Baby born w/o a face..WOW!!

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I recently ran across this story about a baby born w/ no face. She can see but she has to breathe w/ a trach and eat through her stomach via feeding tube. Here is her story w/ a short video clip below..

http://www.firstcoastnews.com/news/local/news-article.aspx?storyid=28372

I recently ran across this story about a baby born w/ no face. She can see but she has to breathe w/ a trach and eat through her stomach via feeding tube. Here is her story w/ a short video clip below..

http://www.firstcoastnews.com/news/local/news-article.aspx?storyid=28372

That makes me want to cry.

That makes me want to cry.

It is sad...but her parents love her, they love each other and they are doing their best to help her. There are a lot of other kids for whom that is not true.

It is sad...but her parents love her, they love each other and they are doing their best to help her. There are a lot of other kids for whom that is not true.

Very sad, but I agree... it's a blessing that she was born into a family where she is obviously cared for. :)

Very sad, but I agree... it's a blessing that she was born into a family where she is obviously cared for. :)

That is so true. Her parent's looked like wonderful people and it is good that the community is reaching out to help them instead of shunning them like lepers.

That is so true. Her parent's looked like wonderful people and it is good that the community is reaching out to help them instead of shunning them like lepers.

Specializes in OB, lactation.

The article says she has Treacher Collins Syndrome. Discovery Health Channel had a show on it just lately. I think everyone that was profiled on the show had had a lot of reconstructive surgery, I know the article said she has a severe form of the syndrome but hopefully they will be able to help her out also.

Specializes in OB, lactation.

The article says she has Treacher Collins Syndrome. Discovery Health Channel had a show on it just lately. I think everyone that was profiled on the show had had a lot of reconstructive surgery, I know the article said she has a severe form of the syndrome but hopefully they will be able to help her out also.

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