Published Mar 20, 2008
SteveNNP, MSN, NP
1 Article; 2,512 Posts
Here's a link to a video made by a NICU family, about the 99 days spent with their Trisomy 18 baby, Eliot. It gave me new perspective, as I have had a tough time understanding a family in our unit right now who has been requesting all kinds of advanced treatment for their trisomy 18 baby.
Stephen
elizabells, BSN, RN
2,094 Posts
That was very sweet and sad, and I did indeed cry my eyes out.
The difference, of course, being that Eliot went home in a short time on NC with tube feeds. Eliot did not need complex urogenital surgery, complex bowel surgery, or complex heart surgery. I don't think we have to just let T18 (or 13, or whatever) babies starve to death on day 2, but neither should we be beating the hell out of that little girl the way we are.
SusanKathleen, RN
366 Posts
Wow. I pray those two parents have lots of kids.
flightnurse2b, LPN
1 Article; 1,496 Posts
god bless that family and their beautiful baby angel. that video was so very touching. thanks for sharing, steve.
Skeletor
601 Posts
That was heartbreaking
EricJRN, MSN, RN
1 Article; 6,683 Posts
Wow, Steve. At least you tried to warn us...
Yeah, I was watching it in the living room on my laptop, and my mom starts crying just LISTENING to the story (she couldn't see the photos).
preemieRNkate, RN
385 Posts
Wow, no kidding about the crying.
Gompers, BSN, RN
2,691 Posts
We've all said it before, and I'll be the first to say it again...
Why do the nicest parents always have the sickest kids???
It's just not fair. What a wonderful family that little boy had, to cherish his short life and accept him for what he was instead of trying to "fix" him like so many others do? I hope that they are blessed with many healthy children in the future.
Thanks so much for the link. I always love a good cry!
canoehead, BSN, RN
6,901 Posts
I thought I was too cynical to cry over a buh-buh-buh-baby...(gulp).
I dare ANYONE to watch that video and not cry. I think it was the father's voice, especially when he said how proud he was...
I made it right to the end. I'm pretty cynical about certain stuff, which I won't share because you'll all think I'm awful, and I was sure this wouldn't get to me. Oh, but I was wrong.