Published Dec 28, 2003
zacarias, ASN, RN
1,338 Posts
Hey all!!
Just poking my nose in and saying hi to everyone. Just one day off and I'm back for more 12s tomorrow!
I do have a question/comment about a patient that I just don't know what to do with.
This patient is over 350 lbs with several leg neuropathy and can't move his own legs really. He is on a barimax bed and prefers to sit up because of his CHF I guess (although he sats 97% on 2L laying flat). He gets severely anxious and won't let us do much care for him that involves moving him. He's like 58 and acts like a two year old. He is slightly confused and perseverates a lot. One nurse had him two days and refuses to work with him anymore. I've worked with him three days and I say it's so tiring emotionally. He's ungrateful and he'll yell out for you every time you go by his room because he gets upset if someone is not in his room 24/7. He feels abandoned by nurses who leave the room and sometimes he starts crying. I worked two days trying to get a fan to him that he wanted because he said he was hot. Finally we got him one and he was hardly grateful and didn't even want it on really. I give him 20 min I don't have in the morning talking to him about his concerns and then he says I abandon him when I leave.
As you can see, this is a trying patient. This issue is this. He has massive excoriation, stage 2 like ulcers all around his bottom. It takes three to four people to turn, move this guy if he will even let us. He's mostly incontinent and stool gets in his deep skin folds and it's colossal job cleaning him up. Sometimes stool gets under the dressing so we have to change it which is bad because they shouldn't be taken off anyway. I have been serious with him telling him that if he doesn't get off his bottom, he will not fair well and his ulcers will get worse and worse. He hardly will let us turn him or move him and if we do, he sits up to breathe and sits on the bed. To turn him takes 30 min, not 5 min because he stops us and talks about irrelevant things.
He's set to go to a SNF nearer to where he lives soon although I doubt the SNF knows how much care he really is. I am most worried about this guy's wounds. What can we do? I feel that it's just going to get much worse no matter where he is. He doesn't help and he's huge and is incontinent. Are these people just screwed for life?
This post is both a vent and also a plea for suggestions. Put yourself in his and the nurses' place before making suggestions so as to know the severity of the situation. The first year resident says that he just needs good wound care. Well DUH!
Zach
leslie :-D
11,191 Posts
the snf that he's going to will probably order a psche eval. and any competent facility will make sure he's repo'd while in bed; and he'll be changed q4h/prn; and he'll be reassured but w/limit setting if necessary. good nursing care commands many interventions; avoidance is not one of them.
Tweety, BSN, RN
35,420 Posts
I've had several patients as you are describing and I feel your concern and frustrations.
I don't have any suggestions though. The dynamics of what he's going through is so complicated. He's angry, he's afraid, he's got control issues, he's in pain, he's in denial on and on. Probably underneath it all is a lot of fear.
Bottom line is though that he's making his own choices here. You can only take care of him the best you can, teach him, set limits as to what is an isn't acceptable behavior, ignore rude and nasty comments while you're doing his care, leave the room when he is very inappropriate, etc.
Also, supervisors should be rotating his care daily so people don't get frustrated and then refuse to care for him.
Good luck. He's lucky you care.
CseMgr1, ASN, RN
1,287 Posts
I had the same type of case when I worked in Home Health several years ago. This patient had a nasty abdominal wound which tunneled to hell and back. He was also a diabetic and as non-compliant as they come. The house he lived in was in an upscale neighborhood, but filthy and nasty on the inside. He had a large dog, who he INSISTED having on his bed, while dressing changes were being done...until he made my aquaintance. I refused to do his care, until he made that dog stay down off the bed. While I didn't win any popularity contests with this guy, the structuring that I did made him realize that he was going to have to behave..if he was going to get the care that he needed.
After I stopped seeing him, the word started getting around that he was physically manipulating his wound...to keep the nurses coming. He had become so difficult that more and more nurses refused to see him, and he was finally discharged from our agency. He later died. A pathetic human being.....
Agnus
2,719 Posts
I think we all realize this fellow craves attention. I have no doubt the reasons behind it are complicated. All his behaviors are attention seeking. The wound, incontinence, etc are ways to insure he receives attention.
Perhaps if the need for attention were addressed directly. That is some arrangement were made to see that this man got undivided attention focused on him as a person. Not focused on his wounds or physical care just him as a man. Maybe this would reduce the need to self destruct his body to get the attention.
He is probably feeling unappreciated and unloved. Somehow a way needs to be found to show him these things apart from the attention given to the physical.
I know probably not much help but maybe stimulate some of our creative juices here.
Jay-Jay, RN
633 Posts
I had a wound care case that was somewhat similar. He was a diabetic with Stage 4 pressure sores on his buttocks. He refused to stay in bed and allow them to heal. He was up in his wheelchair most of the day. We were doing Acticoat on the ulcers. It was a MASSIVE dressing. Took a minimum of 1 hour, if you knew where everything was, how to gett him from bed to chair, etc.
He did not have a/c in his townhouse, so when the weather got really hot, he would dump a glass of water over his head, and sit in front of a fan. Of course that would wet the dressing, and cause the wound to macerate and deteriorate even further.
He eventually moved away, and continued to receive home care in his new location. A short time later he died.
The horrible tragedy of it was his son, who was also diabetic, and his main caregiver, ALSO died a short time after his dad. I don't know the details, but suspect that once his dad was gone, he lost his will to live, and let his BS get out of control. (He also had Ca. of the prostate, but it was in remission, as far as I know.)
Sometimes there isn't ANYTHING you can do.... People make their choices, and that's it. You do your best to convince them of what they need in order to heal, but if they won't listen, and co-operate, there's not a lot you can do.
Thanks guys...
I'm a pretty caring guy and I just wish there was something we can do.
I appreciate all your comments and encouragement and stories. At least I know I'm not alone. And for the first poster, clearly I'm not avoiding the issue; My posts clearly states I wish to do the best I can for this man.
I agree he's an attention seeker and needs to be addressed as a person. Unfortunately, I do give him more attention than most nurses but it's not enough. Also, he's SO huge and non-compliant/demanding that we don't have the staff and time to give him excellent care where his wounds are concerned. If we put him in one of those arjo things, he'd die of a coronary because of anxiety. Also with his sleep apnea, docs would hurl before giving the guy lorazepam.
I just am beginning to think that sometimes there are people that we will run across that are screwed, for lack of a better term.
Thanks for listening.
Originally posted by Jay-Jay Sometimes there isn't ANYTHING you can do.... People make their choices, and that's it. You do your best to convince them of what they need in order to heal, but if they won't listen, and co-operate, there's not a lot you can do.
AMEN. I wonder just how many billions$ of taxpayer money have been flushed down the drain, because of this very issue, too.
BarbPick
780 Posts
Originally posted by earle58
the snf that he's going to will probably order a psche eval.
That is what is missing. SNF have little time to invest in his nonsense. They have taken care of worse. He will be put on as much medication as needed to stop him from shooting himself in the foot. The last resort for these people are colostomies to stop skin breakdown.
Hellllllo Nurse, BSN, RN
2 Articles; 3,563 Posts
zcarias-
I feel for you. I've had plenty of pts like this in my time- even some really skinny, tiny ones who were just as difficult to turn and transfer as the big ones, r/t their manipulation of the situation. These pts can just suck the life out of their caregivers.
When I've had these pts who stop you in mid turn/transfer to ask questions, etc. I've told them "Turning/transferring someone is like swinging a sledge hammer. You get prepared, and then you just do it. Stopping in the middle is not possible. One or all of us will get hurt. So, we're going to do this now. Ready? one-two-three...."
When I've had a pt who rings the call light every 5 mins for some bs request, I say something like "Mr. X, before I leave, I want you to make sure you don't need anything else." (Do a quick scan to check that anything he might need is within reach). "I am not able to come in here every five minutes. Now, here's your water/call light/pillow/whatever. (I often use touch at this point to reassure the pt. Touch their hand or arm and smile) I will come back and check on you in approx 1/2 hour."
As for the rest of it- be kind, and polite, but firm. Always get help for transfers, no matter what. Make sure the bed and chair brakes are locked. Look him in the eye to acknowledge him.... and set limits!
Say things like "Mr. X, I have other pts waiting for me. We've got ten minutes to do xyz. If you're not ready/finished in ten minutes. We'll have to stop and finish later."
Doing these kinds of things has helped me to care for this type of pt without going crazy. It's still really wearing on a nurse!
If a volunteer can spend time w/ him during the day and provide some diversion, it might be helpful.
Rotating staff assigned to this pt, and sticking to the assignment helps a lot, too. So does venting, here.
germain
122 Posts
I was thinking, god, this guy sounds so familliar, then I realized that we work at the same hopital. I know this guy too, as an HA, all I can say is strength be with you and thank you so much for taking the extra time with the poor soul, even if his needs are bottomless. He is hte worst of the worst, in terms of need. Youre a great nurse. keep at it and give yourself a pat on the back.
ktwlpn, LPN
3,844 Posts
Originally posted by germain I was thinking, god, this guy sounds so familliar, then I realized that we work at the same hopital. I know this guy too,
I was thinking, god, this guy sounds so familliar, then I realized that we work at the same hopital. I know this guy too,