I have been pretty vocal in my defense of ADHD sufferers in some threads recently, so it will probably not surprise you that I have it, and a pretty bad case.
Most people that I know don't "believe" in ADHD. They think it is a case of "boys will be boys," whatever meaning that holds for them, or that "she's just a daydreamer."
Some people think back to that one hyperactive kid, the one who got in trouble all the time in the first grade because he couldn't conform to the structure of a classroom, when they picture someone with ADHD.
Some people have a slightly clearer view and know that there are different kinds of ADHD. They know that some sufferers act out and that some seem to be in their own world.
The rare few who understand the condition know that it is a serious mental illness. Statistically, boys tend to get the more outgoing, hyperactive, aggressive types of it. Girls tend to get the inattentive, daydreaming types.
I have the inattentive kind of ADHD. To see me, I look normal. I even act normally, most of the time.
However, the things that go on in my head... {shudder}
My symptoms started showing when I was four. I constantly lost things. I would put on mismatched everything. I would wander off in the mall when things caught my attention. I got left behind a few times because I was enthralled and didn't hear my parents. I had a hard time following directions and would forget what someone had just said to me. My parents thought I must have a hearing problem.
So my first test was a hearing test. I passed that, pretty easily. My hearing was fine. My parents assumed that I needed more discipline and structure, that I was just flaky and a little absent-minded. It helped, a little, although my behind would never be the same.
I started kindergarten and did pretty well. They expect you to be flighty there.
First grade... not so much. I was a smart kid and could do the schoolwork, but I had problems with impulsivity and remembering to turn things in. My name lived on the naughty board. I couldn't stand the disappointment in my parents' faces, so I tried harder.
I had so much anxiety back then that I had severe insomnia. I would lay awake in bed at night and try to figure out why I was so bad. I prayed to God to make me a better girl. I prayed to God to fix me so I could be good like the other little girls and pay attention in class. I prayed to God to make Mama and Daddy not get so mad at me when I got in trouble for daydreaming, or leaving assignments at home, or for leaving my things at school.
My parents and teachers thought that maybe first grade was too easy for me, that I wasn't paying attention because I could already read and write.
My next test was an IQ test. I passed it, too. The powers-that-be decided I was "Gifted-and-Talented" and sent me to a special class. This helped, a little. The class was faster-paced and wasn't as repetitive, so it was easier for me to tune in. My name was still on the naughty board most of the time.
Things continued this way for a while. I was smart enough that I made good grades because I could pass the tests. Even when I didn't do the homework and missed deadlines, I could get by. I skated through each grade with A's and a couple of B's. That wasn't good enough, though. My teachers thought I was lazy, that with a little effort, I could get straight A's. That, if I would just apply myself, I could do my homework and pay attention in class and really be somebody smart.
It took all my effort just to do as well as I was, and everybody wanted more. My parents thought I could do better at home if I just tried a little harder. My teachers thought I could be a superstar, if I would just work a little harder. I cried myself to sleep most nights because I just couldn't figure out what they wanted from me. Nobody could explain it, either.
I heard over and over, "You're so smart. I don't understand why you don't try harder." Nobody ever listened when I said that I was trying as hard as I could. Nobody ever believed me.
I tried my hardest until the seventh grade. Then puberty hit.
I thought my life was stressful before, but once hormones hit... yeesh. My grades fell through through the floor. My life at home was in turmoil. I could barely remember to brush my teeth regularly. Forget showering daily. I was lucky to remember to even eat on a regular basis. My weight fluctuated horrendously as I would forget to eat for a day or two at a time, then gorge on sweets and junk food to make myself feel better emotionally.
Teachers are not equipped to see this. My parents had their own problems, as their marriage was starting to break up, and didn't even notice me most of the time.
Some other events happened and I ended up with an adopted brother and parents who were in a state of wary detente.
My new brother was six years old and wild. He had ADHD and acted out, like a champ. This led to him getting diagnosed very early.
However, my parents didn't "believe" in ADHD. They thought my brother's problems could be fixed with discipline and structure (sounds familiar, doesn't it?).
They worked with him and worked with him, and eventually he was able to keep it together in school.
He started smoking marijuana when he was eight years old. He claims it helped, a lot. It must have. He didn't end up in trouble nearly as much after that.
The result of all of this is that I and my problems were shoved to the background. I felt let down. I was valuable to my family, but no one was interested in my issues. I felt like my family could only see me if I acted like everything was OK. I felt like my problems were invisible to them. I couldn't trust anyone to see me as I was, to believe me when I told them I was having trouble. But I was able to manage and survived puberty fairly intact.
So, fast forward to my high school years. At this point, I had pretty much given up on ever being good enough for my teachers. My parents had divorced and remarried each other, and were in the process of breaking up again. I had also given up on being good enough for them. I was passively suicidal.
I prayed to God every day to let me have a tire blowout when I was alone in the car so I could die an a car accident, or to let me have a quick, deadly disease. I had suicide fantasies. I couldn't follow through, though, because my precious baby brother, the adopted one, was the first one home and I was terrified he would be the one to find me.
I prayed to God to just bring me home to Heaven, because life here was just too hard.
I still functioned, though. I passed my classes, barely, and got into a good university. Life got even tougher. I couldn't function in social situations and developed few relationships. The slight support network I did have at home was gone and I was completely on my own. I had to learn how to pay my own bills and function as an adult without much guidance.
I did okay the first couple of years, as I was excited about this new, shiny experience. Then reality set in. And it was hard and bleak.
I became actively suicidal. I had plans, oh, so many plans. I started practicing cutting my wrists. I researched the right ways to do it so I would bleed out. I decided that was too dramatic and would hurt my family too much, so I came up with several, less flashy, plans. I thought maybe I would just go "missing."
Eventually, I came out of what I later realized was a severe depression. I graduated, although it took me five years, and got a job. I hopped from job to job the first few years, and eventually settled down into a job as a typesetter at a print shop.
It was a low stress job, but it required a lot of attention to detail. A LOT. Which I was terrible at. So, I developed strategies to help me. I would proofread things three times and send them back to the customer to proof read. I don't know why, but no one proof reads their own stuff. This worked for a few years. I was able to focus in the beginning, because it was a new, shiny experience. But that didn't last long.
My job was boring. And repetitive. There wasn't much there to capture my attention. I tried to help out in the front office and in the press room to give me enough variety so I could focus, but my boss wanted me in my cubicle/box at all times.
I got in trouble, time and time again, for typos. For small mistakes here and there. For being late. For not following through on an email. For not being good enough. "You're so smart. I don't understand why you can't try harder and do this!"
I was eventually fired after six years. I had given up trying to be good enough, and my boss had given up trying to deal with me. He didn't care that I was trying my hardest. He didn't care that it took all my effort to be sub-par. He didn't want to accommodate me with a proofreader or give me any slack for mistakes.
I was costing him money, so I had to go.
I had gotten my CNA certification, so I started working full time at a nursing home. It felt good to help people, so I decided to go to nursing school because I couldn't pay back my student loans at minimum wage. My husband was footing most of my bills.
I had thought I was stressed the first time I went to college. Hoo, boy.
I came on to allnurses and complained because I couldn't pass nursing school tests. And one of the commenters suggested I get tested for ADHD.
I passed this test, too. With flying colors. Apparently, I have a bad case of ADHD. My doctor was amazed that I had been able to function as well as I had. He immediately started me on meds.
I started out with Ritalin, which was OK. I felt a little more "normal." I could walk into the kitchen and remember what I went in there for, the first time, for the first time in my life. I still couldn't study.
So I started Vyvanse. Big mistake. I became a raging psychopath in my head and a raging witch on the outside. I hit my dogs, I fought with my husband, I wanted to murder people in WalMart and thought about ways to do it. It was awful.
I gave up meds completely until after I graduated, I just tried harder. And passed with B's and C's until I graduated. And my nursing instructors said: "You're so smart. You do so well on the floor. I don't understand why you aren't doing better in class." I couldn't tell them I had ADHD. It wasn't a real disease, after all, according to every one I knew. I didn't trust nurses to be any different.
After that, I tried Adderall. It worked for a couple of hours. I was super nurse! Then I was starving and couldn't focus for the rest of the day. It didn't matter if I took more or not. Apparently, I used up all my focus in that first burst.
Then I started getting dizzy, my heart would race, and my ankles would swell. I would get angry and have outbursts at work. Apparently, stimulants make me nuts and put me into heart failure.
So, no more meds for me.
At this point, I have given up trying harder. I have given up trying to do better. I muddle through my days at work and take the criticism as it comes. My patients thrive, but my charting... well, it takes me longer than most because I have to check everything three times, and I'm sure there are still holes.
I am working now as a traveler/agency nurse, so that I can leave and start a new place before my ADHD gets bad and I start messing up. Each assignment is new and shiny, so I can do it for a little while.
I still have the daily struggle with forgetting where I put my keys, making sure my clothes match, and remembering my lunch. I have backup deodorant in my car and my nurse bag. I have a realtor-type lockbox on my door so I don't lock myself out anymore.
I am not flaky, lazy, or stupid. But I just can't try any harder. And I am OK with that.
banterings
278 Posts
kalycat,
I have such a problem with people's names. Smartphones are one of the greatest inventions for someone with ADHD. They RECALL for us. We remember everything, it is just the recall. When I enter a person's contact info in my iphone, I also take their picture (I ask their permission first) or find a pic of them online (FB) so that I can put the face with the name.
You also reminded me of my freshman year of college, studying for a calculus final at 3 am, on the floor in front of the heater with a giant glass of coke and a bowl of Taster's Choice instant coffee with a spoon in it. I have also found that B vitamins help. These days my choice energy drink is "Rip-It" (no carb, no calorie) I buy at Dollar Tree. Lots of B vitamins.
pookapookapooka,
Be happy. I love who I am. Despite all the setbacks we face in life, we all love who we are. We look at society and commonly describe most people who do not have ADHD as "drones." I have grappled with this as being what it takes to succeed in society, but I would rather be poor and who I am.
My brother is an accountant. He started working for a medium sized company his junior year of college. He was their comptroller, running the financials of the company while finishing school. I remember the day that he was so excited because he got his own cubicle. My comment to my mother was
I have been watching the show "Scorpion" on CBS. It deals with savants. The first episode the main character (Walter) tells a mother her son is a savant. Walter says, “I'm sorry to be the bearer of bad news – your son is a genius.”
Now that you know, don't suppress it. I struggle whether children should be treated for it before high school. Much of my coping mechanisms I learned before (and some during) high school.
pookapookapooka, be there for your daughter, love her, and support her. What I remember about my mother was encouraging me to be me, to do anything that I wanted to, to strive to always do better.
Glycerine82,
Stimulants stimulate the part of our brain that makes us focus. Our brains are like freight trains, nothing slows them down.
You are correct in saying drugs do not affect us the same way; we do not experience the "euphoria" that "normal" people feel from them. Our bodies do not become dependent on them. We can put them down at any point and walk away.
Alcohol and marijuana inebriate us to where our brains have to recheck everything 20 times to make sure we get the correct answer. For that reason (and the way we react to drugs), we have a high tolerance and do not appear "messed up." It also makes everything "shiny and new."
I have never smoked (except when I was on fire). I tried it, it did nothing for me. I often wondered why I never picked that up being the "bad boy" that I was.
We do have addictive personalities. There ar 2 reasons for this. First our ability to hyperfocus. Things that challenge us, like watching Jeopardy. The other reason is that these activities release neurochemicals that actually give us that euphoria. Endorphins mitigate pain, dopamine and norepinephrine are performance enhancers. More on neurochemicals here.
We also get addicted to things that bring stimulation and or euphoria. Sex is one of them. In my first post I stated some of the unique factors that apply to people with ADHD and sex. We need a lot more than the average person, and we need variety. This also applies to sports. I know a woman with ADHD who runs until she physically drops. She says that she loves the feeling where her body can not go any more.
I did amateur boxing in my last 2 years high school and first 2 years of college. I was known for being able to "take a beating." I went up against guys stronger, faster, and better than me. My record was 55%/45%. It should have been much worse. I usually won by TKO (technical knockout), decision, and even a couple KOs. My wins usually came in the 8th or 9th round. My opponent had usually exhausted himself by then. At that point for me, it was like fighting a guy with no arms.
The problem I faced was amateur usually lasts 3 rounds. Not long enough for someone to tire themselves out. I opted for the 10 round matches (like the pros). People worried about the "beatings" that I took. I could handle the pain, but there was a certain euphoria that my body felt. Of course I walked like Frankenstein the next day.
I was also involved with auto racing in college. What a rush driving a turbo charged, intercooled, 4 door, Dodge Omni with a full on race package, a short stroke 5 speed through a road course at 100 miles per hour. Apparently many women found my risk taking attractive to them that helped feed a previously mentioned source of euphoria...
Something else I forgot to mention; we have a high tolerance to pain. That is because we can "think it away." We hyperfocus to endure the pain, couple that with the neurochemical release, stitches without anesthetic.
The opposite is also true; we fall prey to phobias. Just as we think the physical pain away, our brains can run out of control with the irrational. A little nugget in our minds can turn into a great big monster. No matter how we rationalize it, our brains just keep making it worse, and worse, and worse...
Shut Up Brain, Or I'll Stab You With A Q-Tip!
As I said and others have alluded to, our bodies do not become dependent on it. This IS a generalization. There are several types of ADD/ADHD, I know that one type stimulants make people almost psychotic. That is why we all support finding a physician who is familiar with ADD/ADHD, but also not afraid to treat it. Also beware that there are people pushing "snake oil," even physicians. I have run into physicians (and others claiming to specialize in ADD/ADHD. What works for me and others here may not work for you.
One physician wanted me to switch to him for my treatment. A little research and I found out that he does not believe in meds, but rather diet and exercise. He pushed a system of (behavioral) therapy sessions, diet, and supplements. I suspect that he had multiple financial interests. Being labeled an addict is a prejudice that we face, see my next comment.
jjbroderick22 said:
I am the same way. I don't even take aspirin. Very rarely do I take medication. I even forego my meds on the weekend when I do not have to concentrate. If I am around my wife, she makes me take them, either that or she will kill me....
You are right about finding a good physician. My original retired, I found another good one. He was promoted where he no longer saw patients. The one who took over his practice was horrid. He did not understand ADHD. In retrospect, he probably thought I was a pill seeker. He had been ordering unnecessary tests, as anyone with ADHD money was tight. I asked him to work with me on this because I was spending $700 a year on test copays.
He also suggested I see a psychologist to see if behavioral changes would work instead. My insurance had poor coverage for psych, but I went anyway. The psychologist HE recommended did not understand ADHD either, she was useless to me. I did manage to get a referral from her to a psychiatrist who was well versed on ADHD. She sent a report to my primary that medication was the best treatment, I had a grasp on my condition, and that I had adapted to be functional. Six months later he recommended a psychologist to see if behavioral changes would work. I left and found the wonderful physician that I have now who understands my condition and respects me as a person.
I take 30 mg time released (that covers my 10-12 hr work days). I also take 10 mg regular tabs that drop off quickly so that it is not working throughout the night. Sometimes I take the tablets first to "kick in the concentration" when I have early (5 am) days. Point is I know my body, I know my condition, I know how to control it.
Finally a diagnosis solves half of the problem the undiagnosed have: "Now I know why I am like this...." I forget the movie and the exact line, but it was something like: "Do insane people know that they are insane?" We wonder what is wrong with us? Why can't I do better? As a coping mechanism, many of us accept (and I even embraced) that we are insane.
You say "embrace insanity?" Yes! We also see that whatever is wrong with us, we are smarter, think quicker, etc. than most people. Having a name lets understand who we are. It lets develop strategies and preempt problems.
As I stated previously, if I could take a pill and make the ADHD go away and be instantly normal, I would not do it. (Note: our meds make us generally ACT normal and FOCUS, FOCUS, FOCUS. We still think differently, struggle with impulse control, etc. Our meds are the saddle, bridal, and reigns on a horse named ADHD for which we have no intention of getting off of.)
I am sorry, I just lost my next thought while formatting the last sentense. SERIOUSLY! I will post my last thought when I remember. Normally I would just finish there, but this is part on my normal, medicated day.