Home health pediatric...demanding parent tips??

Specialties Private Duty

Published

I am full time on a home health pediatric case. It's physically demanding--there are frequent dirty diapers and the kid weighs 150 pounds or so. So it's transfer him to bed, change him, back to wheelchair--five times in five hours yesterday.

Anyways, the family expects the nurses to be always interacting with their child. I understand their point of view--they want maximum stimulation with this child so hopefully the comatose state goes away.

But they want me massaging, doing range of motion, talking, reading to, rubbing the head of, singing to, stretching...something all the time. For 12 hrs. Yes, they let me eat and have bathroom breaks but that's about it.

I'd just transferred the patient to bed, undressed him, inserted suppository, started tube feeding, put splints on feet... And I sat down and was catching my breath. Mom comes in with a fat stack of papers for me to read to her kid, "instead of sitting idle" because "nurse so and so would do this!" she cheerily suggested. She demanded my cell number. She didn't even ask if I was comfortable with it. Since she will get it anyway--I'll have to call her on my cell sometime, I gave it to her. And I read to her kid.

I don't want to tick her off, but I can't do this all day. I feel the family has unreasonable expectations; plus I'm not good at one-sided conversations. And my throat gets sore talking so much.

How can I tactfully set boundaries and appropriate expectations?

Why isn't the family reading to the child? Everyone knows that there are tons of stories about comatose people recognizing voices. It's the parents' voices that the child needs to hear!!

Specializes in Pediatric.
Why isn't the family reading to the child? Everyone knows that there are tons of stories about comatose people recognizing voices. It's the parents' voices that the child needs to hear!!

I agree.

Specializes in Pediatric.
Why isn't the family reading to the child? Everyone knows that there are tons of stories about comatose people recognizing voices. It's the parents' voices that the child needs to hear!!

Maybe they could make a tape of theirselves reading.

Specializes in Peds(PICU, NICU float), PDN, ICU.

I have a family who made "family tapes"for the child to listen to. It's tapes of them just being together at different times and tapes of family from out of town reading. It really does seem to calm the pt.

Specializes in Transitional Nursing.

Not to sound like a jerk.....but what exactly is the parent doing during these 12 hours?? I feel like if it were my kid I would want to be involved. I have a problem with her throwing stacks of page at you and saying to read to her Child....why wouldn't she want to sit by his bedside after his medical needs were met? I know she probably has other responsibilities but I just can't imagine expecting someone else to do what I view as a mothers role.....

Specializes in Pediatric.
Not to sound like a jerk.....but what exactly is the parent doing during these 12 hours?? I feel like if it were my kid I would want to be involved. I have a problem with her throwing stacks of page at you and saying to read to her Child....why wouldn't she want to sit by his bedside after his medical needs were met? I know she probably has other responsibilities but I just can't imagine expecting someone else to do what I view as a mothers role.....

Most of the cases I've been involved with (whether for a day, month, whatever) that's how it is.

Specializes in Pediatric Private Duty; Camp Nursing.

I was a substitute on a case where the mom went ahead and gave meds and started feedings on her 20 year old MD daughter, but expected me to play with and talk to her the entire shift. She enjoyed musical light-up baby toys. That's it. It was sooo boring. I ran out of things to say to her as she was non-verbal. I resented the mom doing all the nursing care as if she didn't trust me to do it, why in the world was I even there? Mom kept requesting me, apparently she liked me, but soon I started refusing, for the same reason I'm not a preschool teacher. I just don't have the personality to maintain that level of interaction. I felt bad but I had to draw a line somewhere.

Specializes in Pediatric.

I agree I don't either. It doesn't make us bad nurses. It's frustrating that agencies won't stand up to parents like that.

Well, things seem to have worked out.

I was already doing books on tape! Great minds think alike. The family likes that. The mom gives me a bit of a break--I just try to look busier when she is around. I switched to saving my charting for when Mom is around. Seems to have (mostly!) done the trick--in addition to books on tape, singing, telling client what I'm going to do...etc.

Thanks for all your advice and support!!

Specializes in Pediatric.

Glad it's working out. Looking busy when the parents are around is always good. It just stinks when you "have" to do that.

Specializes in PDN; Burn; Phone triage.
I was a substitute on a case where the mom went ahead and gave meds and started feedings on her 20 year old MD daughter, but expected me to play with and talk to her the entire shift. She enjoyed musical light-up baby toys. That's it. It was sooo boring. I ran out of things to say to her as she was non-verbal. I resented the mom doing all the nursing care as if she didn't trust me to do it, why in the world was I even there? Mom kept requesting me, apparently she liked me, but soon I started refusing, for the same reason I'm not a preschool teacher. I just don't have the personality to maintain that level of interaction. I felt bad but I had to draw a line somewhere.

Late in replying but I had one of those cases as well. OMG. There is only so many times I can play with the same five light up toys over eight hours and not want to kill myself. Even the kiddo was obviously getting bored. So I asked the parents if I could take her outside/for walks/whatever in her wheelchair. Rented some videos from the library that my other patients who were her level cognitively seemed to enjoy. Suddenly family is REQUESTING me. Errghhh.

I thought it was a nurse's job to provide medical care - not provide constant entertainment and the like. Parents still need to be parents and spend time with their child.

+ Add a Comment