29 year old husband has brain tumor - page 3

1. 
   Mar 9, '03

   Prayers and positive thoughts to your family. Remember that you are never alone (even though you may feel you are.) Let others support you -- tell them what you need at that moment ... make a list of things you need done ... and don't hesitate to ask. Whether you let others help by carpooling, taking your kids to the library/playdate, chores, make some soup/casserole you can freeze ... or even pick up that loaf of bread you need -- tell them. Do not isolate yourself and please let others help. If your 5-year old is in school, please speak with the teacher so that he/she can support your child through this difficult time. Once again, please know that many prayers are being said for your family ... and even through this most difficult time ... embrace your loved ones and continue to live your life. God bless.
2. 
   Mar 9, '03

   Sending warm thoughts and prayers your way....
3. 
   Mar 9, '03

   Jaystrupp--this is horrible. Are you sure it is cancerous? My husband had a brain tumor removed--it turned out to be benign. He did loose his hearing and has right sided facial paralysis and no blink reflex in his right eye. He says this is a small price to pay for living.
   His operation took 12 hours and he was back to work in 6 weeks. He would literally stagger home he was so tired, but this was his motivating force--we had 3 kids in college.
   
   I agree that it's worse knowing the "what if's", being a nurse, but try to block them out and concentrate on one thing at a time. You will find that both of you have strengths you never knew existed. We have never been so frightened in our lives but we pulled through and you and your husband will, too.
   
   As for the kids seeing his seizure, kids are more resilient than we give them credit for. My husband looked like Rocky after his 4th fight when he was post-op (wait awhile for the kids to see him) but my kids, although older than yours, don't remember that now.
   
   My advice is to take one day at a time, to pray a lot, and to use all the support you can find from family and friends. Seek the best doctors and treatment.
   
   Looking back on this ordeal I can say it was something both my husband and I and the children could have done with out but it turned out to have positive aspects for us. We all got our priorities straight, saw how fragile life really is and found out that the most important thing is faith, family and friends.
   
   I pray for a positive outcome for you and you family.
4. 
   Mar 9, '03

   Jayme,
   You are going to stand strong for your husband and little ones, and you're going to make it through this. You will use strength and energy that you never knew you had. Just remember, this will all be over and done with one day soon.
   
   Yeah, having knowledge can be tough at times, but you know something----- your husband will get the best of care because of the 2 little inititals that you have after your name. You'll make damn sure of that.
   
   I wish I had some words of wisdom or advice for you. Just know that you will have vibes coming from all over the place, sending you and your family strength, love, and hugs.
5. 
   Mar 9, '03

   Merged with same thread in Oncology (sorry for any confusion it creates)
6. 
   Mar 9, '03

   No words of wisdom. Good luck to you.
   
   Take things one day at a time. Projection can be your worst enemy. Find your joy where you can.
7. 
   Mar 9, '03

   Originally posted by Spazzy Nurse
   I wish I had some words of wisdom or advice for you. Just know that you will have vibes coming from all over the place, sending you and your family strength, love, and hugs.

   Thoughts and prayers for you and your family. May your husband have a speedy recovery, and your family gain strength from this time of hardship.
8. 
   Mar 10, '03

   Jayme,
   
   My prayers and thoughts are with you and your family. Having a husband myself who has serious health problems and who has gone through several serious surgeries etc....I can relate to how you must be feeling. I know that it's not easy but try to be positive. Reach out to others who are in similiar situations. Don't be afraid to ask questions. Many times the fear of the unknown is the worse.
   
   A co-worker of mine had a brain tumor(Pituitary), and they are usually curable. She is now cancer-free. It is heartbreaking to have such a diagnosis at any time, but seems especially cruel and unfair when it is someone young.
   
   Positive thoughts and prayers to you and family,
   
   JUDE
9. 
   Mar 10, '03

   Unfortunately I can't offer you any spectacular words of wisdom, but i am sending my hope, love and best wishes your way!
   Don't forget to also take some special time out for yourself, and ask your friends for help - they will appreciate it!
   Love Rachel @}-->-------
10. 
    Mar 10, '03

    I'm so sorry you and your family have to go through this. I'll be praying for you and your children. Please keep us updated. There is a lot of support to be had on this board.
11. 
    Mar 10, '03

    No words of wisdom here, just feel awfully sorry for your husband, you and your kids.
    Hope everything is going to turn out for the best, sending good thoughts and vibes across the ocean!
12. 
    Mar 10, '03

    My brother-in-law was diagnosed with a brain tumor (ependymoma sp?) three years ago and had a crani and was sick for quite a while. He is doing much better now, although the neurosurgeon was not able to remove the entire tumor. He had radiation for several months to shrink what was left and he's now in remission.
    
    They have three kids, and it was difficult for them to see what their daddy was going through. Sometimes it would really get us down because it was so unfair that someone so young should have cancer. We prayed every day for his recovery and are thankful that he's in remission and his life is almost back to normal.
    
    I will keep you and your family in my prayers.
13. 
    Mar 10, '03

    Of course you and your family are in our thoughts and prayers..take care.

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