I have a 9 year old daughter who receives nursing care, I’m an RN as well mind you. Our daughter has a trach, LTV vent, straight cath twice a day, gtube, nebulizer, CPT vest, mist collar when sprinting, o2 with pulse oximetry monitors, AFOs, hip splint at times, stoma and wound care as needed. Tons of deep suctioning, frequent trach changes. She is nonverbal and requires an augmented communication device, as well as a wheelchair. Total care with all ADLs. Plus of course all her meds.
She’s had a PICC with IV antibiotics a few times as well s/p some surgeries.
Our nurses do her laundry and put away her supplies. We do not have 24 hour care though.
Lots of skills. Some cases are baby sitting, some are more complex than a PICU.
It’s definitely about how you fit with the family too since you start to become a member.
Love my nurses and have loved the other kiddos and family I worked with myself.