each birth is completely different and i am so very blessed and thankful that the medical team decided my only child would be one of the very few to survive. at 23 weeks & 6 days, a very tiny 1.2lb baby girl was born after severe exclampsia that caused mom to have 6 seizures before the emergency c-section was done followed by a complete hysterectomy due to placenta accreta.
she is my only child , we spent 121 days at uf shands children's hospital nicu. life was hell for those 121 days. the emotional rollercoaster ride hit every day during that time. i wasn't even sure i was going to make it.
no one explained that when i saw my baby for the very first time when she was 7 days old that i would be in complete shock. this tiny littel creature was so small that at first you couldn't even see the baby for all the tubes and wires, no one told me that my baby would be in a warming bed, with plastic wrap ove the top to prevent her transparent skin from burning. no one told me that she needed hundreds of blood transfusions, test, lab work, etc etc etc. . no one said her skin was so thin you could see through it. her eyes were still fused for the first 3 days. her chance of survival was only 5% is what they did tell me.
no one knew if she was going to be blind, mentally challenged, maybe deaf, etc. all the bad things that could happen to such a very tinie baby wasn't explained, al i was told was take it one day at a time.
today i have a very healthy, straight a, petite 10 yr old daughter . she is happy, energetic, no learning disabilities. perfect eye sight, hearing and no major medical problems.
i know that we are one of the very few who have been blessed by having such a wonderful turn out.
so as far as the question "who decides" i am only glad i am not the one making the decision, there is no right or wrong, simple answer, only god knows which baby will make it and which ones don't.
sorry to have rambled on, but with complex, morally and ethically questions such as this where is the line drawn?
i have no answer for you, only what i have experienced and the turn out of that.