Neurofibromatosis

  1. I was wondering, because I have it, how many of you have heard of Neurofibromatosis a.k.a NF a.k.a von Recklinghausen disease. I am not really looking for info because I already know about it but I have heard that it is a fairly common disorder so I was wondering whether it is known among nurses.
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    About lpnstudentin2010

    Joined: Jan '05; Posts: 1,929; Likes: 686
    College Student
    Specialty: Being the Patient

    8 Comments

  3. by   Da Monk
    I've taken care of several patients over the years. I know there a different degrees of the illness. I hope your problem is of a lesser degree. The patients I cared for were not being treated for NF, but other problems and they had had NF for years. Peace!
  4. by   mariedoreen
    I have a friend who has the disease so am aware of it myself.
  5. by   nesher
    Years ago, my first most intense patient of my career had this disease- but her's became neurofibrosarcoma - thus a long horrid death, one that I have certainly never forgotten.
  6. by   NRSKarenRN
    Covered in my nursing program + experience with one patient.



    Taken care of many patients with Sarcoidosis with 6 Liters of Oxygen at home-yes can be a difficult passing: palliavtive care imperative.


    OP: Hope you have great physician and nursing support.
  7. by   lpnstudentin2010
    I have an awsome physician here in Boston (where i live), a great plastic sergeon (my main tumor is on my right orbital, another on left breast both of those are plexiforms, then a neurofibroma on my right thigh), great eye doctor, and AWSOME nurses. I have had 4 surgeries and have always had awsome nurses. that is what made me want to be one.
  8. by   Jolie
    I cared for the newborn infant of a mother with this condition. An interesting study in medical genetics.
  9. by   Nurse Ratched
    Saw a great special on the discovery channel. No professional experience.
  10. by   Hellllllo Nurse
    Quote from Nurse Ratched
    Saw a great special on the discovery channel. No professional experience.
    Same here.
    I know that years ago, it was thought that John Merrick, The Elephant Man, had NF, but now it is known that he didn't. He had Proteous Syndrome.

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