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So, got diagnosed last month, double mastectomy last week, drains out tomorrow. What bugs me the most is I can't get comfortable with the admittedly mild swelling just in front of my armpits! ARGH! I have always slept on my side, and just can't get adjusted around the really odd feeling (some numbness, some swelling so I can't flop my arms around).
Anyone who has been through this, when do I get my armpits back?
JBudd, I had no idea. You're a champion with wicked humor intact! i wish you the best in your recovery. I sewed a slightly above normal sized boppy pillow for a friend who was recovering from her mastectomy. She used it to wrap around her back and places her arms on the pillow's "arms." She says she loves it, and I have seen her use it a lot, although it is possible that she is humoring me and my sewing efforts.
As to the pain, she had relief from massage and saw a lymphedema specialist. A different friend who had SNB had no numbness, but this friend had an ANB, and still has numbness.
update: got the last of the drains out today, but I was right, there is some lymph swelling going on in the right pit. Still very tender to touch! Will be doing PT to prevent lymphedema. Surgeon says this should reabsorb soon, if not we'll do an US to check for clot since is so near the portacath.
Well, at least the LEFT pit is working again!!
Hello,
So sorry for your diagnosis. I had a breast reduction and actually had the surgeon remove breast tissue that had developed under my armpits. He tried the best he could to leave the lymph nodes alone, but I'm sure some were affected. I had major swelling under my armpits after the drains were removed. I actually had him take a syringe and remove a lot of fluid. He couldn't believe it. Not sure if you can have them drained... but that might help you feel more comfortable.
Take care, best wishes in your recovery.
update: got the last of the drains out today, but I was right, there is some lymph swelling going on in the right pit. Still very tender to touch! Will be doing PT to prevent lymphedema. Surgeon says this should reabsorb soon, if not we'll do an US to check for clot since is so near the portacath.Well, at least the LEFT pit is working again!!
Excellent! Glad to hear that left pit has made its "return."
gail323
17 Posts
I am 11 years out from a double mastectomy. The first few months, I spent a lot of time in the recliner because I was able to get myself positioned more comfortably. I agree with the others - find some small pillows and make yourself comfortable. It does get better.