I have ADHD. Not the cool Tom Cruise/Ty Pennington kind, where you can act out and make lots of money, either. I have the kind where people label you as stupid, flaky, and lazy. I wanted people to have an idea of how it feels to never be in control of your own life. To get a glimpse of the nightmare of doing your best, and never, ever being good enough.
I have been pretty vocal in my defense of ADHD sufferers in some threads recently, so it will probably not surprise you that I have it, and a pretty bad case.
Most people that I know don't "believe" in ADHD. They think it is a case of "boys will be boys," whatever meaning that holds for them, or that "she's just a daydreamer."
Some people think back to that one hyperactive kid, the one who got in trouble all the time in the first grade because he couldn't conform to the structure of a classroom, when they picture someone with ADHD.
Some people have a slightly clearer view and know that there are different kinds of ADHD. They know that some sufferers act out and that some seem to be in their own world.
The rare few who understand the condition know that it is a serious mental illness. Statistically, boys tend to get the more outgoing, hyperactive, aggressive types of it. Girls tend to get the inattentive, daydreaming types.
I have the inattentive kind of ADHD. To see me, I look normal. I even act normally, most of the time.
However, the things that go on in my head... {shudder}
My symptoms started showing when I was four. I constantly lost things. I would put on mismatched everything. I would wander off in the mall when things caught my attention. I got left behind a few times because I was enthralled and didn't hear my parents. I had a hard time following directions and would forget what someone had just said to me. My parents thought I must have a hearing problem.
So my first test was a hearing test. I passed that, pretty easily. My hearing was fine. My parents assumed that I needed more discipline and structure, that I was just flaky and a little absent-minded. It helped, a little, although my behind would never be the same.
I started kindergarten and did pretty well. They expect you to be flighty there.
First grade... not so much. I was a smart kid and could do the schoolwork, but I had problems with impulsivity and remembering to turn things in. My name lived on the naughty board. I couldn't stand the disappointment in my parents' faces, so I tried harder.
I had so much anxiety back then that I had severe insomnia. I would lay awake in bed at night and try to figure out why I was so bad. I prayed to God to make me a better girl. I prayed to God to fix me so I could be good like the other little girls and pay attention in class. I prayed to God to make Mama and Daddy not get so mad at me when I got in trouble for daydreaming, or leaving assignments at home, or for leaving my things at school.
My parents and teachers thought that maybe first grade was too easy for me, that I wasn't paying attention because I could already read and write.
My next test was an IQ test. I passed it, too. The powers-that-be decided I was "Gifted-and-Talented" and sent me to a special class. This helped, a little. The class was faster-paced and wasn't as repetitive, so it was easier for me to tune in. My name was still on the naughty board most of the time.
Things continued this way for a while. I was smart enough that I made good grades because I could pass the tests. Even when I didn't do the homework and missed deadlines, I could get by. I skated through each grade with A's and a couple of B's. That wasn't good enough, though. My teachers thought I was lazy, that with a little effort, I could get straight A's. That, if I would just apply myself, I could do my homework and pay attention in class and really be somebody smart.
It took all my effort just to do as well as I was, and everybody wanted more. My parents thought I could do better at home if I just tried a little harder. My teachers thought I could be a superstar, if I would just work a little harder. I cried myself to sleep most nights because I just couldn't figure out what they wanted from me. Nobody could explain it, either.
I heard over and over, "You're so smart. I don't understand why you don't try harder." Nobody ever listened when I said that I was trying as hard as I could. Nobody ever believed me.
I tried my hardest until the seventh grade. Then puberty hit.
I thought my life was stressful before, but once hormones hit... yeesh. My grades fell through through the floor. My life at home was in turmoil. I could barely remember to brush my teeth regularly. Forget showering daily. I was lucky to remember to even eat on a regular basis. My weight fluctuated horrendously as I would forget to eat for a day or two at a time, then gorge on sweets and junk food to make myself feel better emotionally.
Teachers are not equipped to see this. My parents had their own problems, as their marriage was starting to break up, and didn't even notice me most of the time.
Some other events happened and I ended up with an adopted brother and parents who were in a state of wary detente.
My new brother was six years old and wild. He had ADHD and acted out, like a champ. This led to him getting diagnosed very early.
However, my parents didn't "believe" in ADHD. They thought my brother's problems could be fixed with discipline and structure (sounds familiar, doesn't it?).
They worked with him and worked with him, and eventually he was able to keep it together in school.
He started smoking marijuana when he was eight years old. He claims it helped, a lot. It must have. He didn't end up in trouble nearly as much after that.
The result of all of this is that I and my problems were shoved to the background. I felt let down. I was valuable to my family, but no one was interested in my issues. I felt like my family could only see me if I acted like everything was OK. I felt like my problems were invisible to them. I couldn't trust anyone to see me as I was, to believe me when I told them I was having trouble. But I was able to manage and survived puberty fairly intact.
So, fast forward to my high school years. At this point, I had pretty much given up on ever being good enough for my teachers. My parents had divorced and remarried each other, and were in the process of breaking up again. I had also given up on being good enough for them. I was passively suicidal.
I prayed to God every day to let me have a tire blowout when I was alone in the car so I could die an a car accident, or to let me have a quick, deadly disease. I had suicide fantasies. I couldn't follow through, though, because my precious baby brother, the adopted one, was the first one home and I was terrified he would be the one to find me.
I prayed to God to just bring me home to Heaven, because life here was just too hard.
I still functioned, though. I passed my classes, barely, and got into a good university. Life got even tougher. I couldn't function in social situations and developed few relationships. The slight support network I did have at home was gone and I was completely on my own. I had to learn how to pay my own bills and function as an adult without much guidance.
I did okay the first couple of years, as I was excited about this new, shiny experience. Then reality set in. And it was hard and bleak.
I became actively suicidal. I had plans, oh, so many plans. I started practicing cutting my wrists. I researched the right ways to do it so I would bleed out. I decided that was too dramatic and would hurt my family too much, so I came up with several, less flashy, plans. I thought maybe I would just go "missing."
Eventually, I came out of what I later realized was a severe depression. I graduated, although it took me five years, and got a job. I hopped from job to job the first few years, and eventually settled down into a job as a typesetter at a print shop.
It was a low stress job, but it required a lot of attention to detail. A LOT. Which I was terrible at. So, I developed strategies to help me. I would proofread things three times and send them back to the customer to proof read. I don't know why, but no one proof reads their own stuff. This worked for a few years. I was able to focus in the beginning, because it was a new, shiny experience. But that didn't last long.
My job was boring. And repetitive. There wasn't much there to capture my attention. I tried to help out in the front office and in the press room to give me enough variety so I could focus, but my boss wanted me in my cubicle/box at all times.
I got in trouble, time and time again, for typos. For small mistakes here and there. For being late. For not following through on an email. For not being good enough. "You're so smart. I don't understand why you can't try harder and do this!"
I was eventually fired after six years. I had given up trying to be good enough, and my boss had given up trying to deal with me. He didn't care that I was trying my hardest. He didn't care that it took all my effort to be sub-par. He didn't want to accommodate me with a proofreader or give me any slack for mistakes.
I was costing him money, so I had to go.
I had gotten my CNA certification, so I started working full time at a nursing home. It felt good to help people, so I decided to go to nursing school because I couldn't pay back my student loans at minimum wage. My husband was footing most of my bills.
I had thought I was stressed the first time I went to college. Hoo, boy.
I came on to allnurses and complained because I couldn't pass nursing school tests. And one of the commenters suggested I get tested for ADHD.
I passed this test, too. With flying colors. Apparently, I have a bad case of ADHD. My doctor was amazed that I had been able to function as well as I had. He immediately started me on meds.
I started out with Ritalin, which was OK. I felt a little more "normal." I could walk into the kitchen and remember what I went in there for, the first time, for the first time in my life. I still couldn't study.
So I started Vyvanse. Big mistake. I became a raging psychopath in my head and a raging witch on the outside. I hit my dogs, I fought with my husband, I wanted to murder people in WalMart and thought about ways to do it. It was awful.
I gave up meds completely until after I graduated, I just tried harder. And passed with B's and C's until I graduated. And my nursing instructors said: "You're so smart. You do so well on the floor. I don't understand why you aren't doing better in class." I couldn't tell them I had ADHD. It wasn't a real disease, after all, according to every one I knew. I didn't trust nurses to be any different.
After that, I tried Adderall. It worked for a couple of hours. I was super nurse! Then I was starving and couldn't focus for the rest of the day. It didn't matter if I took more or not. Apparently, I used up all my focus in that first burst.
Then I started getting dizzy, my heart would race, and my ankles would swell. I would get angry and have outbursts at work. Apparently, stimulants make me nuts and put me into heart failure.
So, no more meds for me.
At this point, I have given up trying harder. I have given up trying to do better. I muddle through my days at work and take the criticism as it comes. My patients thrive, but my charting... well, it takes me longer than most because I have to check everything three times, and I'm sure there are still holes.
I am working now as a traveler/agency nurse, so that I can leave and start a new place before my ADHD gets bad and I start messing up. Each assignment is new and shiny, so I can do it for a little while.
I still have the daily struggle with forgetting where I put my keys, making sure my clothes match, and remembering my lunch. I have backup deodorant in my car and my nurse bag. I have a realtor-type lockbox on my door so I don't lock myself out anymore.
I am not flaky, lazy, or stupid. But I just can't try any harder. And I am OK with that.
Oh wow this is all me to the "T". I was originally dx'd ADD in the 70's, then acquired the "new" dx of ADHD as an adult. I began meds for nursing school as I imploded to the point of not even being able to process taking out a notebook and pen for notes. My first day on meds was like a whole new world opened up. I looked at a classmate and said "So this is what's it's like to feel normal!" It was great. However, my fear of addiction led me to quit taking them after one semester.
I am ridiculously OCD. I will start cleaning and organizing the desk as soon as I come to my unit, even if the day shift nurse is still working. I neatly pile all of the loose papers, put away odds and ends, etc. The first shift nurses have learned to tolerate that from me, for which I am grateful. It's a very physical sensation I have when I see clutter and disorganization everywhere. I can feel my anxiety levels increase, heart rate increase, breathing becomes shallower, etc. It MUST be organized or I simply can not function.
I approach my shift and duties as a series of tasks to complete, with different self-imposed times that each set of tasks must be completed. I must have A, B, and C completed by the start of dinner, then D must be complete before meal time is up, then the remainder of tasks must be complete by no later than 9 p.m. If anyone, or any thing throws off my "schedule" I go into crisis mode, become quiet and irritable for a time until I have the "crisis/crises" taken care of and I feel that I'm back on track for the remainder of my shift. Because of this approach to completing my tasks, I have to frequently remind myself that I'm there to take care of people. Especially when one of those people ask for something that may threaten to blow my "schedule."
The people I work with are amazed at how focused I can be when I'm working. There can be several people around the desk all chatting and laughing, call lights going off, phone ringing, etc and I don't hear a thing. I hear noises in the background, but they don't register. (I do hear the important things though, like alarms going off, a loose cough from a resident, etc). But I swear when I'm "in the zone" the building could fall down around my head and I wouldn't notice. Unless the power went out and I lost my charting then I'd notice plenty.)
I get told I'm a good nurse and such, but oh if people knew what went on in my head! I fear I would be given a nice white coat and escorted to a lovely private room for a nice rest...
What people without the dx don't understand is how hard I have to work mentally to perform my job. I am utterly exhausted after a shift. It takes me an AMAZING amount of energy just to deal with family members, other staff, etc. My resident's, generally speaking, do not cause me a lot of grief. But some family members....It's very, very difficult for me not to tell them to take their loved one home if they perceive care here is so bad. I'm certainly thinking it as I smile and offer some solution to the problem. They leave happy, not realizing that I'm not being a good nurse. I'm telling you and will follow through on whatever it is I think you're after so that you'll go away so that I can finish my task.
That, my friends, is a day in the life of me and my ADHD. And I'm exhausted just thinking about it.
I can totally relate to the feeling of exhaustion after a shift. I have spent years wishing I could find a book on how to act normal. My last job was brutal, and I am not sure I will ever be a "real" nurse again. I will work per diem only now, for the same reason you travel. I know that my type of ADD needs continuity, but I just can't stand how much all my energy bothers people. I love people, but have few close friends and can't even tell my husband what is going on. I find its better to be silent. But it is hard to have so many things you can't tell anyone.
To Banterings:
Not at all. I took it in the morning, sailed through the day without all of the mental roadblocks that I was accustomed to, and slept fairly well at night.
I have toyed with the idea of going back on them, but seem to be able to generally function without them thus far so I stay on the fence about it.
I get told I'm a good nurse and such, but oh if people knew what went on in my head! I fear I would be given a nice white coat and escorted to a lovely private room for a nice rest...What people without the dx don't understand is how hard I have to work mentally to perform my job. I am utterly exhausted after a shift. It takes me an AMAZING amount of energy just to deal with family members, other staff, etc.
Amen to both of these!
I have often thought that if they come out with "thought police" then I shall be locked away! Some of the impulsive thoughts I have are downright sociopathic.
I have developed an excellent poker face as a result of all of the inappropriately funny things that pop into my head when I am dealing with patients, especially when morbid things happen. For example, when I do post mortem care, it's hard for me not to giggle when gases escape and liquids relocate. I try to be respectful, but when a dead guy farts, it cracks me up. I know it is socially unacceptable, but darnit, it is so FUNNY. I have had to leave the room before and find a deserted room to laugh because I can't hold it in.
And the exhaustion... Oy.
If I work more than two shifts in a row, I become brittle and angry, just because I am TOO TIRED to deal with any more. I get like that with my family, too. I have a strict 2-4 hour visit limit, because acting normal WEARS ME OUT.
I have to constantly monitor what comes out of my mouth, my fidgeting, the body language I am using so people don't know I think they are boring/stupid/clueless, and I have to remember to excuse myself and not just walk away because that's rude, even though there is something WAY more interesting happening across the room.
Amen to both of these!I have often thought that if they come out with "thought police" then I shall be locked away! Some of the impulsive thoughts I have are downright sociopathic.
I have developed an excellent poker face as a result of all of the inappropriately funny things that pop into my head when I am dealing with patients, especially when morbid things happen...
I have to constantly monitor what comes out of my mouth, my fidgeting, the body language I am using so people don't know I think they are boring/stupid/clueless, and I have to remember to excuse myself and not just walk away because that's rude, even though there is something WAY more interesting happening across the room.
I understand the sociopathic impulses too. (You have to have ADHD to understand because they would scare the he** out of a "normal" person.) Couple that with impulse control issues, and they have lead many to be rather promiscuous (sexually) and dare I say adventurous (sexually).
I also have to be careful because if someone is acting like a stupid @ss, I will call them one.
Our minds run faster than our bodies and the inappropriate jokes seem to appear by themselves. To someone without ADHD I describe it like an Improv stand up comic in front of a brick wall who is constantly commenting on what is around me.
Here is another one I just noticed about the brain being faster than the body; as I type, I constantly am skipping 3 letters ahead, having to go back and fix it. Thank God for auto-correct.
I understand the sociopathic impulses too. (You have to have ADHD to understand because they would scare the he** out of a "normal" person.) Couple that with impulse control issues, and they have lead many to be rather promiscuous (sexually) and dare I say adventurous (sexually).I also have to be careful because if someone is acting like a stupid @ss, I will call them one.
Our minds run faster than our bodies and the inappropriate jokes seem to appear by themselves. To someone without ADHD I describe it like an Improv stand up comic in front of a brick wall who is constantly commenting on what is around me.
Here is another one I just noticed about the brain being faster than the body; as I type, I constantly am skipping 3 letters ahead, having to go back and fix it. Thank God for auto-correct.
If a normal person had any idea what impulses run through our heads, we would all be locked up. I have to lie when I am asked if I have thoughts of harming myself or others. Well, yes, I do. Sometimes every day. Not to the point of action, but the impulses are there.
My impulses run more to violence and spending than sex, unfortunately. I tend to want to slap people or stab myself when I'm frustrated. Luckily these are just impulse flashes, and not something that I actually do, but when I was a kid it took me a long time to learn control and reflection. I can't tell you how many times I kicked my brothers in the shins when they disobeyed me, or I slapped myself in the face for saying something stupid. Or beat my head into the wall. Or kicked the nearest hard surface and broke a toe. Jeez. I'm not a masochist or anything, I am overly self-critical. I also spend hundreds of dollars a month on stupid little crap, simple impulse purchases.
One of my brothers made me incredibly angry and then LAUGHED at my reaction when we were about thirteen and fourteen. I was instantly homicidal and chased him through the house with a knife. He was always faster than me, so he was perfectly safe. He ran into his room and locked the door, still laughing. I didn't come out of it until I had kicked a hole in his door. Of course, I was horrified at myself and immediately called and told my Dad what I did, but if my brother hadn't been fast, there could have been a different outcome.
I also have a hard time not calling out an @ss. Obviously. Just look at some of my posts. (OOOPS.) My husband has helped me learn not to hit "Post Comment" until I have calmed down. I am still surprised sometimes that I haven't been booted for TOS violations.
As far as the brain being faster than the body, my mouth is usually way behind my brain, and when it's really bad, I only get half a sentence out before my mind has moved on to the next paragraph and what I say makes ZERO sense. Drives my husband nuts and he has to ask me to back up and start over.
Ahh, life is rarely boring for us, right?
I thought I'd update since last reading this thread. I went and got myself a shiny new diagnosis of inattentive-type ADHD. As suspected, the tests I did showed energy level to be normal, if not low while inattentiveness was off the charts.
I've now been given Adderall. The first day I took it, it took effect during fundamentals lecture and it blew my mind. I wasn't convinced that I would like thinking about just one thing at a time, but it's amazing. I have more energy- obviously, Adderall is a stimulant but I don't think that's even it so much as not having to check myself all the time. It's exhausting to constantly try to get myself back on task, to concentrate, to make sure I'm doing what I'm supposed to be doing and going where I'm supposed to be going and not forgetting anything. All those invading thoughts that run through makes one feel like someone being attacked by birds, with constant interruptions, or being pulled off course while sailing on a windy day.
The effect did wear off somewhat after a few days so now I'm trying going from 20 to 30 mg for a morning dose and adding a 10 mg shorter release afternoon dose as needed when 8 hours isn't enough. It has raised my blood pressure significantly which is a bit worrisome, so hopefully I can manage that. Would rather not add a hypertensive since I already feel like an old fart with all the pills I take in a day for various things.
My psychologist recommended reading Driven to Distraction by Hallowell and Ratey (psychiatrists that have and specialize in ADHD) and I've almost finished it on audiobook. It's very good and I identify a lot with what they're saying. I get the sense it's a bit old since they keep talking about patients who had no idea what ADHD was and well I'm pretty sure basically everyone has heard of it by now.
One person they mentioned talked about going to college and "playing chicken", meaning going into a test completely unprepared and seeing what would happen. Part seeking stimulation, part not wanting to exert effort only to fail. I did that my first run through school before I found some better coping mechanisms. Fat lot of good it did me Very interesting to learn the little details many of us have in common. Husband heard someone mention always leaving drawers open and he about pooped his pants. I do that and it drives him CRAZY.
So anyway thank you for this thread. It was the kick in the pants I needed to confirm what I'd always suspected. That, and tearing off the sideview mirror and committing a med error in the same week!
I thought I'd update since last reading this thread. I went and got myself a shiny new diagnosis of inattentive-type ADHD. As suspected, the tests I did showed energy level to be normal, if not low while inattentiveness was off the charts.I've now been given Adderall. The first day I took it, it took effect during fundamentals lecture and it blew my mind. I wasn't convinced that I would like thinking about just one thing at a time, but it's amazing. I have more energy- obviously, Adderall is a stimulant but I don't think that's even it so much as not having to check myself all the time. It's exhausting to constantly try to get myself back on task, to concentrate, to make sure I'm doing what I'm supposed to be doing and going where I'm supposed to be going and not forgetting anything. All those invading thoughts that run through makes one feel like someone being attacked by birds, with constant interruptions, or being pulled off course while sailing on a windy day.
The effect did wear off somewhat after a few days so now I'm trying going from 20 to 30 mg for a morning dose and adding a 10 mg shorter release afternoon dose as needed when 8 hours isn't enough. It has raised my blood pressure significantly which is a bit worrisome, so hopefully I can manage that. Would rather not add a hypertensive since I already feel like an old fart with all the pills I take in a day for various things.
My psychologist recommended reading Driven to Distraction by Hallowell and Ratey (psychiatrists that have and specialize in ADHD) and I've almost finished it on audiobook. It's very good and I identify a lot with what they're saying. I get the sense it's a bit old since they keep talking about patients who had no idea what ADHD was and well I'm pretty sure basically everyone has heard of it by now.
One person they mentioned talked about going to college and "playing chicken", meaning going into a test completely unprepared and seeing what would happen. Part seeking stimulation, part not wanting to exert effort only to fail. I did that my first run through school before I found some better coping mechanisms. Fat lot of good it did me
Very interesting to learn the little details many of us have in common. Husband heard someone mention always leaving drawers open and he about pooped his pants. I do that and it drives him CRAZY.
So anyway thank you for this thread. It was the kick in the pants I needed to confirm what I'd always suspected. That, and tearing off the sideview mirror and committing a med error in the same week!
I'm so glad you're moving forward. Congratulations! That was the hardest step for me.
The drawer and cabinet door thing drives my husband nuts, too! He's always going behind me and shutting things.
valliloves
118 Posts
Thanks for being so brave. I was on medication from age 6 until 17 and like you, I was tested as gifted.
Like someone else said, we do teach ourselves OCD! And hyper focus? Watch out! Ha ha!
For me, reading a plethora of info about the condition, learning compensatory skills, proper nutrition, and a support network . . . Has helped me keep it under control.
For all of my fellow ADDers, I highly recommend the book by Kate Kelly and Peggy Ramundo called, "You Mean I'm Not Lazy, Stupid Or Crazy?!"