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Babies we'll never forget

NICU   (2,280 Views | 9 Replies)

2,106 Profile Views; 67 Posts

Ten months ago a beautiful baby was born. He was 25 weeks, got NEC, lost most his bowel,had an ostomy, got trached and had a C-Line. He "circled the drain" and pulled through so many times we all thought he was a miracle. Through all of that he was neurologically intact, social and affectionate. He loved to play. His mother never bonded with him and when he was 7 months old she gave birth to another 25 weeker. A few days ago he died. His liver couldn't hold out any longer and his kidneys shut down. For such a heartbreaking time it was beautiful. He was held and rocked and kissed for nearly two days. There were so many touching moments that it would take a book to tell them all but I will just say that I have been proud of the people I work with before but never prouder than this moment. There couldn't have been more love even if his own mother had been there. He left this world knowing love and as much as it hurts I am enriched to have been a part of it.

Good night sweet prince.

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22 Posts; 1,122 Profile Views

I too work in the NICU and can totally relate to how this little guy touched so many lives in such a short time. It's amazing how their personalities and will to fight are inherent at birth. We've seen a few stories like yours, and no matter what the outcome is, I've never regretted my choice to work in the NICU. Keep up the good work!

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gypsyatheart has 18 years experience and specializes in Case Mgmt; Mat/Child, Critical Care.

705 Posts; 6,850 Profile Views

How wonderful that you were part of this little one's life. I'm glad you were there with love, support and caring. Our job is so hard sometimes, yet often we are the only ones bringing love to these little ones! My prayers and thoughts are with you and your "little prince"!

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2,399 Posts; 11,965 Profile Views

Oh boy! Too many to count! The micro twins that ended up with shunts, the many 23 weekers that just held on and on, the big term birth asphixia babies I've had to disconnect from vents.... :crying2:

All those special little guys that have gone home, in one sense or the other.

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9 Posts; 639 Profile Views

I have so much respect and admiration for nurses like you who work with little ones. It takes a special person with a truly compassionate heart. Your story demonstrates just that. It was very touching and reminds me of why I want to become a nurse. Keep up the good work!!

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nurseiam has 15 years experience and specializes in NICU, PICU,IVT,PedM/S.

150 Posts; 3,651 Profile Views

I have been in the NICU for over 5 years. My most memorable is still my first. A 23 weeker born on the night my orientation staryed in the unit. I was in awe....I took care of her most of my residency then picked her up as a primary after. She had 5 gut surgeries, sepsis, CLD, ROP, .........She went to the connecting childrens hospital @ 9 months. When I went to visit her the first time I just cried! I went to see her often. When she was getting ready for discharge at about a year I had the most memorable conversation with her mom. When I asked if she had ever considered withdrawing support she said no, she had always left it in Gods hands. She told me that she knew from pregnancy that this baby would be different...special. She was very active in her church, after the baby was born her husband also became very active in the church. It brought them together and made them a complete family.

She spent very few days at home here and there but was always readmitted for dumping. She died of multi-system failure at 15 months. Her parents called to the NICU so I could go say good-bye.

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KRVRN is a BSN, RN and specializes in NICU.

1,332 Posts; 11,979 Profile Views

The ones that really stick in my mind are the term asphyxia babies that we let go. Especially the ones where the parents hold off making a decision and subsequently the baby weans off the vent. Then to let them go we have to withhold food and fluid. Disconnecting the vent and letting the baby go in minutes to an hour is easier than watching them dehydrate for days and days. We NICU nurses don't do Hospice stuff well, we just aren't used to it.

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437 Posts; 4,976 Profile Views

My "god-daughter" born 6 weeks premature, abdominal organs outside of her body, spina bifida and hydrocephalic. Delivered naturally in an ER that "DOESN'T DO BABIES! (was supposed to be c-section at the Uof M hospital)

This doll baby was not "supposed" to survive. God worked incredible miracles and she is now almost 3 years old, brilliant and beautiful!! She may never walk, but she will touch hearts in a VERY special way!! I was so blessed to be able to be at the hospital when she was born -- spent countless hours at the children's hospital with her mom -- love that girl!! Miss her terribly -- we are now 10 hours apart -- used to live 10 minutes from her. Thank God for e-mail and digital cameras!!!!

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VivaLasViejas has 20 years experience as a ASN, RN and specializes in LTC, assisted living, med-surg, psych.

8 Followers; 142 Articles; 9,785 Posts; 251,891 Profile Views

I'm crying as I read through these posts :crying2: What an incredible job you all do!

As a float nurse, I can handle literally anything in adult care.......although sometimes I go home at night and cry for the 50-something patient who coded during what was supposed to have been a simple appendectomy, or the young mother who was just handed a terminal breast CA diagnosis. But I could never in a million years work in a NICU or PICU......sick and neglected babies are my weak spot, and I'd be a basket case within six months! :uhoh21:

Bless you all for your strength and your courage in caring for these precious little ones. :kiss :nurse:

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10 Posts; 948 Profile Views

I was reading all your messages. I am a junior this year in a BSN program and my daughter just gave birth to a darling little girl at 28 weeks, Nicole Christine. She weighs 2#12 ozs., and is only 14.4" long. Have not done my maternity rotation yet, so went to library and got a good book on Premature babies written my a NICU MD and a nurse practioner, it has kind of scared me about all the things that can go wrong. My daughter is not handling this very well and I have been very supportive. is it normal for her to not seem to want to call the NICU? She does visit every day, though. is there something I should be doing to help her cope better? Grandbaby is doing ok, she is under bili lights which I understand, but is having hard time tolerating her feedings, they are feeding her through a syringe on a pump. I feel uncomfortable asking too may questions since I am only the grandmother and not the parent, and am afraid because of new regulations they won't tell me too much!

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