I am a new nurse (just passed boards on Jan 11) and my husband was just diagnosed with Chiari Malformation. The neurosurgeon finally saw him/us on Jan 18 - the original dx was made by his ortho Dr back in mid-Nov. It took us 2 months to get an appointment with this guy and he is no where near a Chiari expert - he does 1-2 Chiari cases per year.
Our problem is the surgeon recommended my husband have surgery in 2-4 weeks and we at this point would like to seek out the best surgeon/neuro hospital. How long will it take to get in to see someone who is really expert in this field. Can we wait? The office manager at the most experienced surgeon's (has done 300+ Chiari surgeries) office told me that we have some time and that I must remember my husband has had this brain herniation all his life.
Has any one had any experience with this malformation?
Any insight would be appreciated.
I believe it is seen a lot more in the neonatal period as it is a birth defect. It sounds like the surgeon who's done 300+ is the one you'd want to go with, and I'd certainly support that. You may want to see if you can consult w/ a pediatric neurosurgeon, too.
I wish you both well!!
Last edit by prmenrs on Jan 23, '06