SOB, Hospice, Narcotics Overload

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So. Just bouncing off ideas here....?

Resident is hospice. Independent. Main problem is COPD and diabetic neuropathy.. On 2 L. (WHY she is/has been "hospice" the past 3 years on 2L PRN is a mystery to me. Most of my (40+ ) residents are COPD/CHf and on O2. And she's only on 2L PRN and usually doesn't wear it - though I encourage her to, esp. @ NOC)

Sent out last week for increased anxiety/SOB by a nurse who had been on leave for 3 months and it was her first day back ( so basically, she didn't reaslly know her........) Went to a "hospice house". She told her MD there she wasn't getting "medicated for pain." She had scheuled pain meds before + scheduled gababpentin + is very drug-seeking/exagerates. She will ask for her "dilotto" because her legs hurt....Really?? I give her a hot pack + extra gabapentin or tylenol... and she's good 6+ hrs. Other nurses give her her "dilotto" , Norco 10mg q4PRN, her PRN ativan/klonopin.. and she's a nut-job ?for the next couple days. Really? The opiods make her super-goofy. and DO NOT help with her pain b/c she keeps asking for more, and even forgets she got dosed....

Really? She IS drug-seeking. I tell her "all that extra stuff makes you goofy." She hallucinates, talks to people that aren't there, falls a lot. She is 100% awesome when I have her and she verbally tells me she is not " in pain"......And I chart it.

I CARE about this lady, and have communicated to her MD she deosn't NEED all this crap. She has told me specifiacally she wants to live a long time and (basically) doesnt wan't to be "killed off" by her family. She's told me multiple times that all the extras make her goofy and she's not herslef (norco, dilaudid, tramadol, ativan, klonopin). And now MS Contin BID?!? all because she "wasn't being medicated for pain". But she has like 3+ PRNs at the time and can/does ask for them/DOES get them when asked.....

I've found (in the 2yrs [off and on, medicare-frequent-readmit]) taking care of this woman, (5 nocs/wk so i know what im talking about) that gabapentin is what works for her for pain. I;ve told that to the day nurse (who talks to the ?MD who can only be reached during the day or else I would take it upon myself to call him). I've talked to the DON. Nobody seems to care. I've talked to the family. I am kinda of holding mylself back from FB'ng a family member I'm friend with to tell them what's goin on...I really don't want to kill this lady with scheduled narcotics she DOES NOT need but I don't know what else to do. I've called/can'treach/charted/passed to Day shift. to calll about this lady asnd they don'.t I want to call state but don't want to lose my job, obviously.

So here she is. POA who says "give it to her, she needs it". COPD main/only porblem and sat 97/98% on room air with 4+scheduled pain meds with DM pain that is under control (

& always 95+% in the AM)

And now she is crisis care and I have a new crisis care nurse every night who doesn't know ANYthing about this ladY and they are sleeping/asking for MS and atropine q2 AND SHE DOESN'T EVEN NEED IT!!!! And I have to do that whole thing. ...

So basically.....I kind of feel like this is worth throwing my job away over

at this moment..... I've alreaedy done the "chain-of-command" BS. Nobody cares. I have a relationship with this lady and feel like, responsible>? Do I just keep going along with all this pish-posh? What can I do (besides what I've already done and voiced/documented my opinion)?

I really want to ....

tell her grandson (who i'm FB friends with) what is going on. (HIPPA)....like i understand /Md is just trying to cover his butt.. Butt this lady does NEVER c/o pain....

So what do I do??? I've already involved MD/DON/ADON/POA.

She's told me before she deosn't want to be "thrown away" by family. I reallly think she could "live forever" 10-20rs snd I feel like we're just goin to kill her on PRNs she soesn't need and they'll chart shes "confused" re:"snowed" and give her more crap she doesn't need. She has not eaten in 3 days becuase she's too "confused" but sPO299% on 2L, 96/97 RA. Really nothing is wrong with her....COPD, scheduled nebs...She had SOME on day shift for an unfamilair nurse who just wanted her out of her hair....

What should I do? + Love this lady.

Just go with it?

Specializes in hospice.

Hospice for THREE YEARS?! How has that not been caught by Medicare?

Specializes in Hospice.

Medicare has a tip line for reporting possible fraud. Something's not adding up.

Just an FYI, the morphine/Ativan routine is gold standard hospice practice for controlling air hunger. Also, end stage lungers have the longest length of stay of all hospice diagnoses. So neither of these is a surprise in the situation described in the OP, if the patient is truly end-stage.

Either there's more to the story or something's fishy with the hospice.

Morphine and other opioids are useless for neurogenic pain, which is why the gabapentin works for hers.

Hospice is very regulated; if she's on a hospice service, she has to meet criteria for the benefit to keep paying.

Something is not adding up here.

Specializes in NICU, PICU, Transport, L&D, Hospice.

The woman is on hospice because she qualifies and signed the EOB.

It sounds like you are having professional boundary issues.

You should collaborate with the hospice professionals and palliative care experts who are helping the patient and her family to manage her end of life care.

I am kinda of holding mylself back from FB'ng a family member I'm friend with to tell them what's goin on...

I really want to ....

tell her grandson (who i'm FB friends with) what is going on.

I understand that you're frustruated and feel that you've exhausted all avenues to voice your concerns about this patient. I've also felt this way when trying to help someone, but finally realized that there are times when no matter how much I wanted or needed to help, it was impossible because it wasn't my problem to take on and I had to let it go, for my own sake.

I think you're heart's in the right place, but doing as you mention with contacting family via Facebook might just be job or even career suicide.

Do not take action or make decisions (especially if it may carry heavy consequences) when in a state of anger or exasperation. Do what you have the authority and power to do and then accept that you've done all you can.

Specializes in Geriatircs/Rural Hospitals.

I understand you love this lady. The thing is she is not your family. Sometimes you do everything in your scope and then you have to et go. If you don't your going to burn out and be no good to anyone.

Specializes in Hospice.

The more I think about this, the fishier it smells. The patient as described in the OP does not meet hospice criteria for COPD: She is apparently well enough to maintain pulse ox in the middle to high 90's on 2L, only uses O2 intermittently and sats in low 90's on room air. Yet, it's mentioned that she is a "frequent re-admit" ... for what? What is the diagnosis under which she was admitted to hospice? The OP mentioned CHF - how severe is it? Are there comorbidities other than DM that aren't mentioned here? Is her "drug seeking" a function of untreated depression? Or a long-standing personality disorder? Has the OP discussed her concerns with the hospice case manager? Nothing in the description of this situation makes any sense.

I agree that there are serious ethical and HIPAA issues involved with "dropping a dime" to family members who are not POA. Don't ... just don't.

I mentioned in the other version of this thread that CMS has an anonymous report line for possible Medicare fraud. If inappropriate admission to hospice is the underlying issue, then that would be the most effective next step, it seems to me.

The tone of the OP, coupled with the dearth of information leads me to believe that the OP might have an issue of her own here - or maybe running into issues belonging to her nursing co-workers and admins (not uncommon). We are not getting the full story. I'm at a loss as to how to help, really.

This woman died a few days later after being re-admitted from hospice -house, she was there for awhile, went out for a week or so, then came back to us to die. Getting MS ATC and drowned in her own secretions. Died on my shift in front of me, I was very torn up and affected by this for awhile, seeing her like that.... Commentors said it didn't add up, and it didn't. "Hospice" for years, COPD on RA and 2L PRN, with pulse ox in the 90s still her first day back...Crisis care for some reason, and the nurse asking for MS q2. Readmitted multiple times from hospital for falls at home/UTI, probably on her opioids she didn't (IMO) really need. Multiple narcotics for neuro/DM pain. All communicated to MD/palliative on my part. She was young, early 60s, and fun/young at heart, independent, ambulatory, but narc-seeking unfortunately. I remember a few days before she was sent out she had me cracking up talking about finding a boyfriend and showing me her new Victoria Secret bra she ordered on her laptop.. POA, who never visited/didn't have a relationship with, wanted her medicated, and medicated she was. She went out ok, SOB with anxiety, came back not herself, and overmedicated (IMO) and died a couple days later. She would come, go, come back on medicare for falls at home/UTIs, go hospice, then go home because she missed being independent, then come back and repeat. I don't know if she was a "hospice" patient when she was at home living with family but she was ambulatory and pretty independent whenever I had her as my pt. No edema, not overweight, no circulation problems,.. I don't know what qualified her for hospice exactly and that was my concern in the first place. That's not my expertise, but her only DX was COPD, Afib, DM. Her pain c/o to me were neuro. She had no reason IMO to have dilaudid and MS. She had no ortho DX, she was up and walking around. I feel like if I had more experience at the time I could have advocated for her more. :(

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