Would you rather have a child said to be SS or abort? - page 5

This is a question one of my patients had asked me.Very difficult one. She had gone to a genetic counsellor as her doctor ordered but feels she doesn't want to keep the baby because of associated... Read More

  1. by   eedirin26
    I know this might be a bit late, but just had to post on this thread.

    I am AS - meaning I carry the sickle cell trait. I have always known this and I have seen the effect of the disease both on close family members and friends. It can be very painful when going through a crisis and can lead to complications and long hospital stays for those with full blown SS but, the degree of the disease manifests itself differently in different people. I do not know of anyone of either my friends or family members that would rather not be alive today even though they have SS. The important thing to know is that people do go on to live normal lives with the disease.

    Having an arbotion will not solve the problem as she will always have the risk of having a baby with SS if she is with a partner that is also AS.

    An example of someone with SS is T-Boz from the group TLC who has not let having sickle cell anemia stop her from achieving what she wants to do in her life.
  2. by   SmilingBluEyes
    Originally Posted by imenid37
    I have to agree w/ you. I would also add that as nurses on either side of this issue, you need to put your own opinion aside. I remember a couple who gave birth to a child w/ multiple defects which were incompatable w/ life. The mom and dad wanted whatever time they could have to cherish time w/ this child who died shortly after delivery. Many of the staff and docs wanted to know why they didn't abort when this was the inevitable end. In fact, the couple felt pressured to abort. Like it or not abortion is legal. It is the woman's option, not the nurses' or medical staff's to impose upon a patient, nor is it our professional role to propagate the prolife side at work. All we can do is make sure the patient is educated and accept her informed decision. Many times, both sides are so tied to their own viewpoint on this very polarizing issue that they forget it is up to the patient, not the staff. BTW people do and don't regret either decision that they make. This is human nature. It doesn't make one side wrong or right. It is simply the way life is.

    This post says it all in my book. Well said, Imenid!
  3. by   KellNY
    Quote from cvierling
    We don't have the right to "dispose" of what seems to fall short of our expectations.
    Actually we do, otherwise we wouldn't be having this conversation.
  4. by   SmilingBluEyes
    Quote from KellNY
    Actually we do, otherwise we wouldn't be having this conversation.
    Legally, in the USA we do. But ethically and morally, well, that is up to the individual to work out with his/her spiritual and/or religious beliefs to guide them, as well as the severity of the situation they are dealing with.
  5. by   lvs2nrs3535
    friends wall which says, "God only gives us what we can handle. Sometimes I wish he didnt trust me so much." I agree with this 100%. Maybe some persons faced with this dilemma KNOW that it is more than they could handle. God forbid I have another child, (I was NOT one of those happy pregnant people, full placenta previa, sciatica, untold misery. Gained about 80+ with each child. I try to take each indivicuals circumstance into consideration, and most of all, not to judge. Because, there but for the grace of God, Go I.)
    Thanks KristyBRN

    Quote from NurseyBaby'05
    I'm in line with Tx. So many of those tests are known to have fairly high false positive results. Also, sickle cell anemia is a chronic illness that can be managed. So is Type I Diabetes, but would most people abort for that? Ultimately, it's up to the patient to decide what she wants to do. She had better do it quick. Five months along is getting a little late for both her and the baby re: termination. If it were me I would do some fast research re: reliability percentages for genetic testing, among other things. Personally, I would keep the baby regardless of what any outcomes would be. I'm obviously meant to be that particular child's mother and I don't think I would be entrusted with anything I can't handle.
  6. by   KellNY
    Quote from SmilingBluEyes
    Legally, in the USA we do. But ethically and morally, well, that is up to the individual to work out with his/her spiritual and/or religious beliefs to guide them, as well as the severity of the situation they are dealing with.
    Agreed. But no matter what the moral beliefs or what option is chosen, the right still exists.
  7. by   SmilingBluEyes
    But some would argue that abortion is not a right, but a crime, according to their moral or ethical code. Therefore, it's not considered a "right" in their definition or belief system. No one here is arguing if abortion is legal or not----but what is right, well that is very much debatable.
  8. by   cvierling
    That's a good way to put it - I know what the law is, but I don't agree with it ethically or morally.
  9. by   RN4PatientCare
    I just saw a story last night about "ss" being cured through bone marrow transplant!

    Now, if she went ahead and aborted then found out a cure became possible, could she live with that?
  10. by   TrudyRN
    Years ago, sickle cell patients were considered terminal but I guess there is better treatment today.

    I think each parent must decide the fate of his or her child and it is not my place as a nurse to do it for them. That said, I sometimes think that sick children are given by God so who are we to refuse them. On the other hand, I see that, once the child is past childhood and is maturing physically and the parents can no longer care for him or her at home, the sick person has to be placed in a facility. There he is subject to all the horrors for which these places are often known - from bedsores to rape, from being ill-fed to Heaven only knows what else. It's so hard when these children are little but even harder when they are grown. I sometimes think it was more humane in the long run to encourage parents to let them die of starvation/dehydration in a corner of the nursery, as was pretty commonly done not so very long ago. Just typing it gives me the willies and I know it must have been awful beyond words to have to hear these little ones scream themselves to death while ignoring their needs for nourishment and other physical/spiritual/emotional care.

    There just are no easy answers.

    Like should rape victims be forced to carry to term the baby conceived in a rape? Should they have to raise these children?

    Dumb question: Why call it SS, not SCD or SCT? (disease, trait)
  11. by   TrudyRN
    Quote from Suesquatch
    pearl, your sources are purely anecdotal, not scientific. Further, http://www.catholicsocialscientists.org/ is scarcely unbiased.

    You are welcome to your own opinions, but not your own facts.

    I'm out of this, though, or this will devolve into a discussion about abortion rights, not the specific situation in question here.
    Suesquatch, you didn't really think Planned Parenthood was going to say otherwise, did you? Plus, most of their references are pretty old.

    At any rate, I know you had your reasons for aborting and it was the right decision for you at that time. Personally, I think there is a time and place for everything, including AB. Not that I think women should abort any time they wish, for it is actually murder in my book. But we live in an imperfect world so we have to sometimes make imperfect choices.

    I have a problem with women who use AB for birth control and have repeat AB after repeat AB. I have seen this occur in more teens and young women than I care to count.

    I hope you're ok. :wink2:
  12. by   Maternity Girl
    It seems strange to me that abortion is being suggested in her case. I worked for an OB/GYN office for years and we sent many women to genetic counselors for SSA and never did any of them suggest aborting the baby. They just educated the patient about the disease and taught them what to do when the baby was born. SSA isn't something worth aborting your baby over. Especially at five months. She had to of had her Level II u/s at the same time and saw it was a healthy baby. Plus, like everyone said, these tests aren't 100%.