this hit too close to home...

Nurses General Nursing

Published

and i am still trembling...

and learned something very scary about myself today.

my mil died in 9/09.

dad, who lives in a ltc facility, has naturally been profoundly depressed, and only wants to spend his days in bed.

so my husband comes home yesterday, telling me that dad is going to be eval'd for hospice next week.

now, i know he has not been losing weight, and to my knowledge, has not had any new/serious dx.

my sister-in-law, who is poa, announced she is having the folks who cared for mom, eval dad as well.

i keep on asking "why? why?"

i also ask, "is he on antidepressants? has he had a psych consult?"

hubby doesn't know...

BUT calmly states they will give him morphine til he dies.

the family is on board with this, since they want to see dad with mom, once again.

by this time i am yelling," but that is MURDER!!!"

and knowing there are hospice agencies that are highly unscrupulous, i am in genuine panic.

i insist on talking to the cn at the ltc facility, but hubby is skeptical, since i have made a few, very vocal stinks over the years that have upset the family.

one time when mom was in a 'leading' hospital, she got a massive stage iv decub that resulted in her needing myoplasty.

i had called up the cno at this hospital and threatened to sue their sorry a$$es off.

sister-in-law/poa was very upset with me, since she was "good friends" with lots of these folks at the hospital.:rolleyes:

when mom was receiving hospice services, she was being very poorly managed and i didn't hesitate to let the nurse know.

as a result, i ended up taking over most of her care. (she would only take meds for me)

hubby reluctantly calls the ltc facility, with me on the other line.

he asks the questions that i have, w/the cn ending up addressing my concerns.

yes, dad has been on antidepressants, has gotten numerous psych consults, but evidentally, has been aspirating on foods, even after diet being changed to puree.

so today they are getting all the directives in order (dnr, dnh, no-fdg tube), and will have hospice eval next week.

siblings have been going in and basically, force-fdg his meals, which have resulted in sev'l hospitalizations r/t asp pneumonia.

what bothers me the most, is today i totally know i would have called authorities, IF he had received hospice illegitimately.

i was so distraught, i pm'd an admin on here, eliciting guidance/feedback.

and i am still shaking, knowing that ultimately in my heart, this would have been highly illegal and i couldn't let dad die unless there was a physiological basis.

so now, i know dad will soon be with mom once again.

and i know that my 23 yr marriage will not end, since i didn't have to notify those in authority.

thank you, dear God.

it really is terrifying to know that i'd be capable of doing what is right, even knowing the devastating consequences...

and am so very grateful, it didn't come to that.

thank you for listening.

leslie

Specializes in Care Coordination, MDS, med-surg, Peds.

I am sorry for all you are going thru. i know it is very hard to lose someone you love so much.

I am confused, tho....many are put on hospice and this lasts for months bfore they pass. Hospice does so much more than just give "morphine till they die". That happens, of course, but I should think it is the exception instead of the rule. I definately would question the MS till you die orders...

Leslie,

I'm sorry for your loss.

otessa

Specializes in Peds/outpatient FP,derm,allergy/private duty.

Condolences to you and your husband, Leslie. I know you will always cherish those night time hours the two of you spent together. :redpinkhe

Specializes in Gerontology, nursing education.

I am also sorry that you and your family have gone through so much, Leslie. Then again, you were blessed with your in-laws and they were blessed with you. May your happy memories be a comfort to all of you at this time of loss.

{{{{{{{{{{{{{{{{{{{{{{Leslie}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

oh leslie, i am so sorry for the loss of your beloved dad.

i wish i could say something to comfort you.

prayers of peace to you and your family.

(((leslie)))

love,

freefalr

Specializes in Gerontology, nursing education.

I remember a hospice nurse who was, in my opinion, a bit too aggressive about morphine and too cavalier when I questioned her about the order. Thankfully I had another nurse who had my back and, together, we made a complaint to the DON who may or may not have passed our concerns along to hospice.

Specializes in paed and peri-op.

I'm with u on this les.may jah give u strength

thanks again, all.:redpinkhe

he was started on hospice on his b'day, 3/20/10...

under 'terminal debility'.

at first the orders were prn, but i knew how fast that would change.

once he started getting scheduled mso4 (they waited a week), we lost him on 3/29.

truly though, he was ready.

the amt and frequency, were reasonable...

nothing outrageous at all.

due to it being holy week, then Easter, he can't be waked/buried til mon and tues

overall, my husband and his siblings are doing 'ok'.

this is a time for lots of love and patience.

my heart breaks for them all, but know that time can and will, heal.

with love and gratitude...

leslie

Specializes in Med-Surg, Home Health, LTC.

What does Dad want? I would start with this to find my solution.

Specializes in Med-Surg, Home Health, LTC.

My apology for not reading through the threads before I replied! and my sympathy to you and your family~~

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