Baby born w/o a face..WOW!!

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I recently ran across this story about a baby born w/ no face. She can see but she has to breathe w/ a trach and eat through her stomach via feeding tube. Here is her story w/ a short video clip below..

http://www.firstcoastnews.com/news/local/news-article.aspx?storyid=28372

I work in labor and delivery and we recently had a newborn with this syndrome. Interestingly this mom had several US, including high level scan with perinatalogy group, the only abnormal finding was poor visualization of the face, shortened jaw and increased amniotic fluid. She also had an amnio with normal karyotyping! The baby was surprisingly born with fused eyes and no external ears. The babies jaw was short and resulting in feeding problems. TCS was the diagnosis.

Yes, medicine is advanced but no one can guarentee you a 100% healthy baby. If you consciously decided to have children, you have to be a bit of a gambler.

Remember people honor your opinion as a nurse, you should know the facts before you throw them out there.

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I didn't mean to pull the plug on this thread. Just voicing my thoughts. I know a bit about birth defects. After 20 years my heart is still broken.

-Russell

Thank you for giving us a little piece of information about you, Russell. It makes my earlier comments seem harsh and I apologize for that. We don't know what each other have lived through or what we have experienced in our own lives. I'll remember to take that into consideration when I'm reading this board. Not everything is as it seems.

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Specializes in Critical Care.

Sounds like some of you want to bust Rusty but I have to agree. If it were my pregnancy and I found out before hand I would have chosen to abort, that is my decision and my right. For you bible thumpers I understand why you would want to keep the pregnancy but if it were me and I had the choice I certainly would not. My heart breaks for that child and parents, I wish the best for them.

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Specializes in CV Surgery Step-down.

I did a Google search and found several webites of children and adults living w/TCS. Amazing people living normal lives. Juliana's story brought the Christmas spirit to me, and I needed it.

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This family is truly amazing! This made me walk back in my children's rooms and just spend a few more moments of gratitude with them.

I truly thank God that she was born into this family, and I truly respect what the father said about knowing that they could handle it.

I wish I had a million dollars to send them so they didn't have to worry about how they would get back and forth to Miami for her surgeries.

They will definitely be in my prayers...

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