LTC nurses--tell me about bed alarms...

Nurses General Nursing

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I am not asking for medical advice. I am a peds nurse with 34yrs experience, but this has me stumped--

My youngest DS15 is profoundly mentally handicapped, like a 1yo. He walks, but has no self-help skills and NO sense of danger. Lately he has taken a few falls--he is very off-balance due to seizure meds and low muscle tone. He has suffered a few head injuries and some broken bones falling down the stairs, so we accompany him now and we have put a gate over the basement stairs so he can't go down there, even if he lurched into the gate. We are also addressing the balance & walking issues in PT. We have a CNA who comes in every evening to feed & play with DS and bathe him, things that are harder for us. The CNA is with DS constantly, so DS never falls when the CNA is here.

Sometimes DS falls out of bed with a seizure. Putting bed rails on the bed backfired--in his confusion during a seizure he tries to escape and hit his head hard enough to cause a concussion. It has been suggested to us by authorities that we invest in door alarms or bed alarms (gotta love CPS--NOT) We are not too keen on door alarms because he opens and closes doors for entertainment :uhoh3: but we might want to look into the bed alarms depending on how they work.

How loud are the alarms? Describe how the alarm goes off--is it short or is it loud? Once it is tripped, is it constant? I have no problem with having an alarm, but I don't want some ear-splitting noise that's going to wake everyone in the house. What I need is something that goes off briefly, just enough to get our attention.

Any suggestions?

Specializes in Professional Development Specialist.

Can you get a hospital type bed? The ones at my facility can go up and down, up to a good changing level and down very low so he wouldn't get hurt. We have some pressure alarms that sound loudly, but if the resident sits or lays back down and pressure is restored it stops. It is effective for a lot of residents, the sound makes them freeze and lay or sit back, then it stops.

I second the above. Around here it's called a lowboy bed and it goes down almost to the floor. Probably very expensive, but maybe you could find used or possibly donated.

Then buy a "low bed," which is what we use. They get down to a foot off the ground but raise high enough for personal care. With mats.

Specializes in Med/Surg.

I think a helmet at all times would at least protect his head. the lowboy beds with the really thick gymnastic mats would suffice. Is there any possible way to get home health to come and sit with him at night in order to give you guys a break so you can sleep?

I noticed on your profile that you are from Georgia. Here is a listing of agencies that may help you.

http://www.carepathways.com/HC-state-GA.cfm

You also may benefit from the services of Maxim home care (They have a home health pediatric office)

Specializes in Gerontology.

I promise I'm not an idiot, just a concerned mama...

Of course you are! I can't even begin to imagine what you go through every day and night to care for your son. I think people like you have a very special place in Heaven waiting for you.

Specializes in OB/GYN, Peds, School Nurse, DD.

Aww, thanks ya'll. I'm hoping we don't have to use a helmet. It's bad enough that he's obviously different. Helmets just have a certain negative connotation... I mean,I'm okay with the fact that my boy is different. I just don't want to have to draw even more attention to him.

Right now we receive 2-1/2hrs of CNA care in the evenings Mon-Fri and 5 hours on both Sat & Sun evenings. We have applied for more hours (weekends are deadly!) but have been turned down. I can see the writing on the wall though. The time is coming when DSs needs are going to outstrip our ability to care for him. I have mixed feelings about it too. On the one hand we just love DS so much and you know, you think thats enough to conquer any obstacle. But now we are beginning to see the reality of the situation--namely,that DS is growing fast and we may not always be able to protect and care for him. At this rate, I think he will need to be placed in the next 2-3 years. Which won't be an entirely bad thing.DH & I haven't had many nights off in the last 15yrs. It will be nice in a way to be able to travel and do things *we* want to do. Knowing that DS will be cared for in our absence will give us a measure of comfort, I"m sure.

Oh, well. How did I get off on that tangent? I hijacked my own thread--oy!:clown:

Specializes in Med Surg, Ortho.
Maybe a trundle bed? He could sleep on the main bed and then have the trundle part pulled out for protection??

I was just going to suggest this then saw your post. We did this for my daughter when she started out in an adult bed. We would just pull out of trundle bed at night so if she fell off the bed, it would break her fall. It worked wonders, as she did fall off the bed a few times and I always found her sleeping soundly on the trundle bed. :)

Specializes in LTC.

I agree with another poster once you hear the alarm the patient has already hit the floor, in no way does it actually prevent falls. The alarm is loud and constant. The only benefit I see is that atleast I'm able to assess my patient when they fall instead of hours later of not knowing, especially when working nights.

Specializes in LTC.

We also use bumpers at my faclity which also prevents our patients from rolling out of bed.

Specializes in Emergency Dept. Trauma. Pediatrics.
Aww, thanks ya'll. I'm hoping we don't have to use a helmet. It's bad enough that he's obviously different. Helmets just have a certain negative connotation... I mean,I'm okay with the fact that my boy is different. I just don't want to have to draw even more attention to him.

Right now we receive 2-1/2hrs of CNA care in the evenings Mon-Fri and 5 hours on both Sat & Sun evenings. We have applied for more hours (weekends are deadly!) but have been turned down. I can see the writing on the wall though. The time is coming when DSs needs are going to outstrip our ability to care for him. I have mixed feelings about it too. On the one hand we just love DS so much and you know, you think thats enough to conquer any obstacle. But now we are beginning to see the reality of the situation--namely,that DS is growing fast and we may not always be able to protect and care for him. At this rate, I think he will need to be placed in the next 2-3 years. Which won't be an entirely bad thing.DH & I haven't had many nights off in the last 15yrs. It will be nice in a way to be able to travel and do things *we* want to do. Knowing that DS will be cared for in our absence will give us a measure of comfort, I"m sure.

Oh, well. How did I get off on that tangent? I hijacked my own thread--oy!:clown:

Do you have a respite care facility in your area? I have never heard of them until school here and I guess there aren't many, but it is a wonderful facility. I can't believe so many people know about them. I know they vary place to place though but the one we have here is income based for cost, they can provide overnight care, they also allow a child to stay 24 hrs a day up to 2 weeks so the parents and families can take vacations. They are not medical professionals working there but they are extensive trained on medications, tube feedings, seizures, a number of things. They are non profit. Our one here was able to open a new facility a few years ago that is just awesome all from donations. Some very rich people found out about them and were so impressed by what they do that they funded a few million dollars for the land and architect.

Anyway, didn't mean to run off, but if you have something similar at least you and your husband could get some you time while having your son in great care.

Specializes in OB/GYN, Peds, School Nurse, DD.

Yes, we do have a respite group here.We get a weekend of respite--Fri night through Sun afternoon--about every 2-3 months. It's heaven and we try to do things on that weekend that we can't do when Christian is at home. Like go watch DD17s dance show or go up to the lake and listen to bluegrass bands. i will have to say, our respite people *are* going to keep him for a week when I have my foot recontructed this summer. And we have a therapeutic summer camp available in June and July, and we take full advantage of that. :jester:

Specializes in Emergency Dept. Trauma. Pediatrics.
Yes, we do have a respite group here.We get a weekend of respite--Fri night through Sun afternoon--about every 2-3 months. It's heaven and we try to do things on that weekend that we can't do when Christian is at home. Like go watch DD17s dance show or go up to the lake and listen to bluegrass bands. i will have to say, our respite people *are* going to keep him for a week when I have my foot recontructed this summer. And we have a therapeutic summer camp available in June and July, and we take full advantage of that. :jester:

That is great!!

I have a friend that was a teen mom and had a son with DS, not as severe as some kiddos get but still pretty bad. I wish they had something like that around her. She ended up in divorce and has been such a great and dedicated mom especially for being so young. Very involved in buddy walk and stuff.

The center we have can be utilized as much as the parents want (as long as not more then 2 weeks straight 24 hr care at a time). But many parents use it for childcare or weekend care or evening care. Ins. here in our state I guess doesn't pay for any Respite Care but because it's income based and a lot of the parents are low income it comes out to a couple bucks an hour. Not bad at all.

Anyway, as you can tell, this organization had a great effect on me. My son will be volunteering there starting this summer.

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