Quote from nrsjo
I've had horrible migraines since I was a little kid. I currently use 200mg/day of topamax. It has been the best preventative drug I have ever been on. I am down to one migraine per month, which is acceptable for me. And that is relieved with imitrex and darvocet.
I'm the same way - had them since I was very, very little. I've been through everything. The blood pressure meds don't work for me (I'm diabetic and some mask symptoms of a low). I used to use Imitrex nasal spray, but those stopped working, so I now use Migranal nasal spray (DHE), and that works about 80% of the time. Other times I use 800 mg ibuprofen (at the first twinge of pain), Butalbital, or Phenergan (either suppositories, or pills for when suppos. AIN'T convenient! LOL). I also have a few Demerol pills for the REALLY bad ones, but in those cases I usually just end up in the ER. They always try the non-narcotics first, but 9 times out of 10 end up giving me Demerol.
Yes, I feel horrible going there because I KNOW they look at me as a FF (about 1x every 2 months or so), but the last time I was there, my husband just said to them, "Look, she was throwing up the whole way here. It's is 6am on Palm Sunday. Do you REALLY think she's looking to score?" No one had accused me, but one of the nurses had made a snide comment to him, "Don't we see her a bit?". Well, yeah, I'm diabetic and was in the ER 4x in December for a stomach virus, and admitted to ICU 2x. I know they are just doing their job, but give me a break!
I hope you find something that works. I do not agree with the neurologist. Migraine pain is not something you get used to. I would rather go through labor/delivery again with my 11-lb'er than have ONE migraine. Migraine pain is all-consuming. I understand what you mean when you say you can't function. Sometimes during the midst of a bad one I'm afraid I WON'T die. Scary thoughts.