Our Own Misconceptions

Published

Guys, please bear with me. Normally, I'd find the thread about public misconceptions pretty funny. I might even have my own additions. But this morning, I am just a bit bristly, and I find it really offensive. That's not your fault, it's mine. Like I said, my emotions are a bit raw this morning. See, we are taking my mother home from a rehab hospital (s/p fall with femur fracture), taking her off all of her meds (a list as long as my right arm, including lasix and digoxin) to allow her to pass peacefully. We will of course, put her back on her pain medicine (a story unto itself, I'll get there). This morning, I am a bit angry with the whole medical profession. OK if I vent?

First, my mother. 87 years old, severe short term memory impairment, hypertensive, hx of CHF, severe, painful osteoporosis, hx of lung cancer with lobectomy, recurrent lung cancer with metz. (Actually, there's lots more, that's just the worst of it.) And before I forget, chronic, severe pain for which she has been taking both oxycontin and percocet long term. Late last week, she fell and fractured her femur. My brother, who she lives with, called the ambulance. Seen at the hospital by an orthopod, who told my family that fractured femur repair was "resident surgery" and that mom would come through it "just fine!" (Know what two orthopods studying an EKG is called? A double blind and stupid study.) I asked prior to the surgery if anyone planned to discuss the surgery with anesthesia. "No, the surgeon said it would be OK, and I wouldn't know what to ask anyway!" (This from a brother with is a clinical Psychologist, married to a family practice DO who specializes in geriatric patients. In fact, that little brother, who happens to be a CRNA, would even have the cheek to ask is pretty annoying.) Of course, orthopedics gave my family the option of "taking mom home and letting her die of a broken leg," along the way not mentioning that she could be made comfortable, allowed to pass peacefully without surgical intervention that would likely as not kill her. But then, how could an orthopedic surgeon bill for that? "What's in it for me?"

She gets through the surgery, but upon emergence from anesthesia, is essentially unresponsive. This has been her pattern with surgery in the last few years, and it takes her several days to get over. Two days after surgery, she is discharged from the hospital, and sent to a rehab hospital. Day one at the rehab hospital, a physical therapist comes in to work with her. During the session, her sats drop (surprise!!). Let's get a chest x-ray!. Oooh, look! Spots on the lung! Is that metz, atelectisis, or maybe pneumonia? Don't know! Wonder if there is another CXR to compare it to? Maybe at the hospital?? Well, gee. We can't have anyone with spots on their x-ray at the rehab hospital!! But, that night, my sister the veterinarian finds mom pretty alert. The next morning (yesterday), she is alarmed to find mom far less alert, but far more agitated. A little investigation reveals why. The nurses at the rehab hospital, following protocol (orders?) took my mom off ALL her pain medications, and replaced them all (MS IV and IM, oxycontin, percocet) with Tylenol. Why? Well, that's what we do at the rehab hospital! (What, rehab ignores history and makes patients suffer because they can't be bothered with understanding chronic pain? They can't treat patients unless they patients can come off all pain meds?)

So, after this tragedy of errors and arrogance, after going through surgery, transfers, hideous pain, a lack of caring, and plain, blind stupidity, we are finally going to take my mom home to let her "go in peace." We could have done this a week ago, and saved her so much suffering. The thought of it brings tears back to my eyes.

And believe me, there is plenty of anger for my family as well. Since I am "just a nurse," I can't possibly know as much as my brilliant SIL who is a doctor. I can't be as smart as my genius brother, who is a psychologist I couldn't even be as knowledgeable as my pretty bright sister, who is a veterinarian. I'm "just a nurse." Nevermind that I've worked in ICU's. Nevermind that I am now a CRNA. I am just a servant of physicians, and couldn't possibly have any real knowledge.

So, maybe try to put yourself in the patient's shoes. Sure, some are a PIA. But others are not. Maybe that lady on the vent banging on her bed rail trying to get your attention is in pain. Or maybe she's frightened and just needs a little TLC. Maybe that patient you figure is just drug seeking really is in pain, and needs those meds to function on a day to day basis.

Sorry, this is rambling and venting. I know that. I also know you all to be pretty compassionate. We all need to vent about patients sometimes. This is just my turn to vent about how some people in the profession treat patients. Again, I apologize if I stepped on any toes. Thanks for listening, I really needed to vent. I'll be back after mom's funeral.

Kevin McHugh

Kevin - you've blessed more people than you know.

Thank you.

steph

Kevin,

I am very sorry for your loss. I am meeting with a friend today who lost his father unexpectedly last week. It's always hard to find the words to someone like you or my friend who has lost a parent. I can only say that I am sorry for your loss and will keep you in our prayers.

Sincerely,

Ramon

Just got home last night. Mom passed away peacefully in her sleep on May 27th at 1:30 in the afternoon. She was under the care of hospice, and in no pain. I made it home in time to see her and spend a little time talking with her before she died. She was foggy and in and out for the last few days, but was able to remind us all of her love for us. She also kept her wonderful sense of humor to the end. On my arrival, she could no longer focus her eyes very well, so I had to tell her I was there, and who I was. She responded "Oh, my baby son. I always loved telling people you were my baby son!" (I'm 6'3" +) She even asked for (and got, I might add) a small gin and tonic the day before she died. She was never much of a drinker, but man she sure loved an occasional "G&T."

All my kids also made it to KC in time to see her before she passed, and her last words to my oldest daughter were perhaps the most telling of her character. Beckie (daughter) told my mother "I love you Grandma" to which my mother responded "I love you too, Beckie. You can never say that enough."

While her experiences with the rehab hospital can serve as a reminder to us all about remembering that patients are individuals with differing needs, I am satisfied that her passing was peaceful, without pain, and that she was surrounded by love. Thank you all for your kind words of support. They mean more to me than you could possibly know.

Kevin

Specializes in LTC, assisted living, med-surg, psych.

Thank you for updating us, Kevin..........I am sorry for your loss, but we both know she is no longer suffering, and is at peace with God. :icon_hug:

You also can rest easier, knowing you did everything you could to make her last days on Earth as comfortable as humanly possible. She must have been a wonderful mother to have raised a son as loving and devoted as you.....may her reward in Heaven be great.

God bless.

Marla

Specializes in M/S/Tele, Home Health, Gen ICU.

Kevin,

My heart goes out to you and your family at this difficult time. you are a wonderful nurse and son, your Mom died at home in peace and pain free surrounded by all she loved. It is the best gift you could have given her. Hospice is a wonderful service, as an ex hospice nurse who is now managing an ICU I know which way I want to die. I hope my son will be as loving and caring as you when my time comes. You and your family are in my prayers, God bless you.

Celia

Specializes in Clinical Risk Management.

Kevin,

I am saddened by your loss. You will be in my thoughts.

Joy

My heartfelt condolences to you, and your family. I am truly sorry.

Specializes in Me Surge.

I am very sorry for your loss. But I am relieved to hear that she died surrounded by family and did not suffer any more pain.

You're in my thoughts and prayers.

How frustrating and sad. And sadder still to realize that this same scenario is being played out everyday to other families. I've even wondered before if there could be a role for a family nurse consultant, to help families avoid things like this. Of course in your case it wouldn't have helped, since you had so many "experts" in the family already!

My eyes tear up reading your story. I have a sick old dad of my own...

You are a role model to sons AND nurses everywhere.

Guys, please bear with me. Normally, I'd find the thread about public misconceptions pretty funny. I might even have my own additions. But this morning, I am just a bit bristly, and I find it really offensive. That's not your fault, it's mine. Like I said, my emotions are a bit raw this morning. See, we are taking my mother home from a rehab hospital (s/p fall with femur fracture), taking her off all of her meds (a list as long as my right arm, including lasix and digoxin) to allow her to pass peacefully. We will of course, put her back on her pain medicine (a story unto itself, I'll get there). This morning, I am a bit angry with the whole medical profession. OK if I vent?

First, my mother. 87 years old, severe short term memory impairment, hypertensive, hx of CHF, severe, painful osteoporosis, hx of lung cancer with lobectomy, recurrent lung cancer with metz. (Actually, there's lots more, that's just the worst of it.) And before I forget, chronic, severe pain for which she has been taking both oxycontin and percocet long term. Late last week, she fell and fractured her femur. My brother, who she lives with, called the ambulance. Seen at the hospital by an orthopod, who told my family that fractured femur repair was "resident surgery" and that mom would come through it "just fine!" (Know what two orthopods studying an EKG is called? A double blind and stupid study.) I asked prior to the surgery if anyone planned to discuss the surgery with anesthesia. "No, the surgeon said it would be OK, and I wouldn't know what to ask anyway!" (This from a brother with is a clinical Psychologist, married to a family practice DO who specializes in geriatric patients. In fact, that little brother, who happens to be a CRNA, would even have the cheek to ask is pretty annoying.) Of course, orthopedics gave my family the option of "taking mom home and letting her die of a broken leg," along the way not mentioning that she could be made comfortable, allowed to pass peacefully without surgical intervention that would likely as not kill her. But then, how could an orthopedic surgeon bill for that? "What's in it for me?"

She gets through the surgery, but upon emergence from anesthesia, is essentially unresponsive. This has been her pattern with surgery in the last few years, and it takes her several days to get over. Two days after surgery, she is discharged from the hospital, and sent to a rehab hospital. Day one at the rehab hospital, a physical therapist comes in to work with her. During the session, her sats drop (surprise!!). Let's get a chest x-ray!. Oooh, look! Spots on the lung! Is that metz, atelectisis, or maybe pneumonia? Don't know! Wonder if there is another CXR to compare it to? Maybe at the hospital?? Well, gee. We can't have anyone with spots on their x-ray at the rehab hospital!! But, that night, my sister the veterinarian finds mom pretty alert. The next morning (yesterday), she is alarmed to find mom far less alert, but far more agitated. A little investigation reveals why. The nurses at the rehab hospital, following protocol (orders?) took my mom off ALL her pain medications, and replaced them all (MS IV and IM, oxycontin, percocet) with Tylenol. Why? Well, that's what we do at the rehab hospital! (What, rehab ignores history and makes patients suffer because they can't be bothered with understanding chronic pain? They can't treat patients unless they patients can come off all pain meds?)

So, after this tragedy of errors and arrogance, after going through surgery, transfers, hideous pain, a lack of caring, and plain, blind stupidity, we are finally going to take my mom home to let her "go in peace." We could have done this a week ago, and saved her so much suffering. The thought of it brings tears back to my eyes.

And believe me, there is plenty of anger for my family as well. Since I am "just a nurse," I can't possibly know as much as my brilliant SIL who is a doctor. I can't be as smart as my genius brother, who is a psychologist I couldn't even be as knowledgeable as my pretty bright sister, who is a veterinarian. I'm "just a nurse." Nevermind that I've worked in ICU's. Nevermind that I am now a CRNA. I am just a servant of physicians, and couldn't possibly have any real knowledge.

So, maybe try to put yourself in the patient's shoes. Sure, some are a PIA. But others are not. Maybe that lady on the vent banging on her bed rail trying to get your attention is in pain. Or maybe she's frightened and just needs a little TLC. Maybe that patient you figure is just drug seeking really is in pain, and needs those meds to function on a day to day basis.

Sorry, this is rambling and venting. I know that. I also know you all to be pretty compassionate. We all need to vent about patients sometimes. This is just my turn to vent about how some people in the profession treat patients. Again, I apologize if I stepped on any toes. Thanks for listening, I really needed to vent. I'll be back after mom's funeral.

Kevin McHugh

Specializes in Hemodialysis, Home Health.

Kevin.. Just read this entire thread. Have not been here much lately, so I missed this over the past week.

I am so, so VERY sorry to hear of your loss, your frustrations with the "system" and the family issues. As if knowing you are about to lose your mother wasn't enough in itself.

I am relieved to hear that she passed peacefully in the end, and that all the family was with her.. and that she was aware of their presence and love for her.

God bless you, Kevin, and may you be enveloped in the strong and loving arms of the Comforter.

(((((((HUGS))))))) to you.

Kevin, So Sorry for your loss. Been there and know how you are feeling. Know that you were a wonderful advocate for your mom. She must have been a wonderful lady to raise such a compassionate son. You are in my thoughts and prayers.

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