The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

Quote
"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

Quote
"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

Quote
"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

Quote
"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

Quote
"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

Quote
"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

Quote
"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in PCU.

Nerdtonurse?, thank you so much for such a lovely, thought-provoking article that means so much to those of us that see this all the time.

We had this poor little old man in our PCU a few years back. We had IVF, TPN/lipids, and drips all going . It was heartbreaking. This poor little man was third-spacing, weeping and oozing all over, nonresponsive...the works. They had moved him from ICU to us because the family wanted to be able to stay with him.

On my second night with this patient, I took the daughter aside, explained to her how dire her father's condition was, and how very little we were actually doing for him versus what we might be subjecting his poor frail body to, and how as his family they had a right to choose to withdraw or stop treatment they felt was not helping. We discussed the IVF/drips, their function, and the patient. The daughter then talked to the rest of the family and they decided that I should call the doctor for a DNR. He passed away 6h later, in his sleep, and very peacefully.

The family cried and thanked me. Apparently, they did not realize they could request that the doctor stop what he was doing. I was so blessed to be a part of that patient's care and his loving family. So often, the outcomes are not so humane. So often, the outcomes do, indeed, break your heart.

my wife just had a mesenteric arty bypass repair and just to see her in pain kills me, so please do not blame yourself, you did the best thing informing them of their options.

How very sad--I would have gone to my ethics committee with this horrible dilemma you were facing. I'm suprised your director did not come to the plate. Shame on them. You did the best you could to give tender care to this poor women.

I have faced this many time in my career as well, it can be a cultural thing very oftem, I have found also unspeakably, someone wants to keep their family member alive to get the monthy social security payment the first of the month. I am not kidding.

The doc had no backbone. How sad for a critical care doc, in the wrong area IMO.

Been there before, it is so hearbreaking

Specializes in ICU.

That brought tear to my eye. This situation is what burnt me out of the ICU and after a year of pondering, has lead me into hospice.

Specializes in NICU/L&D, Hospice.

This is the true meaning of a nurse. God bless you.

Specializes in Hospice.

Many nurses come to hospice after similar experiences. Don't forget that you can be an advocate for hospice from ANY environment. Even when I went to Telephonic Triage and Disease Management for a period of time I STILL shared hospice and told people to make sure they family knows their wishes. I also encourage people to PUT IT IN WRITING - I have seen it bypassed BUT at least you tried. Blessings to all who care for their patients from the heart...

Specializes in Trauma, ER, ICU, CCU, PACU, GI, Cardiology, OR.

words can not convey the true sentiments of the beauty that this article represents...thank you for sharing it...aloha~

great written makes me speechless.

well, wish you all the best

The very first time I read this, it was through blurry eyes filled with tears. Not only is this a heart wrenching story, it is also BEAUTIFULLY written. After being so moved, I decided to submit this article (with credit, of course) in with my preceptorship journal. Needless to say, I was not the only one who enjoyed it. I received a 100 on my journal! So THANK YOU in more ways than one! :bow:

Specializes in I/DD.

Wow...that is all I can say. That is a tragic story that was wonderfully well written. Thanks for sharing.

Specializes in Med-Surg.

I hope you dont mind, but I felt I had to share this with my friends. It was so beautifully written and heartwrenching, especially for anyone who might have lived something similar.