Published Dec 17, 2004
LPN-n-2005
106 Posts
I recently ran across this story about a baby born w/ no face. She can see but she has to breathe w/ a trach and eat through her stomach via feeding tube. Here is her story w/ a short video clip below..
http://www.firstcoastnews.com/news/local/news-article.aspx?storyid=28372
Jo Dirt
3,270 Posts
That makes me want to cry.
hypnotic_nurse
627 Posts
It is sad...but her parents love her, they love each other and they are doing their best to help her. There are a lot of other kids for whom that is not true.
manna, BSN, RN
2,038 Posts
Very sad, but I agree... it's a blessing that she was born into a family where she is obviously cared for. :)
That is so true. Her parent's looked like wonderful people and it is good that the community is reaching out to help them instead of shunning them like lepers.
mitchsmom
1,907 Posts
The article says she has Treacher Collins Syndrome. Discovery Health Channel had a show on it just lately. I think everyone that was profiled on the show had had a lot of reconstructive surgery, I know the article said she has a severe form of the syndrome but hopefully they will be able to help her out also.