As some of you may know, my dad has not been doing well for the last six months to a year and has been the topic of two of my articles.
I am here to humbly ask you for information regarding hospice. I know of hospice and have had two grandparents in hospice at the end of their lives. To be fair, I was not a nurse at the time and the different view from inside vs. outside the system has left me with more questions than answers.
A bit of situation info:
My dad is end stage COPD with spine compression fractures. He is DNR. He wishes to die at home if possible and, even when "healthy" suffers from mucus plugs that cause rapid desaturation and deterioration to such a point that it has resulted in his last several hospitalization/intubations.
I know that you cannot offer medical advice, but it is more advice in the way of sources of information I seek. It is also information I seek from those who guide patients and families.
When contacting various Hospice, are there any questions that I should be sure to ask?
Are there loopholes in the system, etc, I should be careful to know of?
Anything I should watch for?
Do you know of good sources of information that may be found online or in book form?
Any recommended reading?
To say that I am...concerned...would be an understatement. I worry that a mucus plug could cause his death to be truly horrific as any sub-lingual medications may not act fast enough to relieve the anxiety and, well, feeling of drowning that would be the result. The thought of my mother bearing witness to this is enough to make my skin crawl.
Absolutely any information provided would be so very much appreciated.
Thank you very much for your time and attention,