Son In Hospital - page 2

Hi everyone, My 15 yr old son is in the hospital. He has been epiliptic since birth. His seizures have never really been well controlled. Until Sunday a.m. he has not had a problem with status... Read More

  1. by   debbyed
    Sending healing thoughts to you, your son and, and your family.
  2. by   nurs4kids
    My heart goes out to you, angelbear. It's hard enough watching someone else's child go through a seizure, I can't imagine watchign my own.

    Only time will tell, there is no answer other than what the docs can give you.

    Thoughts and prayers are with you and your son.
  3. by   plumrn
    I'm hoping by now your son is improving. My prayers for your family. Keep us informed when you can.
  4. by   perfectbluebuildings
    My deepest prayers go out to you, for your son and you and your family. My younger brother too has epilepsy and it is scary. Take care and get a little tlc for yourself too.
  5. by   jnette
    I'm so sorry to hear about your son. I can only imagine how concerned you are.

    My best friend (an RN) has a daughter who has had epilepsy ever since she was a child.. she is now in her twenties and is a schoolteacher.. she recently went to Africa as an "exchange teacher" and in June will be going to Taiwan to teach firstgraders for a year. She's really something.. lives by herself.. drives.. and her mom (my friend Jayne) is always soooooo concerned for her.

    I'm sure Jayne would have some valuable info or at least insight for you, as she has dealt with this for so many years with her own daughter. Would you mind if I email her this page and have her contact you? Thought I'd ask first.

    Hoping for the very best for your son.. and you ! :kiss
  6. by   Flynurse
    Hugs to you and your family!!!

    My thoughts are with your son.
  7. by   CountrifiedRN
    Sorry to hear about your son. Thoughts and prayers to you both.
  8. by   SmilingBluEyes
    I am so sorry to hear this. Take care and I wish your son the best. Hang in there!
  9. by   Nurse2bSandy
    You are all in my prayers ...
    Take care of yourself, too!
  10. by   angelbear
    Thank you all so very much for your warm thoughts and prayers. He is doing well tonight. He is more vocal and more alert. Nuero. talked with us. He said that he feels that our son is one of the few seizure pts who the more seizures he has the worse they will get. He also says that there is nothing we can do to prevent him from aspirating again or having a fatal injury from a seizure. He encouraged us to chose to let him have a good quality of life. He also encouraged us that research is being done aggressively even more now so than just a couple of yrs ago. Our son has been on most all the meds and does have the VNS. The meds have not ever done much for him but the VNS has taken him from 45 grand mal seizures per month to 15 to 20 per month. Funny thing is I know all this and we did decide a few yrs ago to try to let him have the best quality of life possible. In the past few months his seizures have gotten worse again but until Sunday I never really felt he might die from this. He has been intubated and air lifted before but this time just felt different. Anyway he is doing better now. Yes he did have a CT scan no MRI due to the VNS he also had an EKG and EEG as well as a consult with a pulminologist today. The dr says they will gather all the info and then talk to us. I love his nuero he is a wonderful and compassionate man. He has recieved excellent care all the way around. Geez I can be long winded. Please know how much I appreciate all your thoughts and prayers.
  11. by   angelbear
    Also Jnette I would love to hear from your friend.
  12. by   thatldo
    Sorry to hear about your sons condition, your son & family are in my prayers dear lady....
  13. by   jnette
    I pm'd you, Angelbear.

    My heart goes out to you. Perhaps Jayne can be a "shoulder" for you, if nothing else. She's one of thef the kindest. sweetest, most genuine people on the face of the earth. I know she'd be more than happy to be there for you.