Lost a good friend to Huntington's Disease....

justiceforjoy · Oct 13, 2009

I attended her services today..trying to hold it all together. I just want her to know that I was there today...sitting in the back row with two other friends, we were smiling, talking about the good times and also shared some tears and that I haven't forgotten.

I don't think she would have wanted anything more than that. Remember the good past that you guys did have together, don't mourn the past you didn't have with could have, should have, would haves.

Chapis · Oct 13, 2009

i am very sorry to hear about your friend, may she rest in peace and (((hugs))) to you♥

Spritenurse1210, BSN, RN · Oct 13, 2009

I feel awful b/c I lost touch with her after she split from the group (of friends)we use to hangout with. She went into hiding after being diagnosed at the age of 22. I, of course didn't find this all out until a few years ago.... but I was told that she wasn't in NY anymore. I found out two days ago that she has been in a LTC that I drive by all the time. If I had known that she was at this facility, I would of spent some time with her. I'm trying soooooo hard to come to realize that I can't feel guilty and perhaps she didn't want her friends to see her in this condition and that is the reason why she disappeared and was kind of hush, hush of where she was living.
She was a very good friend to me and the time we shared together will never be forgotten. her sister and mom say that she put up on big fight. She passed on 10/9/09 at the age of 37. I attended her services today..trying to hold it all together. I just want her to know that I was there today...sitting in the back row with two other friends, we were smiling, talking about the good times and also shared some tears and that I haven't forgotten.

I'm so sorry for your loss. I'm sure she knew you were there, and that she didn't forget about you and the friendship you had.

Cherybaby · Oct 13, 2009

I am sorry for your loss.

She knows you were there...and I am certain was smiling right back at you.

HM2VikingRN, RN · Oct 13, 2009

In sympathy...I have a cousin who has been living with Huntingtons for over 20 years....She has been in LTC for at least 10 years........

Its a very sad disease....She wanted you to remember her as she was not as she became....

thanks for remembering her!

Sue Damonas, BSN · Oct 13, 2009

I'm so sorry!!:icon_hug:I know how sad you are right now!! Don't worry, she knows you were there!! I agree with everone else, it sounds like she didn't want you to see her how she was.

Elvish, BSN, DNP, RN, NP · Oct 13, 2009

A friend of mine from highschool was diagnosed at 15 and progressed rapidly. It was so sad to watch, and by the time we graduated she could barely walk, but was determined to walk across the stage to get her diploma. (which she did, to a standing O from the crowd.)

We have lost touch too...and considering how fast she was progressing, I am not sure she is still alive.

Thank you for remembering your friend so sweetly. I do not think any caring is wasted. :redbeathe

TPfan24 · Oct 13, 2009

Sorry to hear this news about your friend.

dscrn · Oct 14, 2009

Sorry to hear of your loss...this is just such a horrible disease. I'm glad that you had friends to support you..and you them.:heartbeat

neonatal_nurse · Oct 14, 2009

My condolences to you. On some level i'm sure she knows that you were there for her. What's important is you were there with her during her final moments here on earth. :)