I have seizure disorder (according to 3 neurologists) but getting the correct dx was a hard thing that took a lot of time and testing. It has never shown up on an EEG (and I have had 3 of 'em) and every MRI and PET etc has shown nothing. What I have always wondered is how can doctors diagnose one person with epilepsy and the next person with pseudo-seizures when both people have negative EEGs? What happens if they stop someones meds for epilepsy because they believe they are having pseudo-seizures and they are really have seizures that really just never show up on tests? How do they make they make the dx with no concrete proof?
Pseudo-seizures aren't always people who are "pretending to seize". I actually wanted to have a dx of pseudo-seizures because it meant having my life back and my driver's license. All the neurologists said you couldn't tell someone having a true seizure from someone having a pseudo-seizure unless it was someone truly faking it. Their are a lot of people who have pseudo-seizures who truly believe they are having a seizure and don't have any control over it. I was just wondering how if every test came back normal, as can be the truth in either case, do they make the dx of seizure disorder.
Last edit by LovebugLPN on Apr 8, '09
May 31, '09
I just want to relay my experience... I have epilepsy and work in the medical field.
But during one of the many trips to the ER trying to get help for this in the wee hours of the night while I was so new to it were complicated and frustrating to me.
The frustration came from the lack of belief. It was assumed that I had pseudo epilepsy obviously.
I was so upset and crying especially after one of the physcians, who happened to also be the Director, had left me along side the nurses station on a stretcher while he yelled at me in front of others. He yelled that I was using up space others needed. Further, he insisted that I did not have a seizure, nor epilepsy.
So I left AMA crying my heart out, I was so embarrassed.
Well, the following day I happened to have an EEG that had been ordered from my own primary physician scheduled at that very same hospital.
I was so hesitant but took it anyway. And I am glad I did.
THe EEG showed an abnormal study: Findings are consistent with epileptiform discharge arising from the left frontotemporal region.
I was having a series of recurrent seizures obviously.
I was so tempted to flash my report right in front of that Director/physician at that ER especially! I didn't though.
Last edit by angelsabove7777 on May 31, '09