My Crazy Month

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Over the past month my grandmother has been sick, really sick. About 7 weeks ago she started to cough. She thought it was a side effect of one of her medications, and brushed it off. The cough didn't go away, and she kept getting more tired. One night she went to bed and as she described, she started to "squeek." The following morning she went to the doctor. A chest x-ray and lab results later, she was diagnosed with pneumonia. She goes back home, and over the next week she takes the antibotics as percribed, but does not get much better. On her week follow up she goes back in, and her WBC count which had been at 20, was now up to 23. She was admitted to the local hospital.

(Little bit of back-ground on gma: slightly obese, diet controlled diabetic, recently diagnosed with advanced renal disease--found because of high potassium levels, over last couple of months have been well controlled with diet and meds--, history of MI nearly 3 yrs ago, numerous TIAs some of which have resulted in to small strokes, luckily none have affected her at all...thank the Lord){at home she is completely independent, able to do all ADL's by herself}

She was started on IV antibotics, breathing treatments, and the usual pneumonia protocal. Expected to go home in a couple of days (this is on a Tuesday). Noticed over the next few days that her feet are swelling more - so that usual. The coughing is not getting better, and her WBC's are bouncing up and down, and her renal function is slowly declining. On Sunday she is still not getting better, they do a thoracentesis and get around 480mL off of the opposite lung that she has the pneumonia on, and recieves 2 units of blood. She starts to feel better. Monday she gets worse, requests that I and my mother become her POA's because she knows that my mother and I will follow her wishes. Tuesday I get a call from her case worker (all patients in this hospital get a case worker) stating that she is being transfered to a Mercy because she has gained 5 lbs in water weight over night which is a grand total of aprox 30 pounds in one week. She has CHF, and her kidneys functions are worsening. The local doctor is unable to handle the case anymore and is sending her to the specialists up at Mercy.

GREAT.....

Arrive at Mercy on the telemetry and she is admitted under a nephrologist who is working with a pulmonolgist, infectious disease doc, and a cardiologist. The team combinds, sees her, and the plans are set into motion.

Over the next week she starts to improve, she has aquaphoresis to remove some fluid off of her because the diaretics are too hard on her kidneys, she is on IV antibotics, recieves 2 units of blood. She is seeing physical therapists to get her up and moving, and then things start to go downhill, AGAIN.

The aquaphoresis line clots off, they do ultrafiltration, great, 19 pounds of fluid off, but the problem starts with the Heprin that she was getting. Her body decided that it didn't like it, and started in on HIT (Heprin Induced Thrombocytopenia). Her platelet count is 38.

CRAP......

Do scans and x-rays and ultrasounds, to make sure she has not started to bleed out. Okay...were good. Not so fast... She spends a night, all night bleeding because her platelet count is down. After all that is done, I find out much much later that she has a blood clot in her leg.

Kidney Doc states she is okay to go home as far as he's concerned (this is last Tuesday) but the other doctors have to sign off first. Platelet count is only up to 48. Thats a no go. WBC is finally doing good, Kidney functions start to look like they might be on the mend.

Ok...so we wait for the platelets to come back up.

Monday I go in and visit her, she is lethargic, doesn't know who I am or who my mother is (gma is a/o x4, is always happy). Nurse states that she was up and went to x-ray and that she was ok this AM, and that she just had a really busy day. OK, that could explain it. Mom and I go out for a while, come back, she wakes up a little bit, but is still really sleepy, and not herself. I make a note to call and check on her before I go to bed.

Not 2 hrs later I get a call from the same nurse telling me that gma has been transfered to CCU that her BP has dropped to 70 over nothing and that she probably has sepsis, her kidney functions have declined, and that her potassium had sky rocketed.

OH ****

Now she is on continous dialasys, she is able to maintain her BP by herself without meds, her labs are starting to even out some, she is on IV antibotics, has had an additional 2 units of blood (this makes 6 units in the month that she has been in the hospital) and she is slightly starting to improve.

Problem is....

She told me last night....she is ready to go (to the Lord). I told her to give the dialasys a couple more days, and see how she feels, but she is tired of the constant battle going inside her body.

Our family has been gathering around. My mother, my three sisters, my gpa, my aunt, my uncle, and now my cousin is taking emergency medical leave from the air force to be with her.

***AND TO TOP IT OFF***

My grandpa on my dad's side (parents are divorced and not talking) is going to probably have his foot amputated here in the next day or two due to infection secondary to diabetes... he has been fighting the infection for two months, hospitalized a couple of days ago, and now this news...

I could really use some support now.

Thanks in advance for all your posts.

Specializes in Psychiatrics.

After being in the hospital for over 8 weeks, gma was released into a SNF facility today. She refused long term dialysis. She is still able to get up and walk, for now. Her bloodwork continues to be an issue, (she has had 12 units of blood in the 8 weeks in the hospital), her kidneys were slowly improving are slowing starting to fail again now that she has refused anymore dialysis. She is still in CHF. Her spunk and fire is dwindiling away. She is getting tired. My mother, my gpa and I have discussed hospice, but my gpa thinks that hospice means giving up, and states that since she is still able to get up and move around, that she is still able to fight. Mom and I know that gma's body is giving up. Her kidney failure will not go away, nor will her CHF, nor will her blood problems.

Gma wants to go home, and I hope and pray that she will be able to make it there. She is in the nursing home for skilled care and rehab so that in hopes of one day soon going back home with gpa.

The thing is, for every good day that she has, she has at least one bad if not worse day following or previous to it. That is her cycle. A good day followed by a bad day or two followed by a good day or two.

I will continue to hope and pray against all odds that she will make it home and that she will be with us for years to come, but I keep in the back of my head the reality of it all, gma won't make it much longer. :cry:

Hang in there. Start looking into the possibility of hospice at home if needed and if grandpa wants that. It may mean a lot to your gram. jonesecho

Just read your story. You poor lady! Being in the hands of God, is not a bad place to be. ((((((((((((((((elizabeth)))))))))))))))

your grandma is an amazingly strong lady to have made it through all this. i hope she can go home to be with her husband. continuing to say prayers for you and your family. ((elizabeth)):heartbeat

Specializes in Psychiatrics.

THANK YOU ALL FOR YOUR PRAYERS

My Gma is doing well in the SNF facility. She is continuining to do her exercising, and seems to be getting stronger each day. She is bound and determined to be going home to Gpa.

Although her battle with the chronic renal failure, CHF, and blood issues are far from over, she continues to fight each and every day.

Again, I thank each and every one of you for your prayers. I do not believe she would have made it this far without them. THANK YOU.

Specializes in Psychiatrics.

:crying2:

I got a call from my mom about 6 hrs ago. We had been noticing that my Gpa F had been acting kind of strange lately. He had been going to the doctor alot more frequently, making more trips into town. When questioned how the doctors appointments went, he was extremly vague, and would skirt around the question. Mom and I knew something was up.

Mom spent several hours with Gpa today, and Gpa finally fessed up, he had been going up to the doctor for radiation therapy. Mom asked if was prostate (because his father died of it) and he said yes.

His only reponse to that was, "I'm getting the radiation to shrink the tumor."

Mom and I only know that Gpa has prostate cancer and that he is getting radiation treatment. We know nothing else.

From what I can guess, he has been getting radiation for a good month, and has probably been diagnosed for at least 2 months.

So.....

In the past 4 months.....

My Gma F has been in the hospital for 8+ weeks...nearly died...got better....and is in a nursing home....

My Gpa M died

and My Gpa F now has prostate cancer....

and this all in the past 4 months....

So...I could you some spare guardian angles and some prayers......

Thanks to all who send out prayers

Hugs and prayers to you and your family.

Rather than hospice, maybe you could look into palliative care.

Palliative care is not the same as hospice care. The goal of palliative care is to relieve the pain, symptoms and stress of serious illness – whatever the prognosis. It is appropriate for people of any age and at any point in an illness. It can be delivered along with treatments that are meant to cure you.
Here is a link to a site that explains more and tells how to find such care in your area:

http://www.getpalliativecare.org/

You will be a better nurse for all that you're going through now, but it's a tough way to get the education. Your family sounds like the kind that pulls together, and that's certainly a plus.

Blessings on all of you. love.png

I didn't mention this in my earlier post, but both your grandfather and grandmother would be good candidates for palliative care. If this is explained to them--that it's meant to give relief from pain, stress and other symptoms and the patient doesn't have to have "given up"--it might sound like something they'd want.

Keeping you and your family in my prayers.

Specializes in Psychiatrics.

If only they would listen to that....lol

My gma would be much more receptive to that than my gpa would. 11 1/2 yrs ago my uncle went into pallaitve care, for pain control, he had cancer, and ended up dying there. For my gpa, he believes, and that belief is stuck in his head, that pallitive care or hospice means that we are giving up on them....regardless if we are or not actually doing that.

My gpa is a stubborn man.

My gma is doing pretty good right now in the nursing home that she is in. Her kidneys are limping along, she still is in heart failure, but the medications that she is on is helping.

My worry now is my gpa. I do not know how long he has, because he still hasn't offically told me that he has cancer, my mother is the one that broke the news to me...so...I can only wait and wonder....and pray....

And all prayers are welcome...so thanks again for listening and reading

Specializes in Acute Care Cardiac, Education, Prof Practice.

Thinking of you Elizabeth. Hope your life will even outs soon and give you an emotional break.

Tait

Specializes in Psychiatrics.

Well here's an update....

Last night my Gma ended up back in the ER then admitted to our local hospital. She exhibed signs of CHF, pneumonia, and possible infection. Her platelet counts have never been normal since she had the HIT, and she had a hypotensive episode after she had a nosebleed.

Her lungs were coorifice then she started to get wheezes, so neb treatments were given, antibotics were ordered, as well as a chest x-ray in the nursing home. The only problem was that the chest x-ray would in all likeilhood not be read until tomorrow (today). She had a slight fever that was starting to elevate.

So...we took her to the ER by private car.

Got more blood work, the chest x-ray, echo cardiogram, blood cultures x2, more breathing treatments, some more tests...and whala....she was admitted....which made me feel better.

So...this am she is feeling better...more alert...and we will hopefully have some answers to the question as to why she started to decline...

Chest x-ray did not show postitively pneumonia...she always had a bit of CHF, blood work came back about normal for her....still waiting on the blood cultures....

so...its another waiting game....oh how I love the waiting game.....

Specializes in Psychiatrics.

Well...gma is still in the hospital. Doctor called me and mom into the hospital today to ask us and gma what we wanted to do as far as treatment. She declined dialysis again. She declined to be transfered out of the small hospital she is being treated out now. (I am in agreement with this, as is my mother) The doctor believes, as do my mother and I, that treating her at a bigger hospital may not be to her benifet because it may just be causing more stress to her, and not be helping her in the long run. So for now, we are going to treat her as aggressively as we can, but keep her as comfortable as we can here at our little hosptial, and go day by day, hour by hour until something changes to make us re-evualuate our decision.

Today she looks worse than ever. But she is still able to track and keep up with the conversation. Her breathing is fast and slightly labored, she has no energy, but her urinary output is better than it has been. She is not in fluid overload, but her kindney values are declining. She had an episode of chest pain yesterday that was not cardiac, and was treated with a GI conctail, so the end may be closer than I wish to imagine.

She talked to the chaplin. We have told her that we will be ok once she goes. My uncle, her son, will be waiting for her once she passes, and we will miss her, but she won't hurt there.

So.....Only the Man Upstairs knows....maybe she will boucne back...maybe not....its up to HIM.....

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