I am looking for advise to keep my magnesium pills down. I have had hypomagnesiumia for 2 years now and have been to see a nephrologist who said my kidneys are excreeding the mag too fast causeing me to be too low. When I am low my muscles burn, twitch, cramp, ache. Its just awful, I am nearly bedbound when I am low. Also I just got an ablation for SVT and when I am low my heart has some irregularities, PVC's, tachy. My cardiologist wants my serum mag level to be at least above 2. I run at 1.1 at my lowest when I am really sick. Without magnesium my asthma acts up, my fibromyalgia acts up and my migraines start. So I am a mess.
For the last 2 years I have been recieving intravenous magnesium sulphate through my port twice a week for 5 hours each infusion. So, in other words my second home is the infusion center at our local hospital. I am like family there. Well this is the deal, my blue cross insurance cut me off completely cause of reasons that we are fighting with a lawyer about like medical necessity cause I am a high end spender with medical. Anyways so I finally got insurance through my work but its not as good as blue cross. It has no out of pocket maximum and my infusions which cost $700 each time are only covered 70%! So each time I go in for infusion it costs a little over $200. My paycheck each month is only $1000 so I cannot afford to get as many infusions as before. In fact even if I get them once a week that is nearly all my paycheck.
I am stuck. Right now I am bedbound, sicker than a dog cause I haven't had my infusion in 6 days. Any attempts at oral mag has caused severe, I mean severe vomiting, nausea and diarrhea. Its awful. We have tried Slow Mag, Mag Oxide, Mag Chloride and we are now going to try Mag Gluconate. I just have a feeling its going to be the same old thing. I have tried just about everything to not get sick with the oral mag, taken it with food, taken it with phenergan suppositories, taking it in little doses. I cannot think of what else to do.
Our hospital does provide financial help for people who have a low income and cannot afford the bills but I don't think they will help me all the way. I am so so sick right now. Pain everywhere. And my cardiologist would kill me if he knew my magnesium level is so low and that I am having heart problems. What am I to do. I will get an infusion tomarrow. I have to. Once I get an infusion I immediately all my symptoms go completely away, however it only lasts about 3 days at the most. They are increasing my dose starting tomarrow to 5grams mag sulphate in 100cc NS. So I don't know if that will make the relief last long or not.
Any ideas? I know hypomagnesiumia is rare the way I have it. The kidney doctor wants me to be on infusions for the rest of my life. How am I supposed to do that? Not only can I not afford it but I don't want to spend my life in a hospital!
Anyways thanks for listening. I feel like a ticking time bomb with my heart without the needed magnesium. My heart has had an episode landing me in ICU where my mag was so low my heart was irregular and beating 220 beats a min. I don't want that to happen. HELP ME! Thanks, Curleysue