Published
That was very sweet and sad, and I did indeed cry my eyes out.
The difference, of course, being that Eliot went home in a short time on NC with tube feeds. Eliot did not need complex urogenital surgery, complex bowel surgery, or complex heart surgery. I don't think we have to just let T18 (or 13, or whatever) babies starve to death on day 2, but neither should we be beating the hell out of that little girl the way we are.
We've all said it before, and I'll be the first to say it again...
Why do the nicest parents always have the sickest kids???
It's just not fair. What a wonderful family that little boy had, to cherish his short life and accept him for what he was instead of trying to "fix" him like so many others do? I hope that they are blessed with many healthy children in the future.
Thanks so much for the link. I always love a good cry!
SteveNNP, MSN, NP
1 Article; 2,512 Posts
Here's a link to a video made by a NICU family, about the 99 days spent with their Trisomy 18 baby, Eliot. It gave me new perspective, as I have had a tough time understanding a family in our unit right now who has been requesting all kinds of advanced treatment for their trisomy 18 baby.
Stephen