I wish I was a gifted writer to write a profound article about being on the receiving end of care.
My son was hospitalized for the second time this year for dka. This was a very mild case and really wanted to come home. His anion gap was just high enough that they wanted him to stay. So I agreed.
He got there at 1600. I was working so my husband brought him in-I met them in the ED. They don't mess around with dka so we went back to a room in less than 5 minutes. They got vs, BG, labs, IV started etc. First red flag was the float nurse rambling on about what a crappy place it was to work (I have my badge on, too-plus I am dealing with a sick child). I almost had to tell him to SHUT UP. I let it go.
revolving door of residents and the finally endo comes in. This was about 1800. Still ok. tells us of the plan, very nice man. Tells us one more CBC/BNP to make sure heading in the right direction. Child is NPO at this time. Last meal was lunch.
2100, they tell up we are not going home, get the "don't worry your pretty little head about it" from the resident. Starting to get upset that this "doctor" will not be straight with me. Did not dawn on her that as a nurse AND the parent of two Type 1s that I know the drill as far as anion gaps, bicarb levels, pH, etc. Send hubby and son #2 home.
Sick child is hungry. Has not eaten in 9-10 hours. they have no food for him. I have to outside to go back into the main hosp to get subway-only thing available at this time.
Every time child needs to void, I have to ask for a urinal. Found the used ones under the sink in the room (wth?)
0300 "Admitting team" comes in to complete the admission. Point out to them that child has not had ordered fluids running for about 3 hours. "Oh!" I guess we need to fix that. duh,
Then we have a random 4 unit dose of insulin and no one can tell me the rationale as to why child is getting it. it is not a mealtime or SS dose. Do you give meds that you do not know why? I do not.
By 0530 cont glucose monitor is alarming for low BG (67) call for food They bring him an appropriate snack to bring it up, but I wanted breakfast for him. I get a menu, call dietary and get a lecture that ED pts don't get fed no matter how long they are there. I explain that my child has been admitted, there just were no beds available. They tell me the nurse has to place the order.
Now it is 0645. SHIFT CHANGE! call HUC for help and get yelled at again that he can't order a tray, they just send whatever up. I explain that is not what I was told-continue to get fussed at. Asked to speak to Charge so I could get food for little boy who has eaten very little, slept very little and been stuck a bunch of times. 0830. no one has shown up.
I call ped endo on call as the last time I was there was a HUGE fiasco and they asked me to call them if I had issues. get the same nice gentleman Dr. from the night before, at this time I am crying. I am crippled from trying sleep on a stretcher. I wish someone had taken a picture of the two of us curled up on this stretcher using his hoodie for a pillow and the cloth chucks pad as a cover (no blanket or pillow offered).
Doctor tells me he is going to get me out of there. Child eats stale turkey sandwich that they rustled up for him at 2100
Now I ask about insulin coverage for the food he did eat. They only have SS ordered.called endo again
Straw that broke the camel's back this time-day nurse does not understand that child has eaten, gave her the carbs, mind you doctor's orders are in. Finally she understands that he is getting 5 units. Went to give it. IM. just started to cry again. and asked fro d/c papers.
Charge nurse comes in and I tell her it is not worth it to speak with her. The problems are so systemic no where to begin. She saw the urinals on the floor, I told her about the food issue.
My issue is this: how do nurses and providers treat patients and families this way? I cannot believe that I am the exception to the rule. Not only was my child offered anything to drink, as a courtesy, not one person asked me how I was doing. I was visibly upset. What kind of nurses are being turned out these days?
I have been a nurse for only 5 years, but I am older. I have compassion for pts and family. I felt totally abandoned.
I just wonder for those of you that have been on the opposite side of nursing, have you had good experiences? This is the second time in 3 months and the first time was worse than this one. there has been one or two nurses that were great, but the majority acted like they couldn't care less that my child hadn't eaten in 9 hours, that he needed breakfast, how to give a SQ insulin shot.
Sorry this is so long, but I feel so defeated that the place that I work at, treats patients so poorly. And of course there is nothing to be done. Hollow apologies. I hope that someday, those that had little concern for my child, do not have to go through what I have to go through and get let down by one's own colleagues.
I am supposed to have surgery there later in the summer and now I am worried.
If you lasted this long, thank you. Please remember that that mom, or child, or grandma, or brother, is a person. They are scared. They are uncomfortable. Please help someone like me next time.