Nurses With Disabilities: Getting What You Need So You Can Give Your Best

From first-hand experience in negotiating the curves of life with a disability, a nurse-manager shares a few of the practical lessons learned when a chronic medical condition clashes with the realities of her high-profile, high-stress job. Nurses Announcements Archive Article

It was the nightmare every long-term care nurse manager dreads: the exit interview with a state survey team that has just inspected every inch of the building and every piece of nursing documentation produced over the past year.....and found it badly wanting.

I tried to keep what I hoped was a neutral expression on my face as the lead surveyor read off the sixteen citations they had levied against my assisted-living facility. Two of them were classified as serious......and six of them were my fault. In the vernacular of the day, (stuff) just got real, and I was faced with the knowledge that I could no longer hide my inattention to detail, my inability to focus when there was too much going on around me, my impatience with the mundane and the routine. And until I came clean with the reasons why these were issues for me, I was in danger of losing the best nursing job I've ever had.

As many readers know, I have a mental health diagnosis that makes playing well with others extraordinarily difficult at times. I am also very good at what I do when my head is 100% in the game, even though I can be loud, sloppy, anxious, profane, and witchy by turns. However, while my immediate supervisor---who is arguably the most decent man on the planet---knows about my "nonconformity", I was terrified that Corporate would find out and then chop off my head.

Who would have guessed that NOT disclosing my illness would have handed them the axe? Our new director of clinical operations is not only smart, but intuitive, and she urged me to 'fess up so that we could problem-solve. That was how I wound up not only admitting to having a disorder that affects my ability to function on the job, but winning the accommodations I need to perform at my best....and probably saving my behind in the bargain.

"I was wondering about that," she said, smiling. "Your work habits are definitely consistent with your diagnosis." Dang, I thought, this woman is GOOD!

Now we all know that there are unscrupulous employers who actually look for reasons to get rid of people. I've worked for companies like that in the past, but when I ran across it I always kept my resume polished. Sometimes, however, you've just got to take a chance and ask for help. Here are a few suggestions for getting what you need so you can give the job your best, even when you aren't feeling your best.

Have a solution in mind before you bring your boss a problem

He will appreciate your foresight, and may even be willing to meet you halfway if you don't waste his time. For example, if mornings are hard on your arthritic joints and it takes you three hours to be fully functional, offer to switch to evenings or a hybrid shift like 11A-7P. You'll probably get extra points for explaining why this would also be an advantage to the company, e.g., they get you during your most productive hours and you're covering parts of two shifts.

Avoid invoking the Americans with Disabilities Act unless you absolutely have to

Employers really don't enjoy feeling threatened, and frankly, if you hold the ADA over their heads to try to bully them into complying with an agenda, they'll probably find some way to make life so miserable for you that you'll end up quitting.

NEVER use your disability as an excuse for poor performance!

This is a guaranteed career-killer, and deservedly so. There's a big difference between acknowledging a physical or mental condition that makes work more of a challenge for you than the average person, and blaming the condition for everything that goes wrong in your life. Disabled or not, you still have to take responsibility for what you do, and your employer has a right to expect you to perform to the best of your abilities.

Blessed are the flexible, for they will not be bent out of shape

Sometimes an employer is unable to accommodate requests for a private office, more work space, different hours etc. At my workplace, there isn't even a broom closet that could be converted into a separate office for me, even though a good portion of my discomfort is due to the fact that the office I share with my floor supervisors is like Grand Central Station.

Being easily distracted and struggling with short-term memory loss makes it all but impossible for me to stay on task in this environment.To make matters worse, I lose my place in a process when I'm repeatedly interrupted and then I can't remember where I left off. So I'll be spending a part of each workday shut up in the private dining room or an alcove when they're not in use, protected by my fellow managers so I can complete those soporific audits I'm supposed to do.

Use your strengths to remind your company of why they hired you in the first place

You probably have at least one special talent that makes you the best in a given job skill; don't be afraid to show it off! My own boss told me recently that while I'm not so hot at the routine (read: boring) stuff, there's no one in the entire company who's better than I am at handling a crisis. I've rescued other buildings from stop-placement determinations, administrator walk-outs, narcotic diversions, and other disasters---that's why they offered me the position I turned down last year, which is now held by the woman who's working with me to put my own department back together. But our regional manager knows that if one of the properties is having an emergency, he can give me a call and I'm all over it.

Working in a fast-paced healthcare environment isn't easy for anyone, let alone those of us with disabilities. But with the right kind of assistance and mutual respect between the nurse and the employer, anything---and everything---is possible.

Specializes in Alzheimer's, Geriatrics, Chem. Dep..

(((((((((((((((((Viva)))))))))))))))

You are helping to set a great precedent even for yourself. Very proud of you my girl!

Specializes in LTC, assisted living, med-surg, psych.
I can't help but wondering if the patient's suffered due to your issues? I appreciate your honesty but if patient's suffered due your lack of attention I don't think you should be in this position.[/quote']

That's a fair question, but the answer is I don't believe any patient has suffered because of my struggles. If I thought for even one minute that I'd neglected a patient/resident, I'd hang up my stethoscope and walk away in a New York minute. Whatever energies I have on a given day are directed toward them; it's my documentation that suffers, and I can recite the nursing-school creed all day and still forget a piece of paper, a signature, an undotted 'i' or uncrossed 't'.

I'm also not very good at handling the everyday BS. For one thing, I loathe the sales calls from the various vendors around town who don't bother to phone, but just waltz into my office so that I don't have a chance to tell them "This isn't a good time". I don't wish to be impolite, but I'm way too busy to schmooze. And, I get sick unto death of family members who seem to think THEIR loved one is the only resident in the building, and that I'm the one they need to harangue for 20 minutes about their Mom's missing sweater. I'll be honest, I don't give a flying fritz about her laundry......but if Mom is falling and not acting like herself, I'm on it.

Specializes in Hospice / Psych / RNAC.
:yes: I believe in you...great job.
Specializes in Sleep medicine,Floor nursing, OR, Trauma.
I can't help but wondering if the patient's suffered due to your issues? I appreciate your honesty but if patient's suffered due your lack of attention I don't think you should be in this position.[/quote'] Kindly refrain from kicking sand in the sandbox. Whether or not a patient was impacted can be said of any of us, in any state of psychological distress both with and without corresponding diagnosis. In other words, we are all only human and we all have bad days. Some of us just have them in different capacity and perhaps a bit more often. Viva, I am sorry this happened to you and forced you to "show your hand" if you will. I cannot emphasize enough what an act of self advocacy and bravery it is for you to have spoken out even in the face of such potentially devastating circumstances. I am pleased to see that you are supported as I believe anyone who would fail to support such a dedicated individual with a beautiful heart to be a damned fool. I wish you nothing but the finest and wish to remind you that this is but a piece of the creative, powerful, marvelous you--it does not define you. Please continue to be gentle to yourself. Your article is a reminder to all nurses, not just those with special circumstances, to speak out for help and remember to advocate for themselves. As always, well done. ~~CP~~
Specializes in LTC Rehab Med/Surg.

Before I read your post, I just assumed the disability being written about was physical. What an eye opener.

I've read your other posts and know how much your job means to you. I'm glad your employer recognized that when placed on a scale, your attributes far outweighed your deficits.

Yay!!

Does it feel like a huge weight has been lifted off your shoulders?

Not only do you not have to try and hide something, but you get support and understanding from colleagues.

Specializes in Critical Care, ED, Cath lab, CTPAC,Trauma.

Ah, Viva my friend......you are a brave soul. You are helping so many. I wish all facilities/bosses were as understand for you know that has not been my experience with physical limitations of an auto-immune disorder. ((HUGS))

Specializes in Acute Care, CM, School Nursing.

Viva, best wishes to you! :)

PS: I absolutely, positively adore the quote in your signature. I often find myself saying, "How come I only hear from people when they need something from me?!" This quote puts a nice spin onto it. If it's OK by you, I plan to add it to my own email signature. :)

One reason I work for myself, at my own pace, at cases I want to do. As we age, I think it's the best way to use our hard-won talents and wisdom. Bless you, Viva.

Specializes in FMF CORPSMAN USN, TRUAMA, CCRN.
I can't help but wondering if the patient's suffered due to your issues? I appreciate your honesty but if patient's suffered due your lack of attention I don't think you should be in this position.[/quote']

Well G's Mom, it's good that you left yourself an out there, with "...if patient's suffered due your lack of attention..." because I really don't know of too many Nurse Managers that give all that much direct patient care, and by the time any pertinent issues get to her desk, chances of a patient suffering from lack of action would be fairly nil. That's the beauty of being insulated by charge nurses, and supervisors. You obviously know little about Nursing Administration and Management. When you get to this stage of your career, your role is more in handling the nurses and the administrative activity within the Facility, rather than the patients. You are still responsible for the patients, but not in a hands on capacity. Personally, I hated it and couldn't wait to get back to doing actual patient care.

Well G's Mom, it's good that you left yourself an out there, with "...if patient's suffered due your lack of attention..." because I really don't know of too many Nurse Managers that give all that much direct patient care, and by the time any pertinent issues get to her desk, chances of a patient suffering from lack of action would be fairly nil. That's the beauty of being insulated by charge nurses, and supervisors. You obviously know little about Nursing Administration and Management. When you get to this stage of your career, your role is more in handling the nurses and the administrative activity within the Facility, rather than the patients. You are still responsible for the patients, but not in a hands on capacity. Personally, I hated it and couldn't wait to get back to doing actual patient care.

I have been a nurse double the time Viva has been. I was taught that nursing documentation is part of patient care and the state concurs with me. Her managers and supervisors did not compensate for her short comings which is unfortunate.

Viva has not had her disability in check the last year, hopefully she can work with her employer to work out her situation. The article was a good heads up to all to keep their health ( mental and physical) in good control. She is lucky no patient was harmed, now she has move forward and fix all the deficiencies. Best of Luck Viva and thanks for article it is a reality check for all who have issues.

You provide some excellent suggestions for those with disabilities. Not everyone's disability is a physical one that can be seen. I commend you for being honest and not using your disability as a crutch. Kudos for having supportive supervisors and a good end result.

Specializes in FMF CORPSMAN USN, TRUAMA, CCRN.
I can't help but wondering if the patient's suffered due to your issues? I appreciate your honesty but if patient's suffered due your lack of attention I don't think you should be in this position.[/quote']

I saw on Viva's Blog where she had taken responsibility for six of the deficiencies, but never where she noted exactly what those deficiencies were for. Do you have a special knowledge that provides you the information? Or are you simply operating on the special ability granted you by, Quote having twice the experience of Viva, Unquote. I don't see any other special abilities or interest, I don't see where you work, All I see is that you are married to a Non-Christian and you are put off when people assume you aren't a Christian as well. That and you have racial issues. I have 35 plus years in Nursing and I wasn't able to discern what the particular deficiencies were for. Sometimes people take the blame for things that really aren't their fault. Unless you are her immediate Supervisor, I don't really see how you are in a position to say whether her staff either were or were not in a position to compensate for any alleged shortcomings.

You really have no business calling anyone on their shortcomings. Viva brought a very well written blog to us and laid bare her feelings, and offered suggestions on how others who might suffer from a similar malady or be in a like situation might handle it, and you, as if you never farted in the bathtub, jumped in with both feet to tell her how wrong she had been and that she should just quit. Do you want to compare education and experience, maybe then we can decide who gets to tell who where to go and how far. I'll bet you I win. You don't get to decide whose disability is in check and whose isn't. You aren't a Practitioner, you aren't her Doctor, and you most certainly are not her. Those are the type of decisions she gets to make. Period. What you said in your original blog was rude and inappropriate. I couldn't let them slide. If I get thrown off the site for calling you on it, so be it. Once again, I don't play politically correct, I'm too old, and there's not enough time.