Need input and someone to talk to

Nurses General Nursing

Published

As I sit here today, with tears in my eyes, I need some advice and encouragement. I have recently been diagnosed with MS and feel everything is falling down around me. I also had cancer 3 years ago. I have been seeing a great neurologist who is trying to get me thru this. I had a flair up about 2 months ago....tired all the time, short term memory loss, tripping over my feet, ect. I started yesterday on Solumedrol 1.5 grams per day for 6 days. the home health nurse came to the house and set everything up. It took a little over an hr for it to run thru and I have been so sick since then I can hardle bear it, and have 5 more days to go. I have this terrible "metalic" taste in my mouth and nothing tastes good, not even water. I have the shakes and can't even write my name. I am taking Zofran for the nausea. The neurologist also prescriped Ritalin, to help with the memory thing, and an antidepressant Lexapro for depression. I really wanted to work while doing this, as I feel keeping busy is the best thing for me. I'm not a sit at home, do nothing person, but had to call off work for the next 6 days, as I am sooooo sick. Any words of wisdom would be greatly appreciated. If anyone else with MS reads this, please give me your input. I am going to a support meeting tomorrow. I consider all of you here great people with wonderful views. Spazzynurse, want your input also.

Thanks for listening

I am so sorry to hear about your condition. I must admit I don't know much about the disease. But we all need a little bit of help now and then. I just wish everyone was as motivated as you are. We have some people that you have to kick their butt just to get to come in and work on their scheduled day (just b/c their big toe hurts.) And for you to be wanting to go in just out of the love of your work is really something! Just remember to keep hoping high, I will be preying for you.

Up Vote Up Vote ×

I have worked with MS patients. PLEASE get counseling. Depression in your situation is very common and besides that, you need someone to talk to(besides us beautiful, smart, funny, vivacious people)

Up Vote Up Vote ×

Prayers of hope and encouragement for you (((hugzzzz)))

Up Vote Up Vote ×
Specializes in Med-Surg, Trauma, Ortho, Neuro, Cardiac.

Positive thoughts coming your way. I agree when you're feeling up to it a support group will help you find someone to talk to.

Up Vote Up Vote ×
Specializes in learning disabilities/midwifery.

I dont feel Ive got anything overly wise or constructive to add that hasnt already been said, just wanted to send you positive thoughts and a ((((hug)))) and tell you that your in my thoughts.

Be well,

Lisa

Up Vote Up Vote ×
Specializes in Med/Surg, ER, L&D, ICU, OR, Educator.

We had a female patient with her first "flare-up" of MS, a few years ago. She too, came in (out patient basis) for IV Solumedrol; she had terrible double vision, very poor muscle control (came in by wheel chair), slurred speech, memory loss. If my memory serves, she got a 5 day course, and we haven't seen her since (well, not in the hospital anyway. I've seen her out in the community, on the job. She is as energitic and productive...actually vivacious! as ever).

Hoping for the same outcome for you! {{{{{hugs}}}}}

Up Vote Up Vote ×

Niteshiftnurse, I'm so sorry to hear you're going through such a rough time. We are here to listen!! Sending positive thoughts and hugs your way...

Up Vote Up Vote ×

Sending positive thoughts & prayers your way.

Up Vote Up Vote ×

Thank you all for your kind words. You are really a great bunch of people. I just finished up day 5 of 1.5gram Solumedrol IV and really feel lousy......but this to shall pass. Went to a support group meeting monday nite and got a little information. Most people there had had it for 20-30 years. Will post more when I have more questions..........which I'm sure I will

Up Vote Up Vote ×
Specializes in Mostly LTC, some acute and some ER,.

(((((nightshiftnurse)))))

I am so sorry this is happening to you. I can't say that I know how you feel, but I know that it must be hard. If you ever want to chat with me, I have a really good ear. My email address is [email protected] if you want to contact me there.

Up Vote Up Vote ×

Rough, Rough, you have my support and prayers. There are other nurses here that have MS and I am sure they will be rushing to your aid. Perhaps they already have, I haven't read all the post.

Up Vote Up Vote ×
Specializes in Community Health Nurse.

((((((((((nightshiftnurse)))))))))) You are in my thoughts and prayers. :kiss

Up Vote Up Vote ×
+ Add a Comment