Published
I work private duty, for an agency, and have gone to school with several patients, and have never had an experience like this before. I attend preschool with my 5 year old patient who is trached and vented, at a school that has had many students with their own nurses before. My patient has a one-on-one aide at the school who works with him, and I manage his other needs (suctioning, managing the vent, gtube feedings, medications, transfers, etc).
This student uses a dynavox-type device for communication, at home and school, and is still learning how to communicate. He is completely nonverbal, but cognitively intact and very intelligent. His parents work with him, very diligently, for hours each day, so that he can communicate effectively. When we get back from school, his parents want to know how he did.... Sometimes he gets distracted, doesn't answer questions, becomes disengaged,etc. so I make brief notes for my report to the parents about exactly what he said at school, so that they know how he is communicating and interacting with his peers and the teachers/aides. I also do some of my narrative nursing notes and other documentation (vent checks, 24 hour flowsheet) at school, as I am required to write separate notes for the hours he is in school. I keep my notes inside of a storage-type clipboard, always in my possession, so there is no risk of accidental HIPAA violation.
I was confronted by his teacher and then his principal. They told me that I am not allowed to give the parents any report regarding what happens at school. I explained that I am not evaluating the teacher or making any kind of educational assessment, just reporting exactly what happened during the school day and what the student said using his assistive communication device. They continue to maintain that I am not to discuss what happened at school with the parents, that is the teachers job. (That's fine, but the teacher does not communicate these things to the parents, and of course they ask me, who was there by his side all day, what happened at school).
Yesterday, the teacher approached me again because she saw me "writing," and told me that I need to be sure I am only writing 'nursing things' down.
I have been to school with several patients, and I have charted at school. Again, I am not charting about the lessons taught, or the content of the teaching, or anything like that. Only my regular documentation, and exactly what my patient says using his communication device. I have never heard of anything like this before! Did I miss something? Can the school dictate what I am allowed to document in my nursing notes and what I report to the parents? Again, it is not just the teacher... the principal of the school told me the same thing.
I would appreciate any advice on this... It makes me extremely uncomfortable, and I wanted to ask some of you more experienced nurses and school nurses if there is something I missed.
(I tried to correct my paragraphs, and they just aren't showing up after I save my post. Please forgive....)