In Bed with Dying Patient

Sometimes, a family member's behavior is so clouded by the grief and shock of a loss that we must be courageous enough to practice outside the box. Nurses Announcements Archive Article

My patient had been ejected from his car after hitting black ice. His prognosis for any recovery was a hairs-breath above zero. We knew he would never again walk this earth.

The family was large and streamed in and out of the room. All were polite and respectful. The wife dutifully provided explanations and "stability" for the large family and the throng of visitors.

From the periphery, I observed her. She kept her emotions in check, only occasionally tearing up. It almost seemed she were "hostessing" the "event". But her slow-motion movements belied a simmering grief that needed to be processed.

Having worked in ICU for ten years, I knew there was nothing humanly possible to change his course. I knew soon his heart--the heart that beat for so many years in unison with the woman--would stop, and the body that warmed her would grow cold, and the soul that united them and breathed life into her, would slip away.

The family and friends were "there" for the wife but they seemed unaware of the need I saw simmering just beneath her expression. And as the people kept calling I could sense a growing need within her. She began seeking my approval about letting anyone else in. I told her these would be the last. There was something we needed to do. The final visitors let the others who had gathered in the waiting room know that visitations would now cease.

I led the woman into the room. I rearranged the mechanical lines of life support and gently pulled the husband over to one side of the bed. I let down the rail.

"You need to lie beside him," I said.

She looked at me with utter astonishment. It was as if I had just told her I could bring transport her back to the day before when her husband was home and alive and this place never existed. Her tears streamed down her cheeks. She cried and cried as I helped her in beside him.

I assured her she would not be disturbed by anyone, for any reason. She could emerge from the room when she was ready and could stay as long as she needed. I would guard against any disturbance.

I covered her with a blanket and put chairs against the bed as a reminder to her that the railings were down. I handed her the call bell and closed the door and curtains behind me.

Some weeks later I received a letter from her. She had difficulty describing the torrent of emotions that enveloped her while she lay with her husband that final afternoon of his life. But she said that being able to fully embrace him provided her comfort and peace that would warm her for the rest of her life.

It's so simple, yet too often we lose focus on what really matters.

Have the courage to let your humanity lead the way.

Specializes in Mixed Level-1 ICU.

Thank you for your kind words.

You are a wonderful nurse. I personally salute your understanding, creativeness and sincere compassion, that is so rare or almost a no no doing here in Micronesia (islands in western pacific ocean).However i dont find anything so wrong about it.Thanks alot.................You go dear nurse..........big thumbs up. Yeah ! top shape.

How beautiful to have such warmth and comapassion towards patients. Im constantly being told that kind of attitude in the not a good one to have in the nursing profession, i start school this year and after hearing that i strarted to wonder if nursing was really for me. After hearing there are nurses out there that share my feelings, it makes me confidant that not all nurses look at it as "just a job".

Ditto! And I'm glad to know that there are still other people who want to go into this profession for the right reasons--it gives me hope.

Specializes in none.

i understand! when my husband was dying with cancer, he was in great pain. verbal communication was almost impossible. he seemed to appreciate the little physical gestures such as applying lotions to his hands - which we often did to each other while one of us was driving.

touching could be the last sensory "functional".

mrs e

Specializes in Med/Surg, ID, Oncology, Ortho.

Dear Mrs. E,

Thank you so much for sharing your story about your husband, and I'm so sorry for your loss. :icon_hug:

During my mom's last days, whenever I got her to sit on the side of the bed and we were "knee to knee" holding each other, she would always rub my calves gently with her foot. It was almost like she was trying to comfort me; her last precious act of motherly love.

I agree that touch is so important coupled with a soft voice for our family and patients during their transition.

That was an awesome thing to do. People are often lost and don't know what to do when things like that happen, Sometimes people just need to be told to "lay down". Thank you for the story, brought me to tears.

Wow..I actually broke and stopped reading at the point were you asked her to lie there with him....it brought many emotions to the surface and had to stop for just a few moments to recuperate....you are a very very kind person. What you did was so much more priceless than you could have imagined. Thanks.

I am a new nursing student and your article is the reason I want to be a nurse. I want to blend my skills and compasion to what is best for the patients AND their families. Thank you so much for sharing this story - It is an inspiration to someone who is embarking on her life's dream of becoming a caring and skilled nurse.:redbeathe

This is what I love about nursing... Leading our humanity just to comfort the bereaved...

Thank you so much. I am in tears reading this. Thank you for being a nurse---but most of al thank you for being human!:icon_hug:

I work on a Hospice Unit. This person was not MY patient but I knew them from a previous unit as a student nurse. While still a student, on preceptorship, I encountered this family again but in a palliative setting. One evening, the husband now a 10% on the PPS scale, the wife was curled up on the inroom couch, I asked her is she wanted to curl up beside him. She looked shocked at my suggestion as the tears began running down her cheeks. I re positioned her hubby so she could fit behind him in the bed. I placed pillows behind her and raised the bed rails(leaving the feet on her side down). I them got a couple of blankets from the warmer and left them alone.

He passed that night and she said that spending that time with him was one of the most precious gifts she could ever have.

Being able to make a difference - we deal with death and dying more frequently than most. Knowing that this experience is individual and helping them through this journey is what makes palliative/hospice so special.

hugz

This is where our skills, knowledge, expertise can't replace basic humanity...the essence of a nurse is combining all.