Dr. Susan Moore died of complications related to COVID-19. Prior to her death, she detailed what she felt was racial bias in her care. This article explores our own responses and how we can find the hope and grace to keep moving forward in a positive direction.
Dr. Susan Moore, 52, died of complications related to COVID-19 in St. Vincent Carmel Hospital in Carmel, Indiana. A Black physician, she posted on social media about her treatment in and discharge from another area hospital. Her post describes what she felt was “racist” treatment by her medical team and her attempts at self-advocacy in the midst of her severe disease.
Her course of treatment and subsequent death highlight the disparities some persons of color face in their care. The disparities have become more visible during 2020 with the coronavirus pandemic. The inequities in health care may have been in the background all along, but they have begun to stand out starkly in the past few months as Blacks and persons of color suffer and die disproportionately.
Long-standing systemic health and social inequities have put many people from racial and ethnic minority groups at increased risk of getting sick and dying from COVID-19. The term “racial and ethnic minority groups” includes people of color with various backgrounds and experiences. But some experiences are common to many people within these groups, and social determinate of health have historically prevented them from having fair opportunities for economic, physical, and emotional health (CDC.gov).
Dr. Moore posted several times to social media during her course of treatment. She described, with the knowledge of a physician, her plan of care, and necessary actions. She was diagnosed with COVID-19 on November 29 and was hospitalized for treatment of respiratory symptoms. During that hospital stay, she reported her symptoms, treatment, and concerns that she was being treated differently because of her skin color. She said, “I put forth, and I maintain, if I were white, I wouldn’t have to go through that.”
While the particulars of her case are difficult to ascertain, the CDC and the U.S. Department of Health and Human Services have determined significant disparities in the Social Determinates of Care and access to related to ethnicity, poverty, discrimination, and access to care (healthypeople.gov).
As professional nurses, we are part of the access and delivery of treatment outside the hospital and at the point of care. What is our role in identifying discrimination and inequities and addressing those?
Surely we would never discriminate against a patient because of the color of their skin. Would we? Not on purpose, anyway. The problem of possible racism and inequality of treatment based on skin color is impossible to deny and monumental to address.
While we may not feel we are racist in any way, studies and our own experience show us that we all have a racial bias. Often it is hard for us to see and acknowledge racist attitudes in ourselves. Still, it is a first step in addressing the problem, especially as it relates to our professional behavior. Attending training, reading, watching movies, educating ourselves can all be steps to help us, but in the end, we must sit with the fact that we all have work to do as humans. None of us is exempt. But there is hope. With grace, compassion, and love we can come together to see the problem and do something about it. Grace and love are the only actions that can truly change racism. Everything else just points a finger at it and stirs it around.
Acknowledge that the change begins with me. As Mahatma Gandhi said, “If we could change ourselves, the tendencies in the world would also change. As a man changes his own nature, so does the attitude of the world change toward him.” It is always easier to point fingers and shame/blame others for their bad behavior. But for racism and racial bias and discrimination to stop, we must come together to identify the problem and pull it out by its roots—every day. This is not a training session that we can attend to fix what is wrong—this is an attitude of the heart.
When you hear labels being tossed about—“ drug addict” or “difficult patient” or “trouble maker”—be aware and alert to your own feelings and the possible need to speak out. Advocacy is not mean, and it doesn’t employ shame. It simply provides a human perspective. People who are hurting need care—even if they aren’t nice or thankful or kind themselves. While we all know this and practice it every day, we all need encouragement to stay the course. It can be wearing to care for someone who doesn’t reciprocate with appreciation. A friend once said, “Hurt people, hurt people.” We don’t know what our patients are going through and what their lives are like outside of their illness. When they lash out, we cannot strike back. We provide care. Excellent care. Every time and to every patient.
As nurses, we get tired. We have bad days, too. As we walk through difficult days, we want to continue to help each other be our best selves. This begins by not denigrating other staff or talking negatively about our patients in the lounge's privacy. Negativity breeds negativity, and soon the contagion overwhelms the unit with discouragement. Be aware of co-workers who have a tendency toward negativity and work to maintain a positive balance. While we don’t want to be always countering with “the bright side,” we also don’t have to enter into the negativity. We can stay the course, remaining neutral. If we are in a leadership position, we help set the tone: finding ways to express appreciation and allowing nurses to vent when they need to in appropriate and supportive ways.
Dr. Susan Moore was a Jamaican-born immigrant who graduated from the University of Michigan Medical School. According to Alicia Sanders, who has established a GoFundMe account, “Susan was a phenomenal doctor. She loved practicing medicine, she loved being a member of Delta Sigma Theta Sorority, Inc, she loved helping people, and she was unapologetic about it.” May she rest in peace, and may her self-advocacy propel us forward on our journey toward more compassionate care.
22 hours ago, jeastridge said:Thank you for your comment. I hope this discussion is about how we can move forward. You are right. Labeling and name calling isn't helpful. But sometimes we do have to know that we have a problem before we can begin to change. I hope our conversation can take us in the direction of self-awareness and self-correction. Joy
I think open discussion is the key to moving in the right direction (key word being open). Many discussions seem to get shut down because some cant or won't even hear another opinion.While I do agree that we should all check ourselves I think the larger problems of access etc need to be solved by local governments and healthcare organizations. I also think that just simply believing someone's perception of events and running with it is more detrimental in both the short term and long term. I think it would be more helpful to present actual facts and studies to make your point, rather than one ancendotal experience that shows only one side. I have personally experienced situations much like this MD and other posters here as well. I would not just immediately jump to race, gender etc as the reason I received poor care, and esp as a HCP who knows the system and how it works. I think it would help for people (in general) to stop using whatever they think they can to get their way, it only hurts themselves, others, and the country as a whole. Not saying this MD did it or not because I wasnt there and don't know (and neither does anyone else). But I will say that I have seen many pts who believe they are getting substandard care because of (fill in the blank) when in fact they were getting the same exact care, or better because of the complaints, than everyone else (and sometimes taking care away from others who needed it more bc of the fear of their complaints). Again, I agree that all people ( key word being all) should check themselves for any bias in any situation including healthcare.
Again, there is a mountain of evidence that shows Black Americans get worse treatment across the board than White Americans (and no, that doesn’t mean that every single doctor’s visit is bad for a Black person and wonderful for a White person, so the fact that I’m White and have been mistreated by a doctor doesn’t actually have any bearing on the statistical reality). The goal of the article was for us to examine our own experiences and think how to move forward.
At my job, our largest patient population are Latinos who are recent immigrants (and therefore speak little or no English and have little formal education). I know— and I am ashamed to say it— I KNOW that I do not approach them in the same way as I approach native-born Americans. Not because I think they deserve worse care, but because we have so little common ground, culturally. I always have a level of discomfort because I’m not sure how to communicate with them (I don’t mean the language barrier; I mean like how to educate them on diabetes etc because they don’t have the same life experiences or frame of reference that I do). Therefore, their care is worse.
I don’t have a solution to this, other than that hopefully I’ll figure some of this out as my career becomes longer. I certainly don’t intend to treat anyone badly, but I acknowledge the problem.
The healthcare/medical field is rife with racism and bigotry. I have experienced it firsthand throughout the years and have reported my colleagues for it. It is really unfortunate and for me, disheartening when I hear my colleagues say blatantly or microaggressive bigoted comments.
While I understand everyone is human and has their issues/beliefs, that is no excuse and we need to tackle this is head-on.
On 1/1/2021 at 12:36 AM, cynical-RN said:Read the comment again. It was highlighting the severity of things in this society. Look at how COVID19 has disproportionately affected the black community. I even went a step ahead and said it was not literal but rather figurative analogy because I knew that someone will cherry pick it because some people are hellbent on seeing racism that they cannot even comprehend when someone is agreeing or supporting their premise. It irks me to state the obvious. I am a black man. There was nothing odd about the analogy. It highlights inherent inequalities within the systems in the U.S. Read the comment once again. Nonetheless, I understand your misunderstanding.
I find it funny that you think you get a free pass because you are a Black male. Just as I said before your comments say a lot about who you think you are and what you think. With regard to the test that I have taken, The NCLEX was just the beginning. I choose not to flaunt where I have obtained my education. Like I have said before I have never had an issue with my patients and pain medication. I have never had to give Narcan because I have over-medicated a patient. I will continue to provide my patients with the care that they deserve and the care that they need. I have had no complaints from management or my patients about the way that I go about my job.
On 12/29/2020 at 11:04 PM, 2ndcareerchange said:Says a non person of color.
I have just experienced this as a patient in the hospital. After a Diep procedure I was not given pain meds for 7 hours. Correct seven hours. When the resident came to my bedside, he told me I would have to endure "some pain". I didn't have a call bell, nor my phone... I was kept in PACU because ICU was full of CV19 patients, I finally got a UAP to get my phone out of my overnight bag, and I called my boss. It was because she has an connection to this hospital, my nurse walked by my curtain, and said to the resident I could not have been in too much pain, because I was on the phone. My boss, who by the way was not really believing me either, heard that comment and said put me on speaker, my boss told the nurse that this was not a social call and to get me pain meds ASAP or she was calling such and such to report her. When the dust settled down, this was PACU and the nurse assigned to me was not an ICU trained nurse, nor did she read my chart. She never checked to see if I should have been given pain meds, she was just told to round on me every hour because of the Diep, she didn't know how to read the machine that detects oxidation to my breast flaps, it was going off every 5 minutes for 20 minutes... She just was told she could stay more hours if she wanted. When the resident was telling me I have to endure some pain, he meant 2 or 3 out of 10, and he was under the impression that I had 2 rounds of pain meds and was drug seeking as he felt it should have taken care of my pain level. To say I was livid is an understatement. When I calmly advocated for myself I was ignored and told my MD said I didn't need pain meds, when I became the "angry Black woman" I was drug seeking and unreasonable, when I called my white boss, she thought I was not sure of the facts, 7 hours is a long time without pain med and needed to just rest... but when she heard the conversation around me, all of the sudden her White privilege was heard and acted on within 30 minutes. The resident apologized, the nurse said I just didn't act or look like I was in pain, because I seemed "so strong", she was careful not to say strong Black woman, so she didn't check the orders.... I had 7 incisions, the longest was 19 inches long, could not use my abd muscles and no one to advocate for me. I was scared to DEATH. THIS IS A REAL THING!! oh and the day after when I complained to the nurse manager, she just smiled and nodded and said well its over now.
Who was the target of the part in bold?
On 1/2/2021 at 12:37 PM, Karmat said:I find it funny that you think you get a free pass because you are a Black male. Just as I said before your comments say a lot about who you think you are and what you think. With regard to the test that I have taken, The NCLEX was just the beginning. I choose not to flaunt where I have obtained my education. Like I have said before I have never had an issue with my patients and pain medication. I have never had to give Narcan because I have over-medicated a patient. I will continue to provide my patients with the care that they deserve and the care that they need. I have had no complaints from management or my patients about the way that I go about my job.
Keep trying to find racism in everything that you encounter irrespective of any other confounding variable. If your teachers are still teaching you that pain in it’s entirety is what the patient says it is, I wouldn’t flaunt that institution either. You can give narcan because someone’s receptors are sensitive to opioids and not necessarily from “overmedicating”
5 hours ago, cynical-RN said:Keep trying to find racism in everything that you encounter irrespective of any other confounding variable. If your teachers are still teaching you that pain in it’s entirety is what the patient says it is, I wouldn’t flaunt that institution either. You can give narcan because someone’s receptors are sensitive to opioids and not necessarily from “overmedicating”
I agree, calling everything racism since its the "cool new hip thing to do" dilutes the real meaning of the term racism and pushes those who want reasonable discussion away out of fear of being "cancelled"
On 12/31/2020 at 9:40 AM, Daisy4RN said:I think it would do us all well to tread lightly before calling people racist. None of us were there and therefore know zero about the actual interactions between the pt and her healthcare providers. Accusing someone of being racist is not helping the situation or our society move forward in a positive way. I am not saying that people never are racist but it goes across the board in all directions and should stop. I am just saying that taking a person's perception of the situation and laying blame is not helping our society to move forward to unity. Just my opinion. Also, people have hardly ever recieved the care they would like and now with covid and the opiod issues it is even worse!
She posted what she went through before she died. Blame is where it should be-on the persons involved. I don't why white people think that if you don't talk about it it will go away. It hasn't. Good lord statistics have proven doctors are the worst, starting with ER doctors. Black women don't receive proper care when their blood pressure goes through the roof during maternal care. They die. We are often dismissed to the point that General practitioners don't recommend proper testing when age related as they will for caucasians. As for COVID deaths, don't even get me started regarding care. Please STOP THE DENIAL!
1 hour ago, stewartam2 said:She posted what she went through before she died. Blame is where it should be-on the persons involved. I don't why white people think that if you don't talk about it it will go away. It hasn't. Good lord statistics have proven doctors are the worst, starting with ER doctors. Black women don't receive proper care when their blood pressure goes through the roof during maternal care. They die. We are often dismissed to the point that General practitioners don't recommend proper testing when age related as they will for caucasians. As for COVID deaths, don't even get me started regarding care. Please STOP THE DENIAL!
I am not in denial about anything. I said we don't know about this particular situation and we don't. We only have one side. I am not willing to throw anyone under the bus publicly or otherwise-by calling them racists- without firsthand knowledge of the situation which none of us have.
Again...
On 1/1/2021 at 1:13 PM, Daisy4RN said:I think open discussion is the key to moving in the right direction (key word being open). Many discussions seem to get shut down because some cant or won't even hear another opinion.While I do agree that we should all check ourselves I think the larger problems of access etc need to be solved by local governments and healthcare organizations. I also think that just simply believing someone's perception of events and running with it is more detrimental in both the short term and long term. I think it would be more helpful to present actual facts and studies to make your point, rather than one ancendotal experience that shows only one side. I have personally experienced situations much like this MD and other posters here as well. I would not just immediately jump to race, gender etc as the reason I received poor care, and esp as a HCP who knows the system and how it works. I think it would help for people (in general) to stop using whatever they think they can to get their way, it only hurts themselves, others, and the country as a whole. Not saying this MD did it or not because I wasnt there and don't know (and neither does anyone else). But I will say that I have seen many pts who believe they are getting substandard care because of (fill in the blank) when in fact they were getting the same exact care, or better because of the complaints, than everyone else (and sometimes taking care away from others who needed it more bc of the fear of their complaints). Again, I agree that all people ( key word being all) should check themselves for any bias in any situation including healthcare.
I am sorry she died, her family has recourse if they feel she was wronged in any way!
On 1/1/2021 at 9:37 PM, CommunityRNBSN said:Again, there is a mountain of evidence that shows Black Americans get worse treatment across the board than White Americans (and no, that doesn’t mean that every single doctor’s visit is bad for a Black person and wonderful for a White person, so the fact that I’m White and have been mistreated by a doctor doesn’t actually have any bearing on the statistical reality). The goal of the article was for us to examine our own experiences and think how to move forward.
At my job, our largest patient population are Latinos who are recent immigrants (and therefore speak little or no English and have little formal education). I know— and I am ashamed to say it— I KNOW that I do not approach them in the same way as I approach native-born Americans. Not because I think they deserve worse care, but because we have so little common ground, culturally. I always have a level of discomfort because I’m not sure how to communicate with them (I don’t mean the language barrier; I mean like how to educate them on diabetes etc because they don’t have the same life experiences or frame of reference that I do). Therefore, their care is worse.
I don’t have a solution to this, other than that hopefully I’ll figure some of this out as my career becomes longer. I certainly don’t intend to treat anyone badly, but I acknowledge the problem.
Thank you for sharing with us. Your comments show a great deal of insight and caring. Being aware is the first step to positive change! Joy
jeastridge, BSN, RN
83 Articles; 560 Posts
Thank you for your comment and for your generosity in requesting a reply. This article is not intended to decide if racial bias exists since that has long been shown to be the case in extensive studies on the topic. Instead, the article is meant to ask us to look at Dr. Moore's story, consider our own hearts, and find ways to do better if we see any room for improvement. As professional nurses, we want to always be doing our best to treat everyone well: people of color and people who are considered caucasian.