Quote from Nikki69
Hi everyone. I'd just like to get some information about hypothyroidism. My TSH level was 301. I guess that's pretty high-it freaked my doctor out. I am currently on 200mcg of synthroid daily. I take it in the morning on an empty stomach like I was told to, rarely skip doses, and I still feel like crap. I've always been a little bit overweight, but now I just FEEL like a stuffed pig. My hair is thin and brittle still, nails the same way. My face is puffy and I cannot stand the cold weather-it's like it "hurts" to be in the cold for any length of time. I've been on the med. for five years and I still can't take any weight off and I still have all the symptoms. My TSH goes up and down like crazy. If I do miss a dose, I can feel it. My energy level is sky high for a day or two, then the next day I can hardly get up. Does anyone have any suggestions about any natural thyroid enhancing vitamins or anything to comment on about this? Thank you
301 is a tad bit high! LOL
There is another thyroid patient/nurse here that will tell you the same as me. You need to find a FEMALE endo doc pronto. If not female then a YOUNG endo. They have brand new ways of treating things and new "normal" values. When you get your labs drawn and they are WNL they AREN'T!!!!!!! The American Endo Assoc has come up with new "normal" values and the labs do not reflect this.
There is a website that is absolutely a wealth of info. It's run by non-medical folks but I'm here to tell you, they KNOW their stuff. I have learned a great deal from these non-medical professionals. I don't use professionals "lightly" either. These gals know their stuff.
It's an about.com site. Go to www.About.com
and do a search for Thyroid. Poof, you are there.
The info these gals will give you is what a quality endo will give you. Not a GP or IM doc. These gals know their stuff, they are up to date on ALL studies, they darn sure know what they are talking about. It was due to them that I finally figured out what my problem was. My labs were coming back normal, my GP told me my dry hair (what I had left of it), gaining weight, brittle nails, no periods for 9 months, dry skin, lethargy, etc.... was due to old age. I'm 43!!!!! These gals told me the true scoop. I went to a female endo and she said exactly what these gals did.
Endocrinology is a science that few keep up with. The older docs just don't keep up with the new studies out and new "normal lab values" and sadly, this affects us, the patients.
If you are on 200mcg of Levo and you have a TSH of 309, honey... you need a young female or young male endo. Not a GP. 309 is not unheard of and it isn't all that uncommon, but it should be.
I'm on Cytomel. Research that. It's an amazing drug. At least with Cytomel you can get an idea of HOW to treat a 309 TSH. What and how much do you need to take to bring it down to a TRUE normal level. Unlike Levothyroxine (which takes up to 10 weeks to actually get the full effect) Cytomel takes 3-7 days and your labs are what they will be 10 weeks from now. It is a verrry fast acting drug.
But first, please go and educate yourself from these non-medical pro's on the About.com site. They are amazing! Noooo, they won't dx you, but they will lead you in the direction of studies that apply to YOU and you make your own decisions from there.
The old guy your GP refers you to for endo care? Don't go there. A young FEMALE endo or, next best is a young male endo.
When I go to my GP he pokes my throat as I swallow once. My YOUNG FEMALE endo has me sit on her stool, she gives me a glass of water, and warns me this will take some time and believe me, she isn't kidding. By the time she's done I swear she's lifted my thyroid away from my throat is is playing with it like silly puddy ... just cuz she can.
Get an ultra sound and find out WHY you have a TSH of 309. In my case I have Hashis yet my TSH was never that high. Not even close. My endo has improved the quality of my life 10 fold. I absolutely adore her.
You can find a really good doc or you can merely get your labs down. Amazingly, there is a difference.