The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in Mixed Level-1 ICU.

It may vary from state to state, but in our state, you have to have a "terminal within 6 months" diagnosis (just like hospice) before the doc will write a standing DNR.

Wow, is that true? In which State do you live?

But in this case, the patient was clearly "terminal" and yet the DNR was, essentially, worthless. The term "terminal" can be defined and perverted in a thousand ways.

Specializes in Peds.

:heartbeat Thanks for sharing your heart with us. I was also moved to tears...

I wonder if the daughter was really being selfish or was she holding out for a miracle that she thought could come. Please don't get me wrong, this was tragic and the patient's living will should have been honored. It's just that sometimes we forget that folks outside of nursing/medicine don't understand the progression of events that lead to end of life. We've seen it so many times that we can almost predict it. But they can't because they don't have that experience. And, truthfully, IMHO medical advancement has contributed to blurring the lines. A trach/vent sometimes works and sometimes it's the top of a long, horrible slippery slope. Many times patients are thought to be beyond hope and they somehow defy the odds. So is it selfishness or is it hope, however unrealistic, that is fueled by faith, media, and even doctors who won't admit to families they can't save everyone?

I have no answers...only questions. I do know this, you should have no guilt and I hope that your spirit is lifted by all of the supportive posts and hugs you have received. All the best to you. - Candice

Specializes in Haematolgoy.

well done on writing a very eloquent and poetic piece of your nursing career. wishes of patients often seem to be ignored, forgotten or just lost along the way, eh? i dont know if it could be seen as a good or bad thing, but over here, neither patient nor family need be consulted as to a DNAR decision.

as for failure, i dont think so. as long as you put your heart in to caring for someone, irrelevant of any circumstamces, i would agree with everyone else that you've succeeded in your role as a nurse...

G x

gosh. what a story.

it made me cry. really.

and i agree to them, it was beautifully written.

thanks for sharing it.

Thank you so much for this story. I am half way through my rn degree programme and I recently had a stage 4 breast cancer patient--who wanted to go to hospice but the medical team, not the oncology team, wanted to debride the 'monster alien' growing out of her chest. She cried so much and said it was time for her to go--her mother agreed yet her brother said that she could not leave the hospital for hospice until this was done. Thank god she finally signed a DNR because if she codes, her chest will collapse, she will explode and we will kill her. Thank you so much for your beautiful words. I have just finished writing my own will, using these words as a template. Thank you for caring. You have touched alot of people with this post.

I don't know how to thank you for sharing your story. I know this was difficult but I plan on sharing it with everyone I Know thanks again :yeah:

Specializes in Breast Cancer, Arterial, General Surgery.

Thank you for writing about your patient, it was so moving.

I especially liked the way her wishes had been inserted to add poignancy.

I understand that the daughter didn't want to face the pain that her mothers death was going to bring, but I don't know how she can live with the brutality that was inflicted through her desperation.

My own mum died peacefully after suffering with Dementia.

It was her decision many years ago that we abided by.

I miss her

Wow, I'm not even sure what to say. I think you are impressive I don't think you failed her. Thank you for your story.

That daughter was only thinking of herself. I'm sure shell never comprehend what a horrible way her mother passed.

Thank you again.

Wow that is just something we would only like to see in a movie. Heartbreaking!!

Specializes in Mental Health/School Nursing/Corrections.

This is one of the main reasons I do not work in emergency medicine or ICU any longer, thank you for this deep expression to remind me of why I made this choice. Fabulously written!

Specializes in med-surg, cardiac care, pacu.

My heart goes out to all the patients whose last wishes for their own death are not honored. Your writing skills are equal to your nursing care and compassion! Thank you.

Specializes in RN, BSN, CHDN.