Let's dialyze the actively dying pt....

Specialties Hospice

Published

I work for a Hospice Continuous Care team. We spend our shifts (8-16 hrs) with one pt, and see the entire specturm of humanity: behavior, living conditions, beliefs, drama, etc. Today was a first for me. The pt (primary dx liver CA, c mets to bone and brain) is experiencing reduced urinary output, a common sign of decline. The family wants to know, "where is the fluid going? His intake far exceeds output." We (nurses over several shifts) have explained respirations, cellular functions, perspiration, and the usual and customary "shutting down" of the kidneys. Their first response is, "There's something wrong with the urinary catheter." (New cath, no distention, no bladder CA involvement, no blood in urine.) We explain s/s of retention, etc. The family has asked these questions every shift for the past three days.

Today, during what has become a usual and customary dialogue, the PCG says, "What about dialysis, you know, like for people with diabetes whose kidneys don't function properly? I have a friend whose husband had a portable dialysis machine, and they even traveled!" The patient's BP is 80/48, he's eaten up c CA, and she's talking about dialysis and travelling. It was all I could do to keep a straight face.

I just had to share. This was too strange to keep to myself.

Specializes in MS Home Health.

The poor family sounds like they are suffering with fear and grief.

renerian

The poor family sounds like they are suffering with fear and grief.

renerian

absolutely.

that's why it's imperative for someone on the team, to gently remind them the pt is dying.

it's something you cannot sugarcoat.

most times, the pt will not die peacefully unless the family has accepted their dx.

even though the pt is always my first priority, i intervene w/families as much as i do pts.

leslie

I'm not a hospice nurse, so my reply might not sound as sensitive as what you all might say, but in the ICU when a dying patient/family asked me something like that, I came right out and asked if they had changed their mind about DNR status, and do they want to persue aggressive treatment instead??. They usually answer 'no' and then shut up.

Hi there,

Say it with me, denial, aint just a river in Egypt....:uhoh3:

NancyS

I think it is also important to remember that not only the client is ours, but also the family is included as clients as well. They too need us as much as the actual client. If the family still has trouble after we have done and said all we can, then we have the patient-family concelors to fall back on, and/or clergy.

NancyS

Specializes in Community, OB, Nursery.

I had a family member once (way back when I was a new grad) want me to give her mom 80 of Lasix because her UO was low. She too was actively dying. That's about as much as I've seen.

I have also seen incredibly selfless parents of children in neonatal ICU that are dying. About a year ago, I had a lady who delivered a 24-weeker who subsequently had a massive brain bleed and wasn't doing well. They were from central Asia and would likely be going back to their home country once Dad finished his degree. They decided that, since their home country wouldn't have the needed technology/infrastructure to care for the baby with the deficits he'd likely have, and since he was really not doing well, they decided to d/c his vent etc. He died a couple hours later. I know it broke their hearts, and it broke mine too. They were the nicest people. I can't imagine having to make that call.

Babies and children and always the hardest in a hospice situation. (At least for me it is.)

Hi everyone. Please help me decide if I want to take this job I was offerred. It is in an 8-bed inpatient hospice center, staffed with 1 RN , 1 LPN and 2 NA's. I will be the sole RN on the floor. I have never done hospice nursing, but have 4 years of nursing, 3 in med-surg. I want the job, but I wonder if I will need another RN to orient me to the unique aspects of hospice. Please answer ASAP, I have an intervierw tomorrow. Just got the call yesterday. I do appreciate any input. Thanks.

Specializes in ICU, PICC Nurse, Nursing Supervisor.

your stronger than me. i have done plenty of hospice but never babies or children. i just don't think i could hold up to that!!!!

babies and children and always the hardest in a hospice situation. (at least for me it is.)
Specializes in ICU, SDU, OR, RR, Ortho, Hospice RN.
Hi everyone. Please help me decide if I want to take this job I was offerred. It is in an 8-bed inpatient hospice center, staffed with 1 RN , 1 LPN and 2 NA's. I will be the sole RN on the floor. I have never done hospice nursing, but have 4 years of nursing, 3 in med-surg. I want the job, but I wonder if I will need another RN to orient me to the unique aspects of hospice. Please answer ASAP, I have an intervierw tomorrow. Just got the call yesterday. I do appreciate any input. Thanks.

Hello to you.

Personally if it were me I would want a complete orientation and education. Do the ELNEC training etc.

Hospice is a different 'kettle of fish' to nurse and work in. We are taught to save lives from our nursing training/schooling but in hospice we are looking at a peaceful ( we pray ) death of our clients. BUT there is so much more than just their impending death.

It is symptomatic management and what would the best treatment be, at the same time weighing up the benefit versus burden.

It sounds a nice unit with only 8 patients but you will quite often find when one goes 'bad' there will be another at the same time.

Don't feel pressured that you need to make a sudden decision about the job. Hospice nursing is not for everyone. I love it and do not see myself doing anything else.

It has taken me nearly 5 years of Hospice education and I still learn daily.

Let us know what your decision will be and I wish you well :)

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