Is this upsetting to anyone else? - page 5

Good Morning America had a feature about a "miracle" baby that just went home from the hospital. She was 15 ounces and is now TWO YEARS OLD and finally going home. She is trached, vented, and... Read More

  1. by   wensday
    That is very sad.
    The doctors and nurses said 'never' because they didn't want this baby to maybe grow up into a child and an adult that needs constant care, that may not be able to articulate pain and feeling. That mum is in serious denial about her growing up and telling her story.
  2. by   ldh
    I just watched the (first) video myself....

    I wonder what was going through the mind of the nurse throughout that interview. She didn't get a chance to say much.....
  3. by   Becca608
    In my med-surg clinical, I encountered a 26 year-old woman that looked like something from a Nazi concentration encampment. She had bones where I had no idea that the human body could have bones. She had not spoken for years and the only reliability on what she was communicating came through her mother. This exhausted woman gave everything to her daughter and was glad to do it.

    The first time I saw her, a classmate was caring for her and I poked my head in and then ran as fast as I could for the employee lounge so I could cry. Where was there justice in all of this? Where was God? I could not care for her...I could never be an accomplice to continuing life where there was no life...and of course, I was assigned to this patient the following week.

    My instructor had me put a sign on the door to speak to her, not just her mom. I found a life-sized stuffed animal dog that was washable that she could hold so her elbow bones did not rub together. The young lady became more alert when the doctors called her by name. She became agitated when they tried to take away the stuffed animal. Her mom talked for hours about her daughter's struggle for life. When her mom had to leave, I stayed with and massaged her bony prominences with Aqua-Phor as I told her about my aging hound and my sick mother.

    Over days, I learned to watch her eyes. They were fearful when certain MDs entered the room, dancing when others came. Joy reflected when she heard the voice of a certain floor nurse or her mom. Happiness when she looked into the glass eyes of the puppy I had brought her and interest when I spoke of my own old hound.

    What did I learn from the experience? A week after I first saw this young woman and ran away wondering about the cruelty that kept her alive, I could only see the miracle of love that kept her going. That emanciated body was only an earthly reminder of the soul that it housed and that the soul there was intelligent, cognizant and experienced everything that I was able to feel.

    Most importantly, I learned to NEVER JUDGE a mother's capacity to love or the ability of her child to love back.

    Its very easy for us to watch the clip in the media knowing what we know as nurses and judge that woman and make predictions, but we will never know the miracles that will occur to others by observing her devotion to her child or the miracles that will occur by that childs joy in life.

    We are advocates for our patients. Not critics.

    peace to all, jediwitch
  4. by   LilPeanut
    Sometimes being an advocate for our patients though means that we do not prolong their pain so they can die a slow and agonizing death.
  5. by   Lisa17
    Well I know a person who has a handicapped son who is completely dependant on her. She is always more than happt to go out of her way to take care of him. She doesn't care if she can't go out as long as she has him. Nobody understands until they have someone in their lives that constantly need you. Yeah she has to worry about who is going to ake care of him when she's gone but she's also happy to have him. To have someone who loves her.
  6. by   ayla2004
    i have no experience of premature babies but the same medical tehnology that keeps older people alive if aggressively treated despite diminishing quality of life(and i k now who an i to say what is quality of life) but part of medicine/nursing is to not do harm
  7. by   RainDreamer
    Quote from Lisa17
    Well I know a person who has a handicapped son who is completely dependant on her. She is always more than happt to go out of her way to take care of him. She doesn't care if she can't go out as long as she has him. Nobody understands until they have someone in their lives that constantly need you. Yeah she has to worry about who is going to ake care of him when she's gone but she's also happy to have him. To have someone who loves her.
    This is JMO, and I'll probably get flamed for this, but that is so incredibly selfish of her.

    That child has to live a life totally dependent on someone else. Is that fair to that child? No. All because she wants someone to love her?

    That's good that she doesn't care if she can't go out and that she is happy to have him ..... but she needs to think about him and what is best for him, because it's not all about her.
  8. by   BittyBabyGrower
    I tend to side with RD....it comes to a point, as a parent, that you have to put the child's needs and comfort above what you want. That poor child has to be totally independent on her, and that is great that she wants to devote her life to that child, but is that child even capable of knowing what love is, is he/she able to give back love, how do you know that he/she isn't in discomfort all the time. As a parent myself, I don't think I could do that. Also, who is going to care for that child down the road, most likely not someone who takes as good of care of him/her as she does, most likely will end up in a home/institution. And to me, that is so sad.

    Sometimes you have to put someone else before you.
  9. by   nsjbm2
    I Guess It Depends On How One Defines Miracle.
  10. by   iHeartNICU
    I can't get the video even when typing in miracle baby.....just wondering is anyone knew a way I could find it.
  11. by   dawngloves
    Probably because the OP is 10 months old and that video was taken down.
  12. by   SteveNNP
    Thread closed: Original video deleted.

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