Interesting blog Describes view from family's eyes

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Interesting reading from a blog set up by the family member of man with a tramatic brain injury from an MVA. The views and opinions shows how proper communication with family's, especially highly involved family's is so important.

http://prayforkevin.blogspot.com/2009_08_16_archive.html

Specializes in Rehab, Infection, LTC.

ok..this is awful of me...but does anyone else read the blog often just to see if the family has crashed and burned? :smokin:

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Specializes in CCU, SICU, CVSICU, Precepting & Teaching.
ok..this is awful of me...but does anyone else read the blog often just to see if the family has crashed and burned? :smokin:

nope, but only because i'm counting on you to come back the the forum and tell me when they do!

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Specializes in PICU, NICU, L&D, Public Health, Hospice.

Looks like last blog was Feb 17. They have had him home a couple months now. Sounds like all is going well for them and that Kevin is, perhaps, becoming more interactive. They don't comment on missteps or mistakes that they may make during his care, certainly not in the way they did about the nurses when he was inpatient.

Of course they have struggles with the insurance wanting to pay for the support which they clearly need. I hope they continue to do well.

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Specializes in LTC, Home Health.

I noticed that they seem a lot more happy now that they are in control of every step of his care day and night. I too noticed they don't mention any of their mistakes. Wouldn't it be nice to be perfect?

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Yup but that pulmonologist who changed the trach tube for them was watched like a hawk.

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Specializes in Trauma, Teaching.

Now Virgo, I know I am a bit late coming in here, but nowhere in your post did you every say "Is there anything else I can do for you? I have the time!" :banghead::nuke::nono::nono:

Loved it :hug::hug:

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Specializes in Cardiac Telemetry, ED.
Now Virgo, I know I am a bit late coming in here, but nowhere in your post did you every say "Is there anything else I can do for you? I have the time!" :banghead::nuke::nono::nono:

Loved it :hug::hug:

I'm sure that deficiency will be pointed out at my annual performance eval....:D

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I'd love to read the mind of those homecare nurses who are meeting the families approval.

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Specializes in Med/Surg.

i had read through this blog when this thread was originally started, so i had to go back and see what was new. did anyone else notice this comment?:

when we last left you, we were faced with four hours of us being alone with kevin. no nurses, no doctors, no therapists...just us, family, non-professional, barely trained, imperfect family members filled with trepidation.

i had to just shake my head at that comment. i certainly didn't get the impression that they were "barely trained" prior to taking him home, plus, they thought the nursing/medical staff were so bad anyway, what difference would it make? they obviously could do better.

today i went back and was reading some of the earlier entries. the way that they spoke of his conditions, his procedures, etc, still floor me. things like, "the doctors told us it was a reflex, and that it didn't mean anything, but it was a reflex he didn't have before so that's great!" (whaaa?)...the way they twisted so many things to fit their own vision was just incredible to me. i have no doubt it was and is an incredibly hard situation, but they really thought they knew a lot more than they did: ie, "iv pick"...took me forever to realize they meant "picc line."

i hope that whatever condition kevin is in now, he is at least happy....

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