No IC or fibromyalgia, or endometriosis.
But I had pelvic congestion syndrome to the point that I had to have a hysto because of it, so it does exist, it does cause debilitating pain, and it SUCKS.
Granted, mine was bad enough that my GYN was going to take photos from the surgery to a conference of some kind, she said it was the worst case she'd ever seen.
I was diagnosed with it after having my first child in '98. Diagnosis was via exploratory lap, b/c they weren't sure what exactly was wrong with me. I was told at that time that I'd need a hysto, but could wait out the pain if I wanted to until we were done having kids and wait and see if any other treatments developed. I got my hysto done six months ago after extensively researching the options and having tons more testing done. Testing included multiple pelvics, ultrasounds, and different medication regimes. Thankfully I got to skip the lap this time around since I still had my photos from my lap all those years ago; the rest were hurdles the insurance company made me jump through prior to having a hysto.
Basically, varicosities develop on the organs in the abdomen and pelvis. This causes a pooling of blood in areas of the venous system where it's not supposed to be at, which in turn causes pressure on these organs, which increases with the increased blood flow during menses. I had incredibly painful periods, and constant pelvic, abdominal, and back pain. I was routinely taking Ibuprofen 800-1000 mg qid with Aleve 500 mg tid in between. It's a wonder I didn't end up with a GI bleed.
The worst though was that sex hurt. It felt like someone was stabbing a knife up through my cervix and into my sternum. EVERY TIME, every position. Then I would ache for days afterwards. My GYN suspected that I also have a somewhat faulty nervous system which responded to the constant pain signals by becoming hypersensitive. God bless my husband for being patient with me for all of those years.
I wish I had a way to post my pics from my surgery on here. Even though I was in a 45 degree angle, head down, to minimize bleeding issues, the veins on my uterus and surrounding my tubes were clearly visible...they should not be, in general, even when standing upright.
My pain on a daily basis, when off of work and with no sex recently, was around a four, even with all of the NSAIDs I was taking. If I had sex before my shifts and worked a couple in a row, by the end I was at an 8-10. And this is coming from someone who has experienced labor. It was not unusual for me to hide out in the med room or bathroom for a crying break while I waited for the NSAIDs to kick in. Narcs were not really an option for me b/c I wouldn't be able to work while on them, but I did take the ocassional Vicodin or Percocet on my off days.
I'm now uterus free and mostly pain free, although I do still get twinges every once in a while it's nowhere near as bad as it used to be, around a 2-3. And I no longer need to take NSAIDs constantly. After my hysto, I was amazed at how empty my abdomen felt, just to be pain free...after living with it for so long, it felt weird not to have it there!