Dealing with "Web-Trained" Patient/Family Members. - page 5

My mother needs ___________, I read it online! Call her Doctor Please. (3am) Now, before I upset anyone, I am not talking about the desperate "Cancer Families" seeking other treatment forms, or... Read More

  1. Visit  Not_A_Hat_Person profile page
    1
    One thing that alternately infuriates and sadens me is when people refuse to take certain meds because their minister told them not to. I don't mean Christian Scientists, or other faiths that emphasize faith healing, but "My minister said Jesus will heal me if I fast/pray hard enough/give the church x$" or "My minister said those drugs (especially psych meds) are a sign of weak faith."
    wooh likes this.
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  3. Visit  RNsRWe profile page
    2
    Quote from Not_A_Hat_Person
    One thing that alternately infuriates and sadens me is when people refuse to take certain meds because their minister told them not to. I don't mean Christian Scientists, or other faiths that emphasize faith healing, but "My minister said Jesus will heal me if I fast/pray hard enough/give the church x$" or "My minister said those drugs (especially psych meds) are a sign of weak faith."
    hoo boy, that's a rough one; glad I haven't come across it! But if someone puts a greater faith in his religious leader than his doctor, perhaps his minister should also give him routine physicals, check his blood pressure, and run labs?
    Irish_Mist and wooh like this.
  4. Visit  caroladybelle profile page
    1
    Quote from BostonTerrierLoverRN
    My mother needs ___________, I read it online! Call her Doctor Please. (3am)Now, before I upset anyone, I am not talking about the desperate "Cancer Families" seeking other treatment forms, or the Patient that hasn't got any better despite all Medical efforts.How do you deal with patients/family members who get an online 24 hour Medical Degree?[/SIZE]
    Actually, you should include the "cancer families". As they often harm the patient with this nonsense.

    We had a run of Pts with a particularly fatal cancer, come in with ghastly end stage liver failure. They had been diagnosed by reputable facilities, given data regarding supportive and palliative care, and had been declined for surgery, as it would have been futile, significantly decreased QOL, and possibly lifespan.

    They were not happy with this and sought care in Mexico.......where anyone with a few bucks can buy chemo without a license/script. The "innovative" clinic reported that they cure them, gave massive amounts of drugs, and when the pt turned yellow, told them that merely needed some liver irradiation in the USA, and then could return to finish being "cured". No word as to why such an "advanced clinic" couldn't do the radiation therapy.

    Needless to say, the PTs were in varying stages of multisystem failure from ODs of chemo.

    I work for one of those places that everyone refers to as expert. But when there are no more treatment options, we will tell them honestly. The large number of laypersons that argue or try to order or force us to give inappropriate therapies and unproven/disproven meds is astounding. The lawyer that tried to legally "order" a dubious treatment for his father. Even better when he presented a paper on a treatment with a 50% cure rate, that had 3 participants?!? (still wonder how the half of the 1.5 Pts "cured" is doing)

    I have also had numerous purported "cures" for all forms of cancer email forwarded to me that reference the entity I work for, as having done the research, approved the product, employs the so-called expert, when nothing could be further from the truth.

    These groups that do this, cause at the very least false hope and unrealistic expectations, and at worst, do reparable harm, destroy finances and hasten death in vulnerable patients.

    We also have well meaning people that actually harm the pts therapy. Pt (with several family as physician in totally unrelated specialties) undergoes induction chemo at another facility. Family reads up and analyze that parent MUST start to have increased CBC counts on Day X of therapy. Pt doesn't, though is doing fine. Children, though are wringing hands, freaking out and having conniptions over the issue, no matter HOW many times they are told that pt will in time recover naturally and needs to do so without intervention. Finally after much harassment, someone orders and gives neupogen ... Which does increase counts but contributes to development of major blast crisis, basically undoing the chemo and worsening things.

    Some people have just enough knowledge yo be dangerous to themselves and others.
    Last edit by caroladybelle on Apr 3, '12
    wooh likes this.


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