I've posted before about my husband being terminally ill and complications that have come up, but this is the worst it has every been. Currently in ICU with ARDS and sepsis, placed on dialysis yesterday. On a vent, paralytic, the whole works.
Miraculously he has been showing signs of improvement. CXR went from a complete white out to having distinguishable upper lobes, heart, ET. That was amazing. Has been running a PEEP of 20. Went in this morning to a stunned looking pulmonologist telling me that the lungs are regaining some elasticity so they got the PEEP down to 8. (PTL!)
I have been glued to his bedside but am home tonight as I had nobody to take care of our 5 year old. Besides she is desperate for some mommy time and vice versa. I was actually sleeping peacefully and his brother called and woke me up. Couldn't go back to sleep and felt God telling me to get on here and get as many prayers as possible going so that dh can get over the hump. My brother in law is an atheist but I continue to witness to him about God in my life and God's ability to heal if it is in his will.
Please, all you that can pray, please help me out on this one. His name is Dan and I love him more than anything. He had not made a decision for the Lord before he was intubated so that is a big reason for wanting him to wake up and have one more chance.
Thanks in advance to all. You guys are wonderful support.
Keep going head-to-head and hopefully, they'll get so tired of you that they'll have you transferred. :) Seriously, though, this is not healthy for you or for your husband. You shouldn't have to go through this. What kind of place is this? If his status has always been the same, how are they going to help him at all? Have they even made some type of effort to help him or just to "weane" him? I mean, come on. I really am sorry that you're going through this. Both my mother and myself are keeping you in our prayers and she really DISPISES this place, too. God bless you and keep strong.
no nurse has the right to tell you he's going to die tonight.:angryfire
keep on pushing for his transfer stat, where you know he'll be well cared for. get anyone and everyone involved, from social services to qa, all the way to the big wigs. threaten negligence, abandonment, substandard care, a full blown investigation. trust me, you keep on being verbal and persistent, they will want you out of there asap.
we're all here for you sweetie.
to help you with your fight or hold you when you're tired.
the prayers and warmest of wishes will pull you through.
Could I suggest that they should transfer him stat before I witness more issues that are reportable, or is that considered blackmail?:uhoh21:
you can phrase it in a way that you INSIST he be transferred stat for you have witnessed (too) many incidents that you deem reportable.
or as i've suggested, go to social services and demand to know who to contact about a full-blown investigation of this hospital. but you need to talk to people who are in a position to act....so in other words, you wouldn't say this to a nurse or even a doctor, but to social services, quality assurance, the ceo's. undoubtedly, they will see the passion, pain and determination in your eyes. don't hold back; don't be intimidated. you are fighting with every bit of strength you have, to get your husband the care he so very deserves! and time is critical. perhaps you might even want to speak w/social services tomorrow, at the facility where you want your dh to be transferred to. i'm sure they would tell you who to call re: an investigation and THEN, you could go to social services at the current hospital, telling them who you intend to contact. i won't let you out of my thoughts and prayers joey.
Could I suggest that they should transfer him stat before I witness more issues that are reportable, or is that considered blackmail?:uhoh21:
If it was me, I'd just tell them outright, "He is getting worse, please transfer him back to the hospital." If they say no, I'd call his doctor at the hospital and have him/her speak with them. If nothing seems to work, can you call 911?
I've been following your husband's progress and am thinking of you all.
I don't know all the in and outs of getting someone out of an LTAC, but to get him transferred STAT, he probably has to go to the nearest hospital. Have you talked to the doc that transferred him there, the one that took care of him in the hospital? I can't imagine how this hospital gets by with all the poor care or how they can stay open. Surely word of mouth keeps this place at the bare minimum patient load. I agree with everyone else, you need to move your husband out of there as soon as possible for his own protection. I know it is hard to stay there with your daughter, but if you can spend as much time as you can there, I would do as much care myself just to make sure it gets done. Know that you are in my thoughts and prayers. God bless you Joey and your husband too.
nursejoey05 If blackmail is what it takes weeelllll then blackmail would be what they got..who but you at this point is his advocate... you are his mouth piece.Is there an ombudsman in your area that would be able to assist and could the social worker at this facility give you that persons name.. We all are here and just know that we are all praying Gods will in your and hubbys life and strength for you with day to day things.....Bless your child and God comfort and keep you all
I started in first thing this morning with the case manager. Tried to keep it polite but told her if they weren't going to cooperate with me. I had plenty to report. That sent her scurrying. But she came back with the Corporate Director of Case Management. She wants to switch him to comfort measures and do all she can to support me. I said that all they can do for me is to send him back to town. They are going to write some people up for the things that I mentioned. Whoopee! I told her that nurses know the right way to do things and nurses know when they do it wrong, just like things magically are perfect when State is in the house. Told her that they need to operate every day as if state was in the house. You know very good and well that they will write up the people (if they even do) and tell them that they are doing it to pacify a family complaint. That doesn't change anything for dh or any other patient. So it was left that the doctor there would call the doctor here and see IF the doc here would take him back. SO I called the doc here and told his nurse that the other doc would call and then told her my side of the story. Because no idea what that doc will say. But the doc here knows that I have a good grip on the harsh reality of the situation and he knows I'm truthful. Well, come to find out, the doc never called the doc here. (Imagine that.) So I think my kid is missing school tomorrow, we're going to head back there and spend the night, and come tomorrow morning, I'm calling State with my complaints and the fact that they are holding my dh hostage against my wishes.
You go girl !!You are a strong Godly Woman with your Hubbys best interest at heart You are a wonderful example to your daughter of what you will and can do for some one you love.When all this ends and you hve done your very very best for your hubby you will have nothing but to be proud of how you have carried your self and know that dh would do the same for you.Love is a strong precipitator to courage and you my dear are a wonderful role model for any of us..I'll keep praying:loveya: :icon_hug:
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mspretti1
28 Posts
My prayers are w/your husband and your family. May our lord be with you durning this difficult time.