What do you think of fibromyalgia? - page 9
What do my colleagues here think of fibromyalgia? It's sufferers seem to mainly women. I'm very skeptical about it. Is it a psychological disorder? I don't mean to dis anyone here, please forgive me,... Read More
Apr 12, '14Joined: Dec '13; Posts: 2,494; Likes: 18,167It's annoying when, a thread is 11 pages old, a whole interesting discussion has occurred. Then someone pops in and attacks the original post, without bothering to catch up on where the discussion has gone.
If you want to have open, productive discourse, then read the first 3 or 4 pages of this thread and see how it's done. I've been very impressed by most of the discussion here. Try to emulate the folks that made this conversation interesting and enlightening.
Don't just call people ignorant fools who ask a question, ask for opinions, give their own perspective. Try, instead, to bring some valuable information to the table, like so many have here. Going for the scathing slam dunk doesn't foster understanding or build bridges.
Apr 12, '14Occupation: CSW/Med Aide From: US ; Joined: Mar '09; Posts: 32; Likes: 73I have it, and I can assure you, for being a "fake" disease, it hurts awfully darn bad! That said...I find it difficult to participate in online support groups for fibro because there is just SO much complaining and not a lot of interest in what to do to get better/improve the symptoms. I do realize that a lot of it is venting, but it gets incredibly old and it isn't an approach I feel is productive.
The absolute best advice I got for dealing with it was from my old GP who first diagnosed me. He told me that I MUST keep moving at all costs, that if I didn't keep moving I would lose the ability to do so. I have followed that advice, and seeing what happens to other sufferers who don't has proved him right in spades. After a lot of trial and error, the meds that work for me are a low dose of nortriptylin combined with doses of tramadol as needed. Heavy-duty narcotics do nothing for fibro pain, at least for me. I wind up dopey, sick to my stomach....and still hurting! The nortriptylin has been a godsend. I still hurt, but it's nothing unbearable, and I'm back to doing a lot of the things I used to do.
So, long story short- yes, it does exist. However, I do understand where medical professionals get the idea of the stereotype, given the way that many sufferers conduct themselves. I completely get that being in pain all the time does absolutely nothing for your temperament- believe me, I do!- but there comes a time when you've got to buckle down and decide to do everything you possibly can to better your situation, and it seems like there are a lot of sufferers out there who just want a magic pill to fix things for them.
Apr 12, '14Joined: Feb '14; Posts: 209; Likes: 383redmielita, thank you. You said it so very plane and simple.
Unfortunately I think it is the overall attitude of the country. So many want a quick fix given to them. The so called entitlement generation that actually covers people from all the generations.
Those who hang tough no matter their problem, and search for the true answers and get the information out, like many of you have here, you are the educators. Thank you
May 11, '14Joined: Sep '08; Posts: 29; Likes: 17Quote from EmergentSMART lady, you are! I injured my lower back at an early age (24) slipped while cleaning a shower and herniated the L4-L5 and into S1 discs. Instead of running to surgery, my Chiropractor/Ortho MD hospitalized me for 8 weeks, in 35# of pelvic traction and kept me 'snockered' on pain meds and tranquilizers the whole time. ALL discs 'relaxed' and slipped back into place. I then went to PT for 3 weeks to a 'save your back clinic' specially for nurses/doctors and learned how to build my core, how to do the right exercises for lower back and what to do immediately, should I feel any 'twinges' of lower back pain again in the future. That was in 1976.Last year, my chronic shoulder, neck stiffness turned into a exquisitely painful pinched nerve in my R shoulder. I was in horrible pain. Before that, I had figured that this chronic stiffness was just a part of getting older.
I couldn't live with the pinched nerve, so got to a chiropractor. He worked on me, and prescribed exercises. He said my shoulders were rolled in and I needed to pull my chest apart and realign everything. I also sought a massage therapist who works in a PT clinic. He also gave me very helpful exercises, and taught me so much about proper body dynamics and alignment.
I stuck with it and now, about a year later, I'm 100% pain free and all that neck and shoulder pain is gone.
Our way of living is unnatural. We spend hours in cars, using computer mice, slouching on couches, etc and so forth. It has a cumulative effect over the years. It has a ripple effect throughout our bodies. Add to that the chemicals we are bombarded with from our environment and our poor eating habits, and the stress of our modern pace of life, and that spells trouble for our bodies and minds.
In 2010, I finally blew out L1-L2 and was MIS-diagnosed by one ER doctor and then a clinic PA, so that I ended up with cauda equina syndrome on top of the herniation and by the time I got to a Chiropractor who would see me without any health insurance (2 months of constant pain) he took one xray and sent me to the Emergency Ortho Clinic and I was told IF I didn't have emergent surgery I would be in a wheelchair the rest of my life. I feel lucky that the Microdiskectomy helped me walk 100% again and I again have feeling in my pubic area and right thigh. Because of the time lapse involved, I do have residual burning pain most of the time, but I walk 3-4 miles/daily and when things get too painful, I see the Chiropractor who, in a few visits, can get the searing pain to let up some. I rarely take anything for the pain.
Before I would allow any neck or back surgery to be done on me, ESP if young and in a medical career, I'd try Chiropractic 1st for a month to see if they can help. I bought 30 YEARS, before my old back had to be chopped on, and only then because of which discs were involved PLUS the bladder involvement. Old L4,L5 &S1...they still support me!
Hardest thing about ALL of it is learning to WAIT until you have adequate lifting help...esp in the ER. We stay busy, we work short-staffed LOTS, and we are harder-headed and think, "just this once" or use a sheet, etc to assist us...please get good help and save your necks & backs!
May 23From: GB ; Joined: May '18; Posts: 1I was shocked after 10 years of joint pain with no diagnosis to be told it's probably fibromyalgia! I didn't want this label!!!
one year later when things got a lot worse (entering menopause) I was actually correctly diagnosed with Ehlers Danlos syndrome. I'd been subluxing many joints several times a day but that doesn't show on mri etc.
ive found out that many with EDS are misdiagnosed. I wonder if other illnesses are misdiagnosed.
and yes I also think some very unfit people do have pain that get this label to.