICU trained nurse, nor did she read my chart. She never checked to see if I should have been given pain meds, she was just told to round on me every hour because of the Diep, she didn't know how to read the machine that detects oxidation to my breast flaps, it was going off every 5 minutes for 20 minutes... She just was told she could stay more hours if she wanted. When the resident was telling me I have to endure some pain, he meant 2 or 3 out of 10, and he was under the impression that I had 2 rounds of pain meds and was drug seeking as he felt it should have taken care of my pain level. To say I was livid is an understatement. When I calmly advocated for myself I was ignored and told my MD said I didn't need pain meds, when I became the "angry Black woman" I was drug seeking and unreasonable, when I called my white boss, she thought I was not sure of the facts, 7 hours is a long time without pain med and needed to just rest... but when she heard the conversation around me, all of the sudden her White privilege was heard and acted on within 30 minutes. The resident apologized, the nurse said I just didn't act or look like I was in pain, because I seemed "so strong", she was careful not to say strong Black woman, so she didn't check the orders.... I had 7 incisions, the longest was 19 inches long, could not use my abd muscles and no one to advocate for me. I was scared to DEATH. THIS IS A REAL THING!! oh and the day after when I complained to the nurse manager, she just smiled and nodded and said well its over now.
That's horrific and unacceptable care. I'm so sorry you had to experience that.
On 12/30/2020 at 12:52 AM, TheMoonisMyLantern said:I watched Dr. Moore's facebook video describing her experience. I have no reason to doubt her experience as there are glaring problems with our healthcare system and persons of color. I've read some really disturbing things about maternity care or lack there of for women of color and it's embarassing that it still happens in our country.
It is so important that we examine our own behaviors and beliefs in regards to the care we provide. No one thinks they are racist and yet many people endorse beliefs that are prejudicial towards at least one minority. I just think it's important we challenge those beliefs in order to improve the quality of care we provide.
No one deserves for their pain to be uncontrolled for 7 hours just because you think they are "drug seeking" in the acute setting. Even with acute pain just because someone is stoic doesn't mean they're not hurting. I think one of the bad things with the opioid crisis is that we've become too cavalier with pain control thinking that everyone asking for pain relief is seeking and that's just not the case.
I did read that once Dr. Moore was transferred to another facility she stated her care was much improved but sadly by then it was too late and she died shortly there after.
And to be honest, most of the drug “seeking” patients I’ve had were not Black.
Corey Narry, MSN, RN, NP
8 Articles; 4,476 Posts
I appreciate the spirit in which this article was written. I understand the call to look within ourselves and examine our own biases. No one is "without sin" in this. On the other hand, I also hope we are careful not to sensationalize current events that have not been assessed in terms of their merit especially because they promote courts of public opinion that tend to demonize alleged perpetrators unfairly...in this case the Hospitalist who first treated Dr. Moore. I'm glad the author stated that the details of the case has not been ascertained. Unfortunately, some posters are left feeling as if the facts are confirmed.