Quote from nursepenny
situs inversus, kinda long sorry permalink
This was posted under cardiac nursing, but as I haven't received a response as of yet I thought I would move it this forum Thanks for reading it.
My name is Penny and I have been an LPN for 10 years. I am to be a first time grandmother in Dec. 2007. My daughter is 35 yrs. old and this is her first child. On Thursday, 9-20-07 we found out her little baby girl has situs inversus with levocardia. i am not sure if this is the correct forum to put this in, so please bear with me.
Even though I have been in the medical profession for 10 years, I am not familiar with this condition. I have researched on-line, but most all of the info is aimed for doctors. I do know a little more about this since I've researched, but don't feel as if I can ask compentent questions when we return for another ultrasound. If anyone has any information, knows of a support system, or anything that may be of use to us please let me know.
I am aware situs inversus with levocardia is a condition in which the visceral organs are in reverse order and the heart is located to the left. The perinatalogist said the baby was mirror image from the diaphragm down. This is a very rare condition and I need info. Please let me hear from you. Thanks, Penny
First of all, congratulations on becoming a grandmother (soon)!
In 11 years of NICU and OB, I cared for only one baby with the condition you describe. She was one of a set of fraternal twins who were born prematurely. Her admission to the NICU, as with her sister, was due to prematurity, not the situs inversus. She experienced some mild respiratory distress at birth, and progressed, along with her sister, to DC without incident. I don't recall her condition being anything more than a curiousity in terms of her health at that age.
I'll be curious to see what kind of input you get here. There is a poster on the PICU forum, janfrn, who seems to have extensive knowledge of cardiac abnormalities and their treatment. Perhpas you could post there or PM her.
The only thing I would suggest is to ask for a neonatology referral so that you can be well-prepared should your grandbaby require NICU care at birth. If there is any question of the need for intensive care, it may be preferable for your daughter to deliver at a tertiary care center, rather than rely on neonatal transport, which would separate mom from her new baby.
Best of luck to you all. Please let us know when the baby arrives!