I started nursing school
full time this year so I am totally exhausted. I have 5 children too. Well this year the staff at my son's school are managing Austin's diabetes. Last year was his first year at the school (it is a private school) and they never took the time to find anything out. His teacher last year just talked to me and we worked everything out. Probably not the appropriate way to do things, but that's what we did last year and things were ok. This year, the secretary is unbelievably difficult, condescending, and critical. Austin's blood sugars have been swinging like you wouldn't believe and I have been a terrible time managing things. He's going from HI glucose (above 600) to 40s. I am trying my darndest to get everything under control, but I am not always reachable by phone. I understand the school's concern, but unfortunatley I cannot be up there at a moment's notice and they have been totally unhelpful about learning what to do to manage the highs and lows. Yesterday was the worst. I was flipped out completely. He had a blood sugar of 342 at 9:00am and by 10 something (sorry don't have the exact time in front of me he was 47. He dropped down to 23 and almost passed out in the school. This has never happened to us before in 5 years of dealing with diabetes 40s have been the lowest I have ever seen. The school couldn't get a hold of me because my cell phone doesn't work in all areas of the school. They were afraid to call 911! Gees oh petes, use some common sense if the kid looks like he is going to pass out err on the side of caution call 911. I would much rather have them call 911 then leave him there because they were unclear of what the meaning of "unresponsive" means. My husband eventually got up there. He is supposed to be going on a pump, but won't be able to start until October 23. I tried to explain to them that we can't just go on a pump right now that there is training that has to be done and it's just not that simple. I tried to explain to them that the pump will not fix his diabetes that it is only a treatment. Yes, it will help, but they will still have to deal with highs and lows and that yes, this might happen again. They can't understand that even though he is 10 he can't manage every aspect of his diabetes care. They don't seem to comprehend that even if he was an adult if he was that low he could not take care of himself. Well they sent this note home with my husband that said due to the inconsistencies with his blood sugars he cannot return to school until we have a note from his doctor explaining why his blood sugars are so inconsistent. I was so angry I could scream!!! I wanted to say it's called DIABETES!!! It's not the give 'em some insulin quick fix people like to believe. I am not a bad mom. I am doing the best I can with his blood sugars. He eats the same thing for breakfast and lunch every day. The secretary actually said this to my husband "You might have to homeschool him because even the public schools
wouldn't put up with this" OMG!!!! Well I called the American Diabetes Association and they said if the school receives any public funding then they have to follow the guidelines for the public school and they cannot kick him out of school for diabetes. Well they do get funding. They get buses from the public schools, teacher consultants, and lunches. Apparently the public school nurse called them and is working on retraining them and educating them and I think she chewed them out, but I am so upset I want to just cry. I have been shaking. I am taking a heavy class load. I have waited 10 years to be able to do this. We have invested a lot of money in this. I can't just quit and I am angry that they expect me to. Diabetes shouldn't make me homebound. They should be able to learn. They don't want to learn to treat this. They want me to come up there every time his blood sugar is out of range. I am so frustrated. Can any of you help me with resources or anything with my son's rights and their expectations as well as what is reasonable to expect from me. Thanks so much!