Need input and someone to talk to

  1. As I sit here today, with tears in my eyes, I need some advice and encouragement. I have recently been diagnosed with MS and feel everything is falling down around me. I also had cancer 3 years ago. I have been seeing a great neurologist who is trying to get me thru this. I had a flair up about 2 months ago....tired all the time, short term memory loss, tripping over my feet, ect. I started yesterday on Solumedrol 1.5 grams per day for 6 days. the home health nurse came to the house and set everything up. It took a little over an hr for it to run thru and I have been so sick since then I can hardle bear it, and have 5 more days to go. I have this terrible "metalic" taste in my mouth and nothing tastes good, not even water. I have the shakes and can't even write my name. I am taking Zofran for the nausea. The neurologist also prescriped Ritalin, to help with the memory thing, and an antidepressant Lexapro for depression. I really wanted to work while doing this, as I feel keeping busy is the best thing for me. I'm not a sit at home, do nothing person, but had to call off work for the next 6 days, as I am sooooo sick. Any words of wisdom would be greatly appreciated. If anyone else with MS reads this, please give me your input. I am going to a support meeting tomorrow. I consider all of you here great people with wonderful views. Spazzynurse, want your input also.

    Thanks for listening
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  2. 33 Comments

  3. by   CCL"Babe"
    I wish I had words of wisdom for you. I empathize with your wanting to work and being unable to due to illness. I just wanted you to know that your post touched me and that I will be thinking about you. Best wishes.
  4. by   gwenith
    Best wishes - hang in there and concentrate on getting better. Wish I had more wordso f wisdome for you too.

    All the best and ((((HUGS))))
  5. by   Katnip
    I too, wish I had something profound that will help you get through this. But I can't even imagine the what you're going through right now.

    As for working is there something you can do for your unit while you're at home. When I was rotating in the ED, a nurse who was off for a while due to illness compiled a a notebook of all IV push drugs and facility policies regarding them. The hospital turned them into tear-sheets for each unit. Then she started to create a "quick and dirty guide" to the ED for new grads with all the highlights of protocols. It sure beat slogging through massive binders trying to find what you need.

    Niteshiftnurse, you're a strong person and you will make it through this. My thoughts and prayers are with you. Of course you know any time you need help, you just come here and you'll find it.

    {{{{{HUGS}}}}}
  6. by   ST_NURSE_MLD
    You sound like a hard worker!! Sometimes it's okay to not work so hard...

    The support group should help. Allnurses.com is much like a support group.

    Chin up....
  7. by   rnnurse2b
    My dad was diagnosed with MS about 4 years ago, and to be totally honest with you, it has not been a fun ride. He is now wheelchair bound for about 4 months now after having the flu totally attacked him and took all muscle tone. He has been in a VA hospital for these last 4 months where they are doing lots of therapy with him everyday, hoping that he will soon return back to his house. He was taking Betaseron, which is a self shot given every other day, and is now on something new...im not sure of the name, but i think it starts with an A. Let me know if you have any other questions or thoughts.Best wishes for you!
  8. by   SmilingBluEyes
    I am SO sorry about your health crisis. How awful for you. I agree, a support group may be helpful. I can't say I know how you feel; I do not. But I can Say My heart GOES OUT TO YOU and I will have you in my thoughts. Take care and hang in there; there will be better days along with the bad ones.
  9. by   zambezi
    rnnurse2be, the medicine your father is on is probably avonex...niteshiftnurse, stay strong, i don't really have any words of wisdom, but i send you positive thoughts...take care...
  10. by   BadBird
    {{{{{{{{{{{{{{HUGS}}}}}}}}}}}} I am so sorry you feel this sick. As far as the solumedrol goes, I had that when I hurt my back, the metalic taste will go away, I turned a pretty bright pink color from it too, that will also go away. Just tell yourself that a year from now on this date you will be healed, happy and on vacation. Being sick just plain sucks but what got me through it was me telling myself over and over again that this is temporary, I looked ahead and Thank God, I am healthy today. Another thing about the solumedrol, I didn't sleep for weeks when I was on it, shaky too, but the outcome was worth it, I no longer have pain and am back to work full time without any restrictions. Hang in there, it WILL get better.
  11. by   ava'smomRN
    I hope all goe well for you. Im not to familrar with MS bu i did a research paper on it and i know there are lots of medicines and thrapies ou there for you. I hope you get beter, and i hope thngs work ou for you. My best wishes are to you
  12. by   mother/babyRN
    I think all we can do is be here to "listen" to you...I am so sorry that you are experiencing such an awful and difficult time, but there will be light at the end of the rainbow...I guess it will be the journey that will be difficult....One day at a time...{{{{}}}}
  13. by   P_RN
    Nightshift nurse. How long have you been having symptoms? Is this your first flair?
    The solumedrol is hard on the body indeed. When I lost vision in my left eye twice I became so discouraged. The steroids worked but I almost hated to use them. I understand fully.
    Some small suggestions. Please have someone with you while you are doing the IVs.
    Wear shoes not sandals or flip flops.
    Don't be too stubborn to accept help.
    Use a cane to keep fingerprints off the wall, table, woodwork etc.
    Wear a medicalert bracelet.
    Avoid hot showers and hair dryers.

    Check the national site. The have some good stuff there.
    http://www.nationalmssociety.org/Brochures.asp

    Learn everything you can. Theres a town forum webcast on June 23, 2003.
    http://www.frontiersinmedicine.com/ms/

    We can do it.
  14. by   mystc42
    I am so sorry to hear about your condition. I must admit I don't know much about the disease. But we all need a little bit of help now and then. I just wish everyone was as motivated as you are. We have some people that you have to kick their butt just to get to come in and work on their scheduled day (just b/c their big toe hurts.) And for you to be wanting to go in just out of the love of your work is really something! Just remember to keep hoping high, I will be preying for you.

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